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Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care
M. Nakanishi, S. Martins Pereira, L. Van den Block, D. Parker, K. Harrison-Dening, P. Di Giulio, J. In der Schmitten, PJ. Larkin, N. Mimica, RL. Sudore, I. Holmerová, IJ. Korfage, JT. van der Steen, European Association for Palliative Care
Jazyk angličtina Země Anglie, Velká Británie
Typ dokumentu časopisecké články, práce podpořená grantem
Grantová podpora
K24 AG054415
NIA NIH HHS - United States
- MeSH
- delfská metoda * MeSH
- demence * terapie MeSH
- konsensus * MeSH
- lidé MeSH
- pacientova přání ohledně budoucí terapie MeSH
- paliativní péče * MeSH
- předběžné plánování péče * organizace a řízení MeSH
- zdravotní politika MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- Geografické názvy
- Evropa MeSH
Advance care planning (ACP) is increasingly recognised in the global agenda for dementia care. The European Association for Palliative Care (EAPC) Taskforce on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September, 2021, and June, 2022, that was approved by the EAPC Board. Consensus was achieved on 11 recommendations concerning the regulation of advance directives, equity of access, and dementia-inclusive approaches and conversations to express patients' values. Identified research gaps included the need for an evidence-based dementia-specific practice model that optimises engagement and communication with people with fluctuating and impaired capacity and their families to support decision making, while also empowering people to adjust their decisions if their goals or preferences change over time. Policy gaps included insufficient health services frameworks for dementia-inclusive practice. The results highlight the need for more evidence and policy development that support inclusive ACP practice models.
Department of Psychiatric Nursing Tohoku University Graduate School of Medicine Sendai shi Japan
Department of Public Health and Pediatrics University of Torino Torino Italy
Department of Public Health and Primary Care Leiden University Medical Center Leiden Netherlands
Department of Public Health Erasmus University Medical Center Rotterdam Netherlands
Department of Research and Publications Dementia UK London UK
Division of Geriatrics Department of Medicine University of California San Francisco CA USA
Faculty of Health and Life Sciences De Montfort University Leicester UK
San Francisco Veterans Affairs Medical Center San Francisco CA USA
Citace poskytuje Crossref.org
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- $a Nakanishi, Miharu $u Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands; Department of Psychiatric Nursing, Tohoku University Graduate School of Medicine, Sendai-shi, Japan; Mental Health Promotion Unit, Research Center for Social Science and Medicine, Tokyo Metropolitan Institute of Medical Science, Tokyo, Japan. Electronic address: mnakanishi-tky@umin.ac.jp
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- $a Advance care planning (ACP) is increasingly recognised in the global agenda for dementia care. The European Association for Palliative Care (EAPC) Taskforce on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September, 2021, and June, 2022, that was approved by the EAPC Board. Consensus was achieved on 11 recommendations concerning the regulation of advance directives, equity of access, and dementia-inclusive approaches and conversations to express patients' values. Identified research gaps included the need for an evidence-based dementia-specific practice model that optimises engagement and communication with people with fluctuating and impaired capacity and their families to support decision making, while also empowering people to adjust their decisions if their goals or preferences change over time. Policy gaps included insufficient health services frameworks for dementia-inclusive practice. The results highlight the need for more evidence and policy development that support inclusive ACP practice models.
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