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European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer
RJ. van Kalsbeek, HJH. van der Pal, LCM. Kremer, E. Bardi, MC. Brown, R. Effeney, JF. Winther, C. Follin, J. den Hartogh, R. Haupt, L. Hjorth, T. Kepak, K. Kepakova, G. Levitt, JJ. Loonen, M. Mangelschots, M. Muraca, M. Renard, H. Sabic, CU....
Jazyk angličtina Země Velká Británie
Typ dokumentu časopisecké články, práce podpořená grantem
- MeSH
- kvalita života MeSH
- lidé MeSH
- mladiství MeSH
- mladý dospělý MeSH
- nádory terapie MeSH
- přežívající onkologičtí pacienti * psychologie MeSH
- směrnice pro lékařskou praxi jako téma * MeSH
- Check Tag
- lidé MeSH
- mladiství MeSH
- mladý dospělý MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
BACKGROUND: Long-term follow-up (LTFU) care for childhood, adolescent, and young adult (CAYA) cancer survivors is essential to preserve health and quality of life (QoL). Evidence-based guidelines are needed to inform optimal surveillance strategies, but many topics are yet to be addressed by the International Late Effects of Childhood Cancer Guideline Harmonization Group (IGHG). Therefore, the PanCareFollowUp Recommendations Working Group collaborated with stakeholders to develop European harmonised recommendations in anticipation of evidence-based IGHG guidelines. METHODS: The PanCareFollowUp Recommendations Working Group, consisting of 23 late effects specialists, researchers, and survivor representatives from nine countries, collaborated in the first Europe-wide effort to provide unified recommendations in anticipation of evidence-based guidelines. A pragmatic methodology was used to define recommendations for topics where no evidence-based IGHG recommendations exist. The objective was to describe the surveillance requirements for high-quality care while balancing the different infrastructures and resources across European health care systems. The process included two face-to-face meetings and an external consultation round involving 18 experts from 14 countries. RESULTS: Twenty-five harmonised recommendations for LTFU care were developed collaboratively and address topics requiring awareness only (n = 6), awareness, history and/or physical examination (n = 9), or additional surveillance tests (n = 10). CONCLUSIONS: The PanCareFollowUp Recommendations, representing a unique agreement across European stakeholders, emphasise awareness among survivors and health care providers in addition to tailored clinical evaluation and/or surveillance tests. They include existing IGHG guidelines and additional recommendations developed by a pragmatic methodology and will be used in the Horizon 2020-funded PanCareFollowUp project to improve health and QoL of CAYA cancer survivors.
Childhood Cancer International Europe Servitengasse 5 16 Vienna 1090 Austria
Department of Oncology Paediatric Oncology KU Leuven Belgium
PanCare Jacobus Bellamylaan 16 Bussum 1401 AZ the Netherlands
Princess Máxima Centre for Paediatric Oncology Heidelberglaan 25 Utrecht 3584 CS the Netherlands
St Anna Children's Hospital Kinderspitalgasse 6 Vienna 1090 Austria
Citace poskytuje Crossref.org
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- $a European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer / $c RJ. van Kalsbeek, HJH. van der Pal, LCM. Kremer, E. Bardi, MC. Brown, R. Effeney, JF. Winther, C. Follin, J. den Hartogh, R. Haupt, L. Hjorth, T. Kepak, K. Kepakova, G. Levitt, JJ. Loonen, M. Mangelschots, M. Muraca, M. Renard, H. Sabic, CU. Schneider, A. Uyttebroeck, R. Skinner, RL. Mulder
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- $a BACKGROUND: Long-term follow-up (LTFU) care for childhood, adolescent, and young adult (CAYA) cancer survivors is essential to preserve health and quality of life (QoL). Evidence-based guidelines are needed to inform optimal surveillance strategies, but many topics are yet to be addressed by the International Late Effects of Childhood Cancer Guideline Harmonization Group (IGHG). Therefore, the PanCareFollowUp Recommendations Working Group collaborated with stakeholders to develop European harmonised recommendations in anticipation of evidence-based IGHG guidelines. METHODS: The PanCareFollowUp Recommendations Working Group, consisting of 23 late effects specialists, researchers, and survivor representatives from nine countries, collaborated in the first Europe-wide effort to provide unified recommendations in anticipation of evidence-based guidelines. A pragmatic methodology was used to define recommendations for topics where no evidence-based IGHG recommendations exist. The objective was to describe the surveillance requirements for high-quality care while balancing the different infrastructures and resources across European health care systems. The process included two face-to-face meetings and an external consultation round involving 18 experts from 14 countries. RESULTS: Twenty-five harmonised recommendations for LTFU care were developed collaboratively and address topics requiring awareness only (n = 6), awareness, history and/or physical examination (n = 9), or additional surveillance tests (n = 10). CONCLUSIONS: The PanCareFollowUp Recommendations, representing a unique agreement across European stakeholders, emphasise awareness among survivors and health care providers in addition to tailored clinical evaluation and/or surveillance tests. They include existing IGHG guidelines and additional recommendations developed by a pragmatic methodology and will be used in the Horizon 2020-funded PanCareFollowUp project to improve health and QoL of CAYA cancer survivors.
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