illness perception
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BACKGROUND: Although illness perception (IP) is a widely recognised factor in the psychosocial adjustment to cancer, little is known about the impact of individual dimensions of IP. This study aims to analyse the relationship between individual dimensions of IP and quality of life (QOL) in childhood cancer survivors. METHODS: The sample consisted of 163 long-term survivors aged 11 to 25 who were administered the Brief Illness Perceptions Questionnaire and the Minneapolis-Manchester Quality of Life Scale. RESULTS: In the correlational analysis, all dimensions of IP were associated with individual dimensions of QOL, except for understanding and treatment control. The results of the hierarchical regression analysis controlling for demographic and medical factors showed that IP had predicted individual dimensions of QOL above and beyond these factors, with emotional response, concern, consequences and understanding being the most predictive dimensions. Several age-specific relationships between IP and QOL were also identified. CONCLUSIONS: Illness perceptions significantly contribute to explaining QOL of childhood cancer survivors above and beyond demographic and medical factors. These results may contribute to more effective targeting of psychosocial interventions promoting QOL of survivors.
- Klíčová slova
- childhood cancer survivors, illness perception, paediatric cancer, quality of life,
- Publikační typ
- časopisecké články MeSH
- Klíčová slova
- MENTAL DISORDERS *, TIME PERCEPTION *,
- MeSH
- deprese * MeSH
- duševní poruchy * MeSH
- lidé MeSH
- vnímání času * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
AIM: The aim of this study was to assess sociodemographic factors and factors connected with treatment of mental illness and to decide whether they can influence the level of self-stigma. METHOD: Sociodemographic characteristics (age, gender, family status, level of employment, level of education) and characteristics related to illness and treatment (diagnosis, length of treatment, adherence to treatment) were gathered in a group of patients in stable mental condition, without acute symptoms of mental illness. Self-stigma was measured using the Self-stigma of Mental Illness Scale - short form (SSMIS-SF). RESULTS: The sample included 197 patients: 99 patients in group 1 (G1) with psychosis and 98 in group 2 (G2) with anxious and affective disorders. The average age was 44.15 ± 12.91 years, the length of illness was 11.67 ± 9.21 years and 48% of patients were men. The total average SSMIS-SF score was 61.54 ± 23.34. We found no statistically significant difference in the total level of self-stigmatisation between these groups ( t(197) = 0.77; p = .441). The level of self-stigmatisation (total score of SSMIS-SF) in patients in G1 (psychosis) increased with the length of illness r(99) = .253; p = .011. Employment status seems to correlate with the level of self-stigmatisation ( F(3, 184) = 5.27; p = .002). Patients unemployed and on disability pension had higher levels of self-stigmatisation than patients working full-time. Patients who took medication regularly (full medical adherence) had lower scores of SSMIS-SF total scores in comparison with patients with lower compliance ( t(195) = 3.476; p = .001; Cohen's d = .25). CONCLUSION: According to our results, with regard to the factors that were followed, self-stigmatisation correlates with the presence of employment (social inclusion), duration of illness in patients with psychosis and treatment adherence. We did not find a statistically significant influence of age, gender, marital status or clinical diagnosis on the level of self-stigma.
- Klíčová slova
- Mental illness, self-stigma, sociodemographic factors, stigma,
- MeSH
- adherence pacienta psychologie MeSH
- dospělí MeSH
- duševní poruchy psychologie terapie MeSH
- lidé středního věku MeSH
- lidé MeSH
- průzkumy a dotazníky MeSH
- psychiatrické posuzovací škály MeSH
- sebepojetí * MeSH
- socioekonomické faktory MeSH
- společenské stigma * MeSH
- zaměstnanost psychologie MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Česká republika MeSH
- Klíčová slova
- LYSERGIC ACID DIETHYLAMIDE/pharmacology *, PSYCHOSES/experimental *,
- MeSH
- duševní poruchy * MeSH
- lidé MeSH
- LSD farmakologie MeSH
- psychotické poruchy * MeSH
- vnímání času * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- Názvy látek
- LSD MeSH
Progress in psychiatric treatment has led to important improvements in the quality of life of patients with severe mental illness (SMI). Nevertheless, the life expectancy of patients with SMI remains two decades shorter than that of the general population, and the most prevalent cause of death is cardiovascular disease. Given that the delivery of somatic care to a population of individuals with mental illness is specific, we developed a screening and intervention programme aimed at this vulnerable population. The "SOMA" programme is a complex somatic health intervention system consisting of screening and a set of interventions. Risk screening is evaluated automatically; the interventions include dietary intervention, healthy lifestyle education (HSE), physiotherapy, kinesiotherapy, and occupational therapy (KOP). The programme was introduced into the practice of the hospital, and its outcomes were monitored with a pilot population divided into 2 subprogrammes. CV risk factor prevalence study (n= 5481) as the most common CV risk factors identified hypertension (56.6 %) and smoking (55.7 %), high-risk patients proportion was 1364 (27 %). HSE (n=40) enrolled patients improved their body weight. KOP results show that patients with schizophrenia preferred physical activity less than others; 53 % of patients have no physical activity during hospitalization, and spontaneous physical activity depends on BMI in our sample. We observed improvement in cognitive functioning, perception of physical functions, or perceived limitations was comparable to the general population. Results show the usability of the program design; initial screening with two intervention branches can increase motivation for physical activity and adoption of health-promoting behaviors and support a recovery process in SMI patients. SOMA project is unique in the Czech environment, however, larger sample with longer observation period is needed.
- Klíčová slova
- Cardiovascular disease, Healthy lifestyle education, Nutritional care, Physiotherapy, Severe mental illness,
- MeSH
- dospělí MeSH
- duševní poruchy * terapie epidemiologie MeSH
- ergoterapie metody MeSH
- kardiovaskulární nemoci prevence a kontrola epidemiologie MeSH
- lidé středního věku MeSH
- lidé MeSH
- pilotní projekty MeSH
- plošný screening MeSH
- rizikové faktory MeSH
- schizofrenie terapie epidemiologie MeSH
- techniky fyzikální terapie MeSH
- zdravý životní styl MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- Klíčová slova
- MENTAL DISORDERS/diagnosis *, TASTE *, THIOCARBAMATES *, THIOUREA *,
- MeSH
- chuť * MeSH
- chuťová percepce * MeSH
- duševní poruchy diagnóza MeSH
- lidé MeSH
- thiokarbamáty * MeSH
- thiomočovina * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- Názvy látek
- thiokarbamáty * MeSH
- thiomočovina * MeSH
OBJECTIVES: A significant number of psychiatric patients stigmatize themselves because of their mental struggles. Such self-stigmatization has an adverse impact on patients' well-being and effectiveness of the treatment of mental disorders. The goal of this study was to standardize the brief Internalized Stigma of Mental Illness Scale (ISMI-10), which could be used in studies targeting the self-stigma among the psychiatric patients. METHOD: 354 psychiatric patients participated in the study between the years 2012 and 2014. All individuals were undergoing treatment in the outpatient care or the psychotherapeutic ward of the Department of Psychiatry, University Hospital Olomouc. The mean age of the participants was 41.5±13.3 years. The majority of them were women (n=195). The patients suffered from various mental disorders - neurotic disorders (n=166), mood disorders (n=65), substance use disorders (n=47), psychoses (n=40), personality disorders (n=32), and organic mental illness (n=4). Each patient completed a demographic questionnaire and the ISMI-10. RESULTS: The ordinal alpha of the scale was 0.86, indicating its good internal consistency. The overall scores of the full and abbreviated version of the scale were almost perfectly correlated (r=0.95, p<0.001). The factor analysis confirmed a good internal structure of the scale. The created norms for the scale score were based on stens. CONCLUSION: The ISMI-10 may be a useful method for measuring the self-stigma among adults with a mental disorder. The area of its use lies mainly in research.
- MeSH
- dospělí MeSH
- duševní poruchy diagnóza psychologie MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladý dospělý MeSH
- poruchy nálady diagnóza MeSH
- poruchy spojené s užíváním psychoaktivních látek diagnóza MeSH
- průzkumy a dotazníky MeSH
- psychiatrické posuzovací škály MeSH
- psychometrie * metody MeSH
- reprodukovatelnost výsledků MeSH
- sebepojetí MeSH
- společenské stigma * MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladý dospělý MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
BACKGROUND: Dementia is a serious problem in old age, that impacts an individual's ability to function and may threaten personal dignity. Given the variable features of the illness and the diversity of life experiences, many factors may contribute to the perception of dignity by men and women with dementia. The purpose of the study was to explore the factors that contribute to dignity and its domains in men and women with dementia. METHODS: This cross-sectional study involved 316 community-dwelling patients with early-stage dementia (aged ≥ 60) (PwD). We assessed the participants' sociodemographic and social involvement characteristics, health-related variables (pain, depression, physical performance, visual and hearing impairments), attitude to aging, and self-sufficiency in the activities of daily living (ADL). These factors were investigated as independent variables for the perception of dignity and of its domains in men and women. RESULTS: Multivariate regression analysis showed that PwD experienced minor dignity problems in the early stages of dementia. In both men and women higher rates of depression, negative attitudes to aging, and pain were associated with reductions in the perception of dignity. In men, but not in women visual impairment had a negative effect on overall dignity, and on the associated domains of 'Loss of Autonomy' and 'Loss of Confidence'. In women, lowered self-sufficiency in ADL contributed to reduced self-perception of dignity and in the associated domains of 'Loss of Purpose of Life', 'Loss of Autonomy', and 'Loss of Confidence'. Sociodemographic and social involvement characteristics, hearing impairment, and physical performance did not influence the participants' self-perception of dignity. CONCLUSION: The results suggested that several common factors (depression, attitudes to aging, and pain) contribute to the perception of dignity in both men and women. Other factors, visual impairments in men, and self-sufficiency in ADL in women, appear to be more gender specific. These differences might relate to their specific gender roles and experiences. The self-perception of dignity in PwD can be helped by supporting the individual, to the extent that their illness allows, in maintaining activities that are important to their gender roles, and that preserve their gender identity. TRIAL REGISTRATION: NCT04443621.
- Klíčová slova
- Activities of daily living, Attitude to aging, Dementia, Depression, Dignity, Gender, Older adults, Pain, Visual impairment,
- MeSH
- bolest MeSH
- činnosti denního života MeSH
- demence * diagnóza MeSH
- genderová identita MeSH
- lidé MeSH
- percepce MeSH
- průřezové studie MeSH
- senioři MeSH
- uznání * MeSH
- Check Tag
- lidé MeSH
- mužské pohlaví MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
The objective of the submitted work was to obtain a more accurate picture of lay ideas on mentally ill people in seven selected population groups--two classes from a school for health workers, two classes of general secondary schools, participants of a training course for nurses organized by the church, employees of the law court and prosecution and patients of a psychiatric hospital/a total of 181 respondents. The respondents were asked to give at least 5 expressions characterizing a mentally sick person or lunatic. A total of 948 statements, incl. 450 different ones, were obtained. The statements were divided into four categories, depending whether they expressed a favourable or unfavourable quality, the need of assistance, protection or sympathy or whether they were neutral. The author assessed the ratio of categories by groups of respondents, repeatedly used expressions and qualities described in the statements. With the exception of the from of pupils of an extension course for health workers, where the majority were statements expressing the need of assistance, in the remaining groups more than half the expressions were unfavourable, in five the difference was statistically significant. The difference between students from the school for health workers and students from general secondary schools was significant only as regards the number of favourable replies from those in the extension course the difference was a smaller number of unfavourable replies. Against expectations, adverse ideas were recorded in the group of subjects training for nursing. Employees of the law court and prosecution used most frequently adverse expressions and made the smallest number of statements expressing the necessity of assistance.(ABSTRACT TRUNCATED AT 250 WORDS)
- MeSH
- duševní poruchy psychologie MeSH
- lidé MeSH
- postoj zdravotnického personálu MeSH
- sociální percepce * MeSH
- stereotypizace * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- anglický abstrakt MeSH
- časopisecké články MeSH
BACKGROUND: The perception of suffering causes distress. Little is known about what predicts the perception of suffering in caregivers. OBJECTIVE: The aims of this study were to determine the predictors of caregivers' perceptions of the suffering of patients with a primary malignant brain tumor and to find to what extent perceived suffering predicts the caregivers' burden and depression. METHODS: Data were obtained as part of a descriptive longitudinal study of adult family caregivers of persons with a primary malignant brain tumor. Recruitment took place in outpatient neuro-oncology and neurosurgery clinics. Caregiver perception of care recipient suffering was measured by 1 item on a scale from 1 to 6. RESULTS: The sample of caregiver interviews 4 months after recipients were diagnosed consisted of 86 dyads. While controlling for age, years of education, tumor type, being a spousal caregiver, spiritual well-being, and anxiety, perception of overall suffering was predicted by such symptoms as difficulty understanding, difficulty remembering, difficulty concentrating, feeling of distress, weakness, and pain. Caregivers' perception of the patient's degree of suffering was the main predictor of caregiver burden due to schedule 4 months following diagnosis. CONCLUSIONS: Care recipient symptoms play an important role in caregivers' perception of the care recipients' suffering. Perception of care recipient suffering may influence caregiver burden. IMPLICATIONS FOR PRACTICE: Identifying specific predictors of overall suffering provides meaningful information for healthcare providers in the field of neuro-oncology and neurosurgery.
- MeSH
- deprese diagnóza MeSH
- dospělí MeSH
- interpersonální vztahy * MeSH
- lidé středního věku MeSH
- lidé MeSH
- longitudinální studie MeSH
- mladý dospělý MeSH
- nádory mozku ošetřování psychologie MeSH
- osobní újma zaviněná nemocí * MeSH
- osoby pečující o pacienty psychologie statistika a číselné údaje MeSH
- psychický stres psychologie MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- teoretické modely MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mladý dospělý MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- Research Support, N.I.H., Extramural MeSH