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COVID-19 IDD: A global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers
C. Linehan, T. Araten-Bergam, J. Baumbusch, J. Beadle-Brown, C. Bigby, G. Birkbeck, V. Bradley, M. Brown, F. Bredewold, M. Chirwa, J. Cui, M. Godoy Gimenez, T. Gomiero, S. Kanova, T. Kroll, M. MacLachlan, B. Mirfin-Veitch, J. Narayan, F....
Jazyk angličtina Země Irsko
Typ dokumentu časopisecké články
NLK
Directory of Open Access Journals
od 2018
PubMed Central
od 2018
ROAD: Directory of Open Access Scholarly Resources
od 2018
- Publikační typ
- časopisecké články MeSH
Background: This protocol outlines research to explore family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care. Methods: An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore their perceptions of the impact of COVID-19 in terms of demographics, living arrangements, access to services, social distancing, and carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 18 countries worldwide for international comparison. The survey team have extensive personal and professional networks and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin's Human Research Ethics Committee (HS-20-28-Linehan). Dissemination: Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.
ANFFAS Trentino Onlus DAD© Project Group via Giambattista Unterveger 38121 Trento Trentino Italy
Business Information Systems University College Cork O'Rahilly Building Cork Ireland
Department of Education University of West Bohemia Univerzitní 2732 8 Plzeň 3 301 00 Czech Republic
Department of Psychology University of Almeria La Cañada de San Urbano 04120 Almería Spain
Department of Social Sciences Ersta Sköndal Bräcke University Box 441 Sköndal SE 128 06 Sweden
Department of Social Work Norwegian University of Science and Technology Trondheim NO 7491 Norway
Department of Social Work The Chinese University of Hong Kong Shatin New Territories Hong Kong China
Donald Beasley Institute 248 Cumberland Street Dunedin Central Dunedin 9016 New Zealand
Human Services Research Institute 2336 Massachusetts Ave Cambridge MA 02140 USA
School of Health and Welfare Halmstad University Box 823 Halmstad SE 301 18 Sweden
School of Nursing Midwifery and Health Systems University College Dublin Belfield Dublin 4 Ireland
School of Psychology Maynooth University Maynooth Ireland
Tizard Centre University of Kent Canterbury Kent CT2 7NZ UK
UCD Centre for Disability Studies University College Dublin Belfield Dublin Dublin 4 Ireland
UCD School of Psychology University College Dublin Belfield Dublin 4 Ireland
University of Humanistic Studies Kromme Nieuwegracht 29 Utrecht 3512 HD The Netherlands
Citace poskytuje Crossref.org
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