Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care

. 2024 May ; 5 (5) : e370-e378. [epub] 20240409

Jazyk angličtina Země Velká Británie, Anglie Médium print-electronic

Typ dokumentu časopisecké články, práce podpořená grantem

Perzistentní odkaz   https://www.medvik.cz/link/pmid38608695

Grantová podpora
K24 AG054415 NIA NIH HHS - United States

Odkazy

PubMed 38608695
PubMed Central PMC11262782
DOI 10.1016/s2666-7568(24)00043-6
PII: S2666-7568(24)00043-6
Knihovny.cz E-zdroje

Advance care planning (ACP) is increasingly recognised in the global agenda for dementia care. The European Association for Palliative Care (EAPC) Taskforce on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September, 2021, and June, 2022, that was approved by the EAPC Board. Consensus was achieved on 11 recommendations concerning the regulation of advance directives, equity of access, and dementia-inclusive approaches and conversations to express patients' values. Identified research gaps included the need for an evidence-based dementia-specific practice model that optimises engagement and communication with people with fluctuating and impaired capacity and their families to support decision making, while also empowering people to adjust their decisions if their goals or preferences change over time. Policy gaps included insufficient health services frameworks for dementia-inclusive practice. The results highlight the need for more evidence and policy development that support inclusive ACP practice models.

CEGE Research Center in Management and Economics Ethics and Sustainability Research Area Católica Porto Business School Universidade Católica Portuguesa Porto Portugal

Centre of Expertise in Longevity and Long Term Care Faculty of Humanities Charles University Prague Czech Republic

Department of Public Health and Pediatrics University of Torino Torino Italy

Department of Public Health and Primary Care Leiden University Medical Center Leiden Netherlands; Department of Psychiatric Nursing Tohoku University Graduate School of Medicine Sendai shi Japan; Mental Health Promotion Unit Research Center for Social Science and Medicine Tokyo Metropolitan Institute of Medical Science Tokyo Japan

Department of Public Health and Primary Care Leiden University Medical Center Leiden Netherlands; Radboudumc Alzheimer Center and Department of Primary and Community Care Radboud university medical center Nijmegen Netherlands; Cicely Saunders Institute Faculty of Nursing Midwifery and Palliative Care King's College London London UK

Department of Public Health Erasmus University Medical Center Rotterdam Netherlands

Department of Research and Publications Dementia UK London UK; Faculty of Health and Life Sciences De Montfort University Leicester UK

Division of Geriatrics Department of Medicine University of California San Francisco CA USA; San Francisco Veterans Affairs Medical Center San Francisco CA USA

Institute of General Practice Family Practice Medical Faculty University of Duisburg Essen Essen Germany

Institute of Higher Education and Research in Healthcare Lausanne University Hospital and University of Lausanne Lausanne Switzerland; Palliative and Supportive Care Service Lausanne University Hospital and University of Lausanne Lausanne Switzerland

School of Medicine University of Zagreb Zagreb Croatia; Department for Biological Psychiatry and Psychogeriatrics University Psychiatric Hospital Vrapče Zagreb Croatia

School of Nursing and Midwifery Faculty of Health University of Technology Sydney Sydney NSW Australia

Vrije Universiteit Brussel UGent End of Life Care Research Group Vrije Universiteit Brussel Brussels Belgium

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