Background: This protocol outlines research to explore family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care. Methods: An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore their perceptions of the impact of COVID-19 in terms of demographics, living arrangements, access to services, social distancing, and carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 18 countries worldwide for international comparison. The survey team have extensive personal and professional networks and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin's Human Research Ethics Committee (HS-20-28-Linehan). Dissemination: Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.

ANFFAS Trentino Onlus DAD© Project Group via Giambattista Unterveger 38121 Trento Trentino Italy

Business Information Systems University College Cork O'Rahilly Building Cork Ireland

Canadian Institute for Inclusion and Citizenship University of British Columbia 2080 West Mall Vancouver BC Canada V6T 1Z2 Canada

Centre for Disability Studies Sydney Medical School Faculty of Medicine and Health University of Sydney 92 94 Parramatta Rd Camperdown Sydney NSW 2050 Australia

Department of Education University of West Bohemia Univerzitní 2732 8 Plzeň 3 301 00 Czech Republic

Department of Psychology University of Almeria La Cañada de San Urbano 04120 Almería Spain

Department of Social Sciences Ersta Sköndal Bräcke University Box 441 Sköndal SE 128 06 Sweden

Department of Social Work Norwegian University of Science and Technology Trondheim NO 7491 Norway

Department of Social Work The Chinese University of Hong Kong Shatin New Territories Hong Kong China

Department of Special Education Charles University Magdalény Rettigové 4 Praha 1 116 39 Czech Republic

Donald Beasley Institute 248 Cumberland Street Dunedin Central Dunedin 9016 New Zealand

Human Services Research Institute 2336 Massachusetts Ave Cambridge MA 02140 USA

Inclusive Education at Faculty of Health Education and Society University of Northampton Northampton UK

Living with Disability Research Centre School of Allied Health Human Services and Sport La Trobe University Bundoora Victoria 3086 Australia

School of Health and Welfare Halmstad University Box 823 Halmstad SE 301 18 Sweden

School of Humanities and Social Sciences Department of Social Work and Sociology University of Zambia Great East Road Campus P O Box 32379 Lusaka 10101 Zambia

School of Nursing and Midwifery Queen's University 97 Lisburn Road Medical Biology Centre Belfast BT9 7BL UK

School of Nursing Midwifery and Health Systems University College Dublin Belfield Dublin 4 Ireland

School of Psychology Maynooth University Maynooth Ireland

Tizard Centre University of Kent Canterbury Kent CT2 7NZ UK

UCD Centre for Disability Studies University College Dublin Belfield Dublin Dublin 4 Ireland

UCD School of Psychology University College Dublin Belfield Dublin 4 Ireland

University of Humanistic Studies Kromme Nieuwegracht 29 Utrecht 3512 HD The Netherlands

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COVID-19 IDD: Findings from a global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities (IDD) and their caregivers