An integrated care model for people living with Parkinson's disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients' trajectories. Three typical trajectories were identified: (a) the "unpredictable" trajectory, (b) the "situated" trajectory, and (c) the "demanding" trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.

Department of Neurology and Centre of Clinical Neuroscience General University Hospital Charles University Prague Czech Republic

Mater Misericordiae University Hospital Dublin Ireland

Parkinson's Disease and Movement Disorders Clinic Division of Neurology The Ottawa Hospital Research Institute The University of Ottawa Brain and Mind Research Institute Ottawa Canada

Tampere University Tampere Finland

Universitat Rovira i Virgili Tarragona Spain

University of Cologne Cologne Centre for Ethics Rights Economics and Social Sciences of Health Cologne Germany

University of Ottawa Ottawa Ontario Canada

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