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Achievements, priorities and strategies in pediatric nephrology in Europe: need for unifying approaches or acceptance of differences

J. Ehrich, V. Tasic, VO. Edvardsson, E. Preka, L. Prikhodina, CJ. Stefanidis, R. Topaloglu, D. Shtiza, A. Sarkissian, T. Mueller-Sacherer, R. Fataliyeva, I. Kazyra, E. Levtchenko, D. Pokrajac, D. Roussinov, D. Milošević, A. Elia, T. Seeman, M....

. 2024 ; 12 (-) : 1458003. [pub] 20241220

Status neindexováno Jazyk angličtina Země Švýcarsko

Typ dokumentu časopisecké články

Perzistentní odkaz   https://www.medvik.cz/link/bmc25008793

BACKGROUND: There is a lack of information on the current healthcare systems for children with kidney diseases across Europe. The aim of this study was to explore the different national approaches to the organization and delivery of pediatric nephrology services within Europe. METHODS: In 2020, the European society for Paediatric Nephrology (ESPN) conducted a cross-sectional survey to identify the existing pediatric nephrology healthcare systems in 48 European countries covering a population of more than 200 million children. RESULTS: The reported three most important priorities in the care of children with kidney diseases were better training of staff, more incentives for physicians to reduce staff shortages, and more hospital beds. Positive achievements in the field of pediatric nephrology included the establishment of new specialized pediatric nephrology centers, facilities for pediatric dialysis and transplant units in 18, 16, and 12 countries, respectively. The most common problems included no access to any type of dialysis (12), inadequate transplant programs for all ages of children (12), lack of well-trained physicians and dialysis nurses (12), inadequate reimbursement of hospitals for expensive therapies (10), and lack of multidisciplinary care by psychologists, dieticians, physiotherapists, social workers and vocational counsellors (6). Twenty-five of 48 countries (52%) expected to have a shortage of pediatric nephrologists in the year 2025, 63% of clinical nurses and 56% of dialysis nurses. All three groups of health care professionals were expected to be lacking in 38% of countries. Prenatal assessment and postnatal management of renal malformations by a multidisciplinary team including obstetricians, geneticists, pediatricians, and pediatric surgeons was available in one third of countries. CONCLUSIONS: Our study shows that there are still very marked differences in pediatric health care systems across the European countries and highlights the need need for appropriate services for children with kidney disease in all European countries.

1st Department of Pediatrics Belarusian State Medical University Minsk Belarus

1st Department of Pediatrics Semmelweis University Budapest Hungary

Arabkir Joint Medical Centre Yerevan Yerevan State Medical University Yerevan Armenia

Clinical Center of Montenegro Institute for Sick Children Podgorica Montenegro

Department of Child and Adolescent Health Mater Dei Hospital Msida Malta

Department of Nephrology Kazakh National Medical University Almaty Kazakhstan

Department of Paediatric Nephrology Emma Children's Hospital Amsterdam University Medical Center Amsterdam Netherlands

Department of Paediatrics and Adolescents Medicine Turku University Hospital Turku Finland

Department of Pediatric and Adolescent Medicine University Hospital of Oslo Oslo Norway

Department of Pediatric Kidney Liver Metabolic and Neurological Diseases Children's Hospital Hannover Medical School Hannover Germany

Department of Pediatric Nephrology and Gastroenterology Medical University of Vienna Vienna Austria

Department of Pediatric Nephrology Hacettepe University School of Medicine Ankara Türkiye

Department of Pediatric Nephrology University Children's Hospital Zurich Switzerland

Department of Pediatric Nephrology University Hospital Essen Essen Germany

Department of Pediatrics 2nd Medical Faculty Charles University Prague Prague Czech Republic

Department of Pediatrics and Adolescent Medicine Aarhus University Hospital Aarhus Denmark

Department of Pediatrics and Division of Pediatric Nephrology University Hospitals Leuven Leuven Belgium

Department of Pediatrics Comenius University Bratislava Slovakia

Department of Pediatrics Immunology and Nephrology Polish Mother's Memorial Hospital Research Institute Lodz Poland

Department of Pediatrics University of Tartu Tartu Estonia

Division of Pediatric Nephrology Bērnuslimībuklīnika Nefroloģi Jasprofilavirsārste Riga Latvia

Division of Pediatric Nephrology Bristol Royal Hospital for Children Bristol United Kingdom

Division of Pediatric Nephrology Children's Health Ireland at Temple Street Dublin Ireland

Division of Pediatric Nephrology Children's Hospital Baku Azerbaijan

Division of Pediatric Nephrology Institute for Child and Youth Health Care of Vojvodina Novi Sad Novi Sad Serbia

Division of Pediatric Nephrology Institute of Pediatrics NCZD Moscow Russia

Division of Pediatric Nephrology Makarios Children Hospital Nicosia Cyprus

Division of Pediatric Nephrology Marmara University Istanbul Türkiye

Division of Pediatric Nephrology Maternity and Child Welfare National Center Under the Ministry of Health of the Kyrgyz Republic Bishkek Kyrgyzstan

Division of Pediatric Nephrology Medical Centre Mrcheveli Tbilisi Georgia

Division of Pediatric Nephrology Mitera Children's Hospital Athens Greece

Division of Pediatric Nephrology Pediatric Medical Institute Tashkent Uzbekistan

Division of Pediatric Nephrology Regina Margherita Children's Hospital Torino Italy

Division of Pediatric Nephrology Sheba Medical Center Edmond and Lily Children's Hospital Tel Hashomer Israel

Division of Pediatric Nephrology University Children's Hospital Sarajevo Bosnia and Herzegovina

Division of Pediatric Nephrology University Hospital Centre Mother Teresa Tirana Albania

Iceland Children's Medical Center Faculty of Medicine School of Health Sciences Landspitali The National University Hospital of Iceland University of Iceland Reykjavik Iceland

Medical School University Children's Hospital Skopje North Macedonia

Nephrology and Hemodialysis Clinic Department of Pediatrics Medical University of Sofia Sofia Bulgaria

Nephrology and RRT Department Shupyk National Healthcare University of Ukraine Kyiv Ukraine

Nephrology Unit National Institute of Health Care for Mother and Child Chisinau Moldova

Paediatric Nephrology University Hospital Southampton NHS Foundation Trust Southampton United Kingdom

Pediatric Center Institute of Clinical Medicine Vilnius University Vilnius Lithuania

Pediatric Clinic University Hospital Center Zagreb Zagreb Croatia

Pediatric Nephrology Centre Hospitalier de Luxembourg Luxembourg Luxembourg

Pediatric Nephrology Department Children's Hospital University Medical Centre Ljubljana Ljubljana Slovenia

Pediatric Nephrology Division Centro Hospitalar Universitário do Porto Porto Portugal

Pediatric Nephrology Fundeni Clincal Institute Bucharest Romania

Pediatric Nephrology Pediatrics University Hospital 12 Octubre Madrid Spain

Pediatric Nephrology Unit Department of Multidisciplinary Pediatrics Assistance Publique des Hôpitaux de Marseille Marseille France

Pediatric Uro Nephrologic Center Department of Pediatrics Queen Silvia Children's Hospital Sahlgrenska University Hospital Gothenburg Sweden

Research and Clinical Institute for Pediatrics Pirogov Russian National Research Medical University Moscow Russia

Citace poskytuje Crossref.org

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$a BACKGROUND: There is a lack of information on the current healthcare systems for children with kidney diseases across Europe. The aim of this study was to explore the different national approaches to the organization and delivery of pediatric nephrology services within Europe. METHODS: In 2020, the European society for Paediatric Nephrology (ESPN) conducted a cross-sectional survey to identify the existing pediatric nephrology healthcare systems in 48 European countries covering a population of more than 200 million children. RESULTS: The reported three most important priorities in the care of children with kidney diseases were better training of staff, more incentives for physicians to reduce staff shortages, and more hospital beds. Positive achievements in the field of pediatric nephrology included the establishment of new specialized pediatric nephrology centers, facilities for pediatric dialysis and transplant units in 18, 16, and 12 countries, respectively. The most common problems included no access to any type of dialysis (12), inadequate transplant programs for all ages of children (12), lack of well-trained physicians and dialysis nurses (12), inadequate reimbursement of hospitals for expensive therapies (10), and lack of multidisciplinary care by psychologists, dieticians, physiotherapists, social workers and vocational counsellors (6). Twenty-five of 48 countries (52%) expected to have a shortage of pediatric nephrologists in the year 2025, 63% of clinical nurses and 56% of dialysis nurses. All three groups of health care professionals were expected to be lacking in 38% of countries. Prenatal assessment and postnatal management of renal malformations by a multidisciplinary team including obstetricians, geneticists, pediatricians, and pediatric surgeons was available in one third of countries. CONCLUSIONS: Our study shows that there are still very marked differences in pediatric health care systems across the European countries and highlights the need need for appropriate services for children with kidney disease in all European countries.
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$a Reusz, George $u First Department of Pediatrics, Semmelweis University, Budapest, Hungary
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$a Awan, Atif $u Division of Pediatric Nephrology, Children's Health Ireland (CHI) at Temple Street, Dublin, Ireland
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$a Lotan, Danny $u Division of Pediatric Nephrology, Sheba Medical Center, Edmond and Lily Children's Hospital, Tel Hashomer, Israel
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$a Peruzzi, Licia $u Division of Pediatric Nephrology, Regina Margherita Children's Hospital, Torino, Italy
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$a Nigmatullina, Nazym $u Department of Nephrology, Kazakh National Medical University, Almaty, Kazakhstan
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$a Beishebaeva, Nasira $u Division of Pediatric Nephrology, Maternity and Child Welfare National Center Under the Ministry of Health of the Kyrgyz Republic, Bishkek, Kyrgyzstan
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$a Stojanović, Vesna $u Division of Pediatric Nephrology, Institute for Child and Youth Health Care of Vojvodina Novi Sad, Novi Sad, Serbia
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