• Je něco špatně v tomto záznamu ?

Fostering Palliative Care Through Digital Intervention: A Platform for Adult Patients With Hematologic Malignancies

L. Koumakis, F. Schera, H. Parker, P. Bonotis, M. Chatzimina, P. Argyropaidas, G. Zacharioudakis, M. Schäfer, C. Kakalou, C. Karamanidou, J. Didi, E. Kazantzaki, L. Scarfo, K. Marias, P. Natsiavas

. 2021 ; 3 (-) : 730722. [pub] 20211217

Jazyk angličtina Země Švýcarsko

Typ dokumentu časopisecké články

Perzistentní odkaz   https://www.medvik.cz/link/bmc22010435

Patient-reported outcomes (PROs) are an emerging paradigm in clinical research and healthcare, aiming to capture the patient's self-assessed health status in order to gauge efficacy of treatment from their perspective. As these patient-generated health data provide insights into the effects of healthcare processes in real-life settings beyond the clinical setting, they can also be viewed as a resolution beyond what can be gleaned directly by the clinician. To this end, patients are identified as a key stakeholder of the healthcare decision making process, instead of passively following their doctor's guidance. As this joint decision-making process requires constant and high-quality communication between the patient and his/her healthcare providers, novel methodologies and tools have been proposed to promote richer and preemptive communication to facilitate earlier recognition of potential complications. To this end, as PROs can be used to quantify the patient impact (especially important for chronic conditions such as cancer), they can play a prominent role in providing patient-centric care. In this paper, we introduce the MyPal platform that aims to support adults suffering from hematologic malignancies, focusing on the technical design and highlighting the respective challenges. MyPal is a Horizon 2020 European project aiming to support palliative care for cancer patients via the electronic PROs (ePROs) paradigm, building upon modern eHealth technologies. To this end, MyPal project evaluate the proposed eHealth intervention via clinical studies and assess its potential impact on the provided palliative care. More specifically, MyPal platform provides specialized applications supporting the regular answering of well-defined and standardized questionnaires, spontaneous symptoms reporting, educational material provision, notifications etc. The presented platform has been validated by end-users and is currently in the phase of pilot testing in a clinical study to evaluate its feasibility and its potential impact on the quality of life of palliative care patients with hematologic malignancies.

Citace poskytuje Crossref.org

000      
00000naa a2200000 a 4500
001      
bmc22010435
003      
CZ-PrNML
005      
20220425131829.0
007      
ta
008      
220420s2021 sz f 000 0|eng||
009      
AR
024    7_
$a 10.3389/fdgth.2021.730722 $2 doi
035    __
$a (PubMed)34977857
040    __
$a ABA008 $b cze $d ABA008 $e AACR2
041    0_
$a eng
044    __
$a sz
100    1_
$a Koumakis, Lefteris $u Institute of Computer Science, Foundation for Research and Technology-Hellas (FORTH), Heraklion, Greece
245    10
$a Fostering Palliative Care Through Digital Intervention: A Platform for Adult Patients With Hematologic Malignancies / $c L. Koumakis, F. Schera, H. Parker, P. Bonotis, M. Chatzimina, P. Argyropaidas, G. Zacharioudakis, M. Schäfer, C. Kakalou, C. Karamanidou, J. Didi, E. Kazantzaki, L. Scarfo, K. Marias, P. Natsiavas
520    9_
$a Patient-reported outcomes (PROs) are an emerging paradigm in clinical research and healthcare, aiming to capture the patient's self-assessed health status in order to gauge efficacy of treatment from their perspective. As these patient-generated health data provide insights into the effects of healthcare processes in real-life settings beyond the clinical setting, they can also be viewed as a resolution beyond what can be gleaned directly by the clinician. To this end, patients are identified as a key stakeholder of the healthcare decision making process, instead of passively following their doctor's guidance. As this joint decision-making process requires constant and high-quality communication between the patient and his/her healthcare providers, novel methodologies and tools have been proposed to promote richer and preemptive communication to facilitate earlier recognition of potential complications. To this end, as PROs can be used to quantify the patient impact (especially important for chronic conditions such as cancer), they can play a prominent role in providing patient-centric care. In this paper, we introduce the MyPal platform that aims to support adults suffering from hematologic malignancies, focusing on the technical design and highlighting the respective challenges. MyPal is a Horizon 2020 European project aiming to support palliative care for cancer patients via the electronic PROs (ePROs) paradigm, building upon modern eHealth technologies. To this end, MyPal project evaluate the proposed eHealth intervention via clinical studies and assess its potential impact on the provided palliative care. More specifically, MyPal platform provides specialized applications supporting the regular answering of well-defined and standardized questionnaires, spontaneous symptoms reporting, educational material provision, notifications etc. The presented platform has been validated by end-users and is currently in the phase of pilot testing in a clinical study to evaluate its feasibility and its potential impact on the quality of life of palliative care patients with hematologic malignancies.
655    _2
$a časopisecké články $7 D016428
700    1_
$a Schera, Fatima $u Institute for Biomedical Engineering, Sulzbach, Germany
700    1_
$a Parker, Heather $u Atlantis Healthcare, London, United Kingdom
700    1_
$a Bonotis, Panos $u Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece
700    1_
$a Chatzimina, Maria $u Institute of Computer Science, Foundation for Research and Technology-Hellas (FORTH), Heraklion, Greece
700    1_
$a Argyropaidas, Panagiotis $u Institute of Computer Science, Foundation for Research and Technology-Hellas (FORTH), Heraklion, Greece
700    1_
$a Zacharioudakis, Giorgos $u Institute of Computer Science, Foundation for Research and Technology-Hellas (FORTH), Heraklion, Greece
700    1_
$a Schäfer, Michael $u Institute for Biomedical Engineering, Sulzbach, Germany
700    1_
$a Kakalou, Christine $u Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece
700    1_
$a Karamanidou, Christina $u Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece
700    1_
$a Didi, Jana $u Center for Molecular Medicine, Central European Institute of Technology, Masaryk University, Brno, Czechia
700    1_
$a Kazantzaki, Eleni $u Department of Hematology, University Hospital of Heraklion, Heraklion, Greece
700    1_
$a Scarfo, Lydia $u Universita Vita-Salute San Raffaele, Milan, Italy
700    1_
$a Marias, Kostas $u Institute of Computer Science, Foundation for Research and Technology-Hellas (FORTH), Heraklion, Greece
700    1_
$a Natsiavas, Pantelis $u Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece
773    0_
$w MED00208634 $t Frontiers in digital health $x 2673-253X $g Roč. 3, č. - (2021), s. 730722
856    41
$u https://pubmed.ncbi.nlm.nih.gov/34977857 $y Pubmed
910    __
$a ABA008 $b sig $c sign $y - $z 0
990    __
$a 20220420 $b ABA008
991    __
$a 20220425131827 $b ABA008
999    __
$a ind $b bmc $g 1784592 $s 1161633
BAS    __
$a 3
BAS    __
$a PreBMC
BMC    __
$a 2021 $b 3 $c - $d 730722 $e 20211217 $i 2673-253X $m Frontiers in digital health $n Front Digit Health $x MED00208634
LZP    __
$a Pubmed-20220420

Najít záznam

Citační ukazatele

Možnosti archivace