Pathways to eating disorder care: A European multicenter study
Language English Country England, Great Britain Media electronic
Document type Multicenter Study, Journal Article
PubMed
37092677
PubMed Central
PMC10228357
DOI
10.1192/j.eurpsy.2023.23
PII: S0924933823000238
Knihovny.cz E-resources
- Keywords
- Barriers, eating disorders, educational, health care policy, pathways to care,
- MeSH
- Humans MeSH
- Feeding and Eating Disorders * diagnosis therapy MeSH
- Family MeSH
- Health Personnel MeSH
- Check Tag
- Humans MeSH
- Publication type
- Journal Article MeSH
- Multicenter Study MeSH
- Geographicals
- Europe MeSH
BACKGROUND: The aim of this study was to assess barriers and facilitators in the pathways toward specialist care for eating disorders (EDs). METHODS: Eleven ED services located in seven European countries recruited patients with an ED. Clinicians administered an adapted version of the World Health Organization "Encounter Form," a standardized tool to assess the pathways to care. The unadjusted overall time needed to access the ED unit was described using the Kaplan-Meier curve. RESULTS: Four-hundred-nine patients were recruited. The median time between the onset of the current ED episode and the access to a specialized ED care was 2 years. Most of the participants did not directly access the specialist ED unit: primary "points of access" to care were mental health professionals and general practitioners. The involvement of different health professionals in the pathway, seeking help for general psychiatric symptoms, and lack of support from family members were associated with delayed access to ED units. CONCLUSIONS: Educational programs aiming to promote early diagnosis and treatment for EDs should pay particular attention to general practitioners, in addition to mental health professionals, and family members to increase awareness of these illnesses and of their treatment initiation process.
Clinical Psychology Unit Bellvitge University Hospital IDIBELL and CIBERobn ISCIII Barcelona Spain
Clinical Sciences Department School of Medicine and Health Sciences University of Barcelona Spain
Department of Medical and Surgical Sciences University Magna Graecia of Catanzaro Catanzaro Italy
Department of Psychiatry and Psychotherapy University Hospital Munich Munich Germany
Department of Psychiatry Poznan University of Medical Sciences Poznan Poland
Department of Psychiatry University of Campania L Vanvitelli Naples Italy
Eating Disorder Unit Hospital Clínico San Carlos Universidad Complutense Cibersam Madrid Spain
GHU Paris Psychiatrie et Neurosciences Paris France
Neurosciences Department University of Padua Padua Italy
Psychiatry Unit Department of Health Sciences University of Florence Florence Italy
Schoen Clinic Roseneck Prien am Chiemsee Germany
Servei de Psiquiatría Hospital de Sant Pau Barcelone Spain
See more in PubMed
Eddy KT, Tabri N, Thomas JJ, Murray HB, Keshaviah A, Hastings E, et al. Recovery from anorexia nervosa and bulimia nervosa at 22-year follow-up. J Clin Psychiatry. 2017;78(2):184–9. PubMed PMC
Treasure J, Hübel C, Himmerich H. The evolving epidemiology and differential etiopathogenesis of eating disorders: implications for prevention and treatment. World Psychiatry. 2022;21(1):147–8. PubMed PMC
Leichsenring F, Steinert C, Rabung S, Ioannidis JPA. The efficacy of psychotherapies and pharmacotherapies for mental disorders in adults: an umbrella review and meta-analytic evaluation of recent meta-analyses. World Psychiatry. 2022;21(1):133–45. PubMed PMC
Johnson JG, Cohen P, Kasen S, Brook JS. Eating disorders during adolescence and the risk for physical and mental disorders during early adulthood. Arch Gen Psychiatry. 2002;59(6):545–52. PubMed
Fernández‐Aranda F, Treasure J, Paslakis G, Agüera Z, Giménez M, Granero R, et al. The impact of duration of illness on treatment nonresponse and drop‐out: exploring the relevance of enduring eating disorder concept. Eur Eat Disord Rev. 2021;29(3):499–513. PubMed
Andrés-Pepiñá S, Plana MT, Flamarique I, Romero S, Borràs R, Julià L, et al. Long-term outcome and psychiatric comorbidity of adolescent-onset anorexia nervosa. Clin Child Psychol Psychiatry. 2020;25(1):33–44. PubMed
Yárnoz‐Esquíroz P, Lacasa C, Riestra M, Silva C, Frühbeck G. Clinical and financial implications of hospital malnutrition in Spain. Eur Eat Disord Rev. 2019;27(6):581–602. PubMed
National Guideline Alliance (UK). Eating disorders: recognition and treatment. London: National Institute for Health and Care Excellence (NICE); 2017. PubMed
Neubauer K, Weigel A, Daubmann A, Wendt H, Rossi M, Löwe B, et al. Paths to first treatment and duration of untreated illness in anorexia nervosa: are there differences according to age of onset? Eur Eat Disord Rev. 2014;22(4):292–8. PubMed
Austin A, Flynn M, Richards K, Hodsoll J, Duarte TA, Robinson P, et al. Duration of untreated eating disorder and relationship to outcomes: a systematic review of the literature. Eur Eat Disord Rev. 2021;29:329–45. PubMed
Ali K, Farrer L, Fassnacht DB, Gulliver A, Bauer S, Griffiths KM. Perceived barriers and facilitators towards help‐seeking for eating disorders: A systematic review. Int J Eat Disord. 2017;50(1):9–21. PubMed
Regan P, Cachelin FM, Minnick AM. Initial treatment seeking from professional health care providers for eating disorders: a review and synthesis of potential barriers to and facilitators of “first contact. Int J Eat Disord. 2017;50(3):190–209. PubMed
Godart NT, Perdereau F, Rein Z, Berthoz S, Wallier J, Jeammet P, et al. Comorbidity studies of eating disorders and mood disorders. Critical review of the literature. J Affect Disord. 2007;97(1–3):37–49. PubMed
Hopwood CJ, Pincus AL, Wright AGC. A clinically useful model of psychopathology must account for interpersonal dynamics. World Psychiatry. 2023;22(1):152–4. PubMed PMC
Voderholzer U, Haas V, Correll C, Körner T. Medical management of eating disorders: an update. Curr Opin Psychiatry. 2020;33(6):542–53. PubMed
Hoang U, Goldacre M, James A. Mortality following hospital discharge with a diagnosis of eating disorder: national record linkage study, England, 2001–2009. Int J Eat Disord. 2014;47(5):507–15. PubMed
Auger N, Potter BJ, Ukah UV, Low N, Israël M, Steiger H, et al. Anorexia nervosa and the long‐term risk of mortality in women. World Psychiatry. 2021;20(3):448. PubMed PMC
Monteleone AM, Fernandez‐Aranda F, Voderholzer U. Evidence and perspectives in eating disorders: a paradigm for a multidisciplinary approach. World Psychiatry. 2019;18(3):369–70. PubMed PMC
McGorry PD, Mei C, Chanen A, Hodges C, Alvarez-Jimenez M, Killackey E. Designing and scaling up integrated youth mental health care. World Psychiatry. 2022;21(1):61–76. PubMed PMC
Patton GC, Coffey C, Carlin JB, Sanci L, Sawyer S. Prognosis of adolescent partial syndromes of eating disorder. Br J Psychiatry. 2008;192(4):294–9. PubMed
Ogg EC, Millar HR, Pusztai EE, Thom AS. General practice consultation patterns preceding diagnosis of eating disorders. Int J Eat Disord. 1997;22(1):89–93. PubMed
Tu C, Tseng MM, Chang Y. Paths to the first‐time diagnoses of anorexia nervosa and bulimia nervosa in Taiwan. Int J Eat Disord. 2021;54(1):59–68. PubMed
Demmler JC, Brophy ST, Marchant A, John A, Tan JOA. Shining the light on eating disorders, incidence, prognosis and profiling of patients in primary and secondary care: national data linkage study. Br J Psychiatry. 2020;216(2):105–12. PubMed PMC
Herpertz‐Dahlmann B, Bonin E, Dahmen B. Can you find the right support for children, adolescents and young adults with anorexia nervosa: access to age‐appropriate care systems in various healthcare systems. Eur Eat Disord Rev. 2021;29(3):316–28. PubMed
Rogler LH, Cortes DE. Help-seeking pathways: a unifying concept in mental health care. Am J Psychiatry. 1993;150:554–61. PubMed
Campbell H, Hotchkiss R, Bradshaw N, Porteous M. Integrated care pathways. BMJ. 1998;316(7125):133–7. PubMed PMC
Sartorius N, Jablensky A, Korten A, Ernberg G, Anker M, Cooper JE, et al. Early manifestations and first-contact incidence of schizophrenia in different cultures: a preliminary report on the initial evaluation phase of the WHO collaborative study on determinants of outcome of severe mental disorders. Psychol Med. 1986;16(4):909–28. PubMed
Volpe U, Mihai A, Jordanova V, Sartorius N. The pathways to mental healthcare worldwide: a systematic review. Curr Opin Psychiatry. 2015;28(4):299–306. PubMed
Volpe U, Monteleone AM, Ricca V, Corsi E, Favaro A, Santonastaso P, et al. Pathways to specialist care for eating disorders: an Italian multicentre study. Eur Eat Disord Rev. 2019;27(3):274–82. PubMed
Gater R, Jordanova V, Maric N, Alikaj V, Bajs M, Cavic T, et al. Pathways to psychiatric care in Eastern Europe. Br J Psychiatry. 2005;186(6):529–35. PubMed
Gater R, Sousa DBAE, Barrientos G, Caraveo J, Chandrashekar CR, Dhadphale M, et al. The pathways to psychiatric care: a cross-cultural study. Psychol Med. 1991;21(3):761–74. PubMed
Monteleone AM, Cascino G, Barone E, Carfagno M, Monteleone P. COVID-19 pandemic and eating disorders: what can we learn about psychopathology and treatment? A systematic review. Curr Psychiatry Rep. 2021;23:1–15. PubMed PMC
First MB, Gaebel W, Maj M, Stein DJ, Kogan CS, Saunders JB, et al. An organization‐and category‐level comparison of diagnostic requirements for mental disorders in ICD‐11 and DSM‐5. World Psychiatry. 2021;20(1):34–51. PubMed PMC
First MB. SCID-5-CV : structured clinical interview for DSM-5 disorders, clinician version. Arlington, VA: American Psychiatric Association; 2016, p. 95.
Bradburn MJ, Clark TG, Love SB, Altman DG. Survival analysis part III: multivariate data analysis–choosing a model and assessing its adequacy and fit. Br J Cancer. 2003;89(4):605–11. PubMed PMC
Bradburn MJ, Clark TG, Love SB, Altman DG. Survival analysis part II: multivariate data analysis–an introduction to concepts and methods. Br J Cancer. 2003;89(3):431–6. PubMed PMC
R Core Team. R: a language and environment for statistical computing. Vienna, Austria: R Foundation for Statistical Computing; 2016.
Hudson JI, Hiripi E, Pope HG, Kessler RC. The prevalence and correlates of eating disorders in the national comorbidity survey replication. Biol Psychiatry. 2007;61(3):348–58. PubMed PMC
Godart NT, Legleye S, Huas C, Coté SM, Choquet M, Falissard B, et al. Epidemiology of anorexia nervosa in a French community-based sample of 39,542 adolescents. Open J. Epidemiol. 2013;3:31847.
Higgins A, Cahn S. Detection of anorexia nervosa in primary care. Eat Disord. 2018;26(3):213–28. PubMed
Spindler A, Milos G. Links between eating disorder symptom severity and psychiatric comorbidity. Eat Behav. 2007;8(3):364–73. PubMed
Monteleone AM, Cascino G. A systematic review of network analysis studies in eating disorders: is time to broaden the core psychopathology to non specific symptoms. Eur Eat Disord Rev. 2021;29(4):531–47. PubMed PMC
Watson D, Levin-Aspenson HF, Waszczuk MA, Conway CC, Dalgleish T, Dretsch MN, et al. Validity and utility of hierarchical taxonomy of psychopathology (HiTOP): III. Emotional dysfunction superspectrum. World Psychiatry. 2022;21(1):26–54. PubMed PMC
Lahey BB, Moore TM, Kaczkurkin AN, Zald DH. Hierarchical models of psychopathology: empirical support, implications, and remaining issues. World Psychiatry. 2021;20(1):57–63. PubMed PMC
Hepworth N, Paxton SJ. Pathways to help‐seeking in bulimia nervosa and binge eating problems: a concept mapping approach. Int J Eat Disord. 2007;40(6):493–504. PubMed
Gulliksen KS, Nordbø RHS, Espeset EMS, Skårderud F, Holte A. The process of help-seeking in anorexia nervosa: patients’ perspective of first contact with health services. Eat Disord. 2015;23(3):206–22. PubMed
Becker AE, Hadley Arrindell A, Perloe A, Fay K, Striegel-Moore RH A qualitative study of perceived social barriers to care for eating disorders: perspectives from ethnically diverse health care consumers. Int J Eat Disord. 2010;43(7):633.. PubMed PMC
Wacker EC. Barriers and facilitators to seeking treatment for subclinical eating disorders: the importance of supportive relationships. J Fam Psychother. 2018;29(4):292–317.
Monteleone AM, Cascino G, Salerno L, Schmidt U, Micali N, Cardi V, et al. A network analysis in adolescent anorexia nervosa exploring the connection between both patient and carer reactions and outcome. Eur Eat Disord Rev. 2023;31:65–75. PubMed PMC
Treasure J, Parker S, Oyeleye O, Harrison A. The value of including families in the treatment of anorexia nervosa. Eur Eat Disord Rev. 2021;29(3):393–401. PubMed PMC
Lane BR, GJM Read, Cook L, Salmon PM. A systems thinking perspective on the barriers to treatment access for people with eating disorders. Int J Eat Disord. 2020;53(2):174–9. PubMed
Huryk KM, Drury CR, Loeb KL. Diseases of affluence? A systematic review of the literature on socioeconomic diversity in eating disorders. Eat Behav. 2021;43:101548. PubMed
Swift JK, Mullins RH, Penix EA, Roth KL, Trusty WT. The importance of listening to patient preferences when making mental health care decisions. World Psychiatry. 2021;20(3):316. PubMed PMC
Griffiths S, Rossell SL, Mitchison D, Murray SB, Mond JM. Pathways into treatment for eating disorders: a quantitative examination of treatment barriers and treatment attitudes. Eat Disord. 2018;26(6):556–74. PubMed
Fusar‐Poli P, Correll CU, Arango C, Berk M, Patel V, Ioannidis JPA. Preventive psychiatry: a blueprint for improving the mental health of young people. World Psychiatry. 2021;20(2):200–21. PubMed PMC
Gumz A, Weigel A, Wegscheider K, Romer G, Löwe B. The psychenet public health intervention for anorexia nervosa: a pre–post-evaluation study in a female patient sample. Prim Health Care Res Dev. 2018;19(1):42–52. PubMed PMC