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COVID-19 IDD: Findings from a global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities (IDD) and their caregivers
C. Linehan, G. Birkbeck, T. Araten-Bergman, J. Baumbusch, J. Beadle-Brown, C. Bigby, V. Bradley, M. Brown, F. Bredewold, M. Chirwa, J. Cui, M. Godoy Gimenez, T. Gomeiro, Š. Kanova, T. Kroll, H. Li, M. MacLachlan, J. Narayan, F. Nearchou, A....
Language English Country Ireland
Document type Journal Article
NLK
Directory of Open Access Journals
from 2018
PubMed Central
from 2018
ROAD: Directory of Open Access Scholarly Resources
from 2018
- Publication type
- Journal Article MeSH
Background: A growing body of evidence attests to the disproportionate impact of COVID-19 on persons with intellectual and developmental disabilities (IDD) during the pandemic. This study asked caregivers about their perceptions of how COVID-19 impacted them and the people they support. Method: An online survey was conducted in 12 countries during August-September 2020 and sought information on demographics, support practices, information and training, experiences of COVID-19, social distancing, and wellbeing, as measured by the DASS12. This study reports on 3,754 family members, direct support professionals, and managers who participated in the survey. Results: Caregivers observed increases in depression/anxiety, stereotyped behaviours, aggression towards others and weight gain in the person(s) they supported. They also reported difficulties supporting the person(s) to access healthcare. Families reported reducing or ceasing employment and absorbed additional costs when supporting their family member. Direct support professionals experienced changes in staff shifts, staff absences, increased workload and hiring of casual staff. Caregivers' wellbeing revealed high levels of stress, depression, and less so anxiety. The strongest predictor of wellbeing among families was observation of changes in mood in the person(s) they supported, while for direct support professionals, the strongest predictors of wellbeing were reorganisation of staff shifts and increases in new direct support staff. Discussion: Findings support the contention of this population experiencing a disproportionate burden during the COVID-19 pandemic, reflecting historical inequities in access to healthcare and other human rights violations which are now protected under the United Nations Convention on the Rights of Persons with Disabilities.
ANFFAS Trentino Onlus DAD© project group Trento Trentino 38121 Italy
Business Information Systems O'Rahilly Building University College Cork Cork Ireland
Department of Education University of West Bohemia Plzeň 3 301 00 Czech Republic
Department of Psychology University of Almeria La Canada de San Urbano Almeria 04120 Spain
Department of Social Sciences Ersta Sköndal Bräcke University Sköndal Sweden
Department of Social Work Norwegian University of Science and Technology Trondheim Norway
Department of Social Work The Chinese University of Hong Kong Shatin New Territories Hong Kong China
Department of Special Education Charles University Praha 1 116 39 Czech Republic
Human Services Research Institute 2336 Massachusetts Ave Cambridge MA MA 02140 USA
School of Health and Welfare Halmstad University Halmstad Sweden
School of Nursing and Midwifery Queen's University Belfast BT9 7BL UK
School of Psychology Maynooth University Maynooth Ireland
Tizard Centre Univesity of Kent Canterbury Kent CT2 7NZ UK
UCD Centre for Disability Studies University College Dublin Belfield Dublin 4 Ireland
UCD School of Psychology University College Dublin Belfield Dublin Ireland
University of Humanistic Studies Kromme Nieuwegracht 29 Utrecht 3512 HD The Netherlands
References provided by Crossref.org
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