Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer.

Alder Hey Children's NHS Foundation Trust Liverpool

Charles University Prague Czech Republic

Children's University Hospital Skubiszewski Medical University of Lublin Lublin Poland

Department of Children and Adolescents Oncology Institut Gustave Roussy Villejuif France

Department of Medical and Pediatric Oncology Institut Curie Paris France

Department of Medical Oncology Radboud University Medical Centre Nijmegen the Netherlands

Department of Oncology Aarhus University Hospital Aarhus C Denmark

Department of Pediatric Hemato Oncology University Hospitals Leuven Leuven Belgium

Department of Pediatrics Skåne University Hospital Clinical Sciences Lund University Lund Sweden

Division of Pediatrics Unit of Hematooncology University Medical Centre Ljubljana Ljubljana Slovenia

Hospital Infantil Universitario Niño Jesús Madrid Spain

Institute for Cancer Research Oslo University Hospital Oslo Norway

Instituto Português de Oncologia de Lisboa Lisbon Portugal

Klinikum Stuttgart Center for Pediatric and Adolescent Medicine Pediatrics 5 Olgahospital Stuttgart Germany

Leeds Institute of Cancer and Pathology Leeds Institute of Oncology and St James's University Hospital University of Leeds Leeds UK

Medical University of Varna Varna Bulgaria

Oxford University Clinical Academic Graduate School Oxford UK

Pediatric Oncology Unit Fondazione IRCCS Istituto Nazionale Tumori Milan Italy

Semmelweis University Budapest Hungary

Spanish Association of Adolescents and Young Adult with Cancer London

Teenage Cancer Trust London UK

Teenage Cancer Trust Unit St James's University Hospital Leeds UK

University Hospital Muenster Department of Pediatric Hematology and Oncology Westfalian Wilhelms University Muenster Germany

University of Athens School of Medicine Athens Greece

Citace poskytuje Crossref.org

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