Functional neurological disorder in Europe: regional differences in education and health policy
Jazyk angličtina Země Velká Británie, Anglie Médium print-electronic
Typ dokumentu časopisecké články
Grantová podpora
CooperatioNeuroscience
Charles University
MHCZ-DRO-VFN64165
General University Hospital in Prague
PubMed
39145716
PubMed Central
PMC11414792
DOI
10.1111/ene.16350
Knihovny.cz E-zdroje
- Klíčová slova
- disability benefits, education curricula, functional neurological disorder, healthcare, patient‐led organization,
- MeSH
- dostupnost zdravotnických služeb MeSH
- lidé MeSH
- nemoci nervového systému terapie MeSH
- neurologie výchova MeSH
- neurologové MeSH
- roztroušená skleróza terapie MeSH
- zdravotní politika * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Evropa MeSH
BACKGROUND: Functional neurological disorder (FND) is a common cause of neurological disability. Despite recent advances in pathophysiological understanding and treatments, application of this knowledge to clinical practice is variable and limited. OBJECTIVE: Our aim was to provide an expert overview of the state of affairs of FND practice across Europe, focusing on education and training, access to specialized care, reimbursement and disability policies, and academic and patient-led representation of people with FND. METHODS: We conducted a survey across Europe, featuring one expert per country. We asked experts to compare training and services for people with FND to those provided to people with multiple sclerosis (MS). RESULTS: Responses from 25 countries revealed that only five included FND as a mandatory part of neurological training, while teaching about MS was uniformly included. FND was part of final neurology examinations in 3/17 countries, unlike MS that was included in all 17. Seventeen countries reported neurologists with an interest in FND but the estimated mean ratio of FND-interested neurologists to MS neurologists was 1:20. FND coding varied, with psychiatric coding for FND impacting treatment access and disability benefits in the majority of countries. Twenty countries reported services refusing to see FND patients. Eight countries reported an FND special interest group or network; 11 reported patient-led organizations. CONCLUSIONS: FND is largely a marginal topic within European neurology training and there is limited access to specialized care and disability benefits for people with FND across Europe. We discuss how this issue can be addressed at an academic, healthcare and patient organization level.
Department of Neurology Avicenne Hospital AP HP Bobigny France
Department of Neurology Clinical Hospital Centre Zagreb Zagreb Croatia
Department of Neurology Geneva University Hospital Geneva Switzerland
Department of Neurology Ghent University Hospital Ghent Belgium
Department of Neurology Kolding Hospital Kolding Denmark
Department of Neurology L Pasteur University Hospital Košice Slovakia
Department of Neurology Medical University of Graz Graz Austria
Department of Neurology Pavol Jozef Šafárik University Košice Slovakia
Department of Neurology St James's Hospital Dublin Ireland
Department of Neurology Ulm University Ulm Germany
Department of Neurology Vrije Universiteit Amsterdam Amsterdam The Netherlands
Department of Neurosciences Biomedicine and Movement Sciences University of Verona Verona Italy
Faculté des Sciences et de Médecine Université de Fribourg Fribourg Switzerland
Faculty of Medicine Brasov Transilvania University of Brașov Brașov Romania
Institute of Psychiatry Psychology and NeuroscienceKing's College London London UK
Movement Disorders Program Neurology Department Hospital Ruber Internacional Madrid Spain
Movement Disorders Unit Neurology Department Hospital Universitario Ramón y Cajal Madrid Spain
Neurology Department Centro Hospitalar Universitario de Sao Joao Porto Portugal
Neurology Department CHU Grenoble Alpes Grenoble France
Parkinson's Disease and Movement Disorders DepartmentHygeia Hospital Athens Greece
Primary Care West Gästrikland Sandviken Sweden
Psychiatric Clinic of the Faculty of Health Sciences Medical University of Warsaw Warsaw Poland
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