INTRODUCTION: florio® HAEMO is a hemophilia treatment monitoring application (app) offering activity tracking and wearable device connectivity. Its use might support everyday activities for people with hemophilia. The aim of this study was to evaluate user satisfaction, long-term usage and the impact on data entry when pairing a wearable with a hemophilia monitoring app. METHODS: This is a follow-up of a two-part user survey conducted in Central Europe. People with hemophilia and parents/caregivers of children with hemophilia using florio HAEMO and who completed part one were invited to complete a second online questionnaire at least 4 months later. RESULTS: Fifty participants (83.3%) who completed part one of the survey continued to use the florio HAEMO app and completed part two. Of 14 participants who chose to use the app with a wearable, more than half (57.1%) were aged between 13 and 25 years. Overall, the results demonstrated that florio HAEMO is very easy or rather easy to use, especially for individuals pairing the app with a wearable. Most people using a wearable indicated that florio HAEMO was very or rather important in bringing certainty to daily activities (85.7%). Notably, 14 of 36 (38.9%) non-wearable users indicated that they would prefer to pair the app with a wearable in the future. CONCLUSIONS: Adherence to the florio HAEMO app is maintained over an extended period of use. Pairing the app with a wearable might enable easier access to app features, increase data entry motivation and provide more certainty about daily activities for people with hemophilia.

Blood Center University Hospital Ostrava Ostrava Czech Republic

Department of Hematology and Oncology University Children's Hospital University Medical Center Ljubljana Ljubljana Slovenia

Department of Hematology and Transfusion Medicine National Hemophilia Center Faculty of Medicine of Comenius University and University Hospital Bratislava Slovakia

Department of Hematology University Medical Center Ljubljana Faculty of Medicine University of Ljubljana Ljubljana Slovenia

Department of Onco Hematology Heim Pál Nationale Institute of Pediatrics Budapest Hungary

Department of Pediatric Hematology and Biochemistry Masaryk University Brno Czech Republic

Department of Pediatric Hematology and Biochemistry University Hospital Brno Brno Czech Republic

Department of Pediatric Hematology Oncology University Hospital Motol 5 Úvalu 84 150 06 Prague Czech Republic

Department of Pediatric Oncology Hematology and Transplantology Warsaw Medical University Warsaw Poland

Division of Hematology and Oncology Department of Pediatrics University Hospital Center Zagreb Zagreb Croatia

Division of Hematology Department of Internal Medicine University Hospital Center Zagreb University of Zagreb Zagreb Croatia

HZRM Hamophilie Zentrum Rhein Main Mörfelden Walldorf Germany

National Hemophilia Centre and Haemostasis Department Central Hospital of Northern Pest Military Hospital Budapest Hungary

School of Medicine Zagreb Croatia

Secondary Faculty of Medicine Charles University Prague Czech Republic

Swedish Orphan Biovitrum AG Basel Switzerland

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