Barriers to primary health care: perspectives of marginalized Roma women and healthcare professionals
Status In-Process Language English Country England, Great Britain Media electronic
Document type Journal Article
Grant support
964353
Horizon 2020 Framework Programme
PubMed
41039520
PubMed Central
PMC12492820
DOI
10.1186/s12913-025-13482-2
PII: 10.1186/s12913-025-13482-2
Knihovny.cz E-resources
- Keywords
- Discrimination, Financial vulnerability, Health literacy, Healthcare access, Healthcare workforce, Marginalized Roma communities, Responsiveness of healthcare system, Roma women,
- Publication type
- Journal Article MeSH
BACKGROUND: Marginalized Roma communities (MRCs) in Slovakia experience longstanding exclusion from essential services, including healthcare. Roma women, in particular, face compounded vulnerabilities that contribute to unequal access and poorer health outcomes. Despite increasing attention to these issues, a deeper understanding of the lived experiences that shape healthcare access in MRCs remains necessary. METHODS: A qualitative study was conducted using semi-structured interviews with 13 Roma mothers living in MRCs and 13 professionals working in healthcare, public health, or policy, including six of Roma origin. Data were analyzed using consensual qualitative research and thematic analysis to identify significant access barriers. RESULTS: Roma women face multiple, often interconnected barriers to accessing healthcare, many of which are rooted in longstanding structural inequalities. These include distrust of the health system stemming from prior discrimination, difficulties in understanding health-related information and navigating the system, and financial hardship. On the side of healthcare providers, barriers involve shortages in the healthcare workforce, poor care coordination, and discriminatory attitudes. CONCLUSIONS: Improving access to healthcare for Roma women requires a comprehensive, multi-level strategy. Efforts should focus on building trust, improving communication, addressing financial and systemic obstacles, and investing in culturally sensitive primary care. Health promotion assistants play a crucial role in bridging the gaps between communities and healthcare providers. Culturally sensitive healthcare interventions and inclusive policies are essential to reducing health disparities and promoting equitable access. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-025-13482-2.
See more in PubMed
European Union Agency for Fundamental Rights. Roma in 10 European Countries: main results. 2022. https://fra.europa.eu/sites/default/files/fra_uploads/fra-2022-fundamental-rights-report-2022_en.pdf
Alexiadou EA. Identifying a human rights approach to Roma health vulnerabilities and inequalities in europe: from concept to action. Hum Rights Rev. 2023;24(3):413–31. PubMed DOI PMC
Šprocha B, Education. Economic activity, and health status of individuals in marginalized Roma communities in Slovakia based on the results of the EU-SILC MRC 2020 survey. Slovak Stat Demography. 2024;34(4):3–20.
Filakovska Bobakova D, Dankulincova Veselska Z. Early childhood in marginalized Roma communities: health risks and health outcomes. Int J Public Health. 2024;69(1606784):1–8. PubMed PMC
European Union Agency for Fundamental Rights. Fundamental rights report 2019. 2019. https://fra.europa.eu/sites/default/files/fra_uploads/fra-2019-fundamental-rights-report-2019_en.pdf
Ministry of Education Research Development and Youth of the Slovak Republic. Revision of expenses for groups endangered by poverty or social exclusion: final report. 2020. https://www.minedu.sk/data/att/28f/15944.3bab36.pdf
Šupínová M, Sonkolyová G, Klement C. Reproductive health of Roma women in Slovakia. Cent Eur J Public Health. 2020;28(2):143–8. PubMed DOI
Stojisavljevic S, Grabez M, Stojanovski K. Unmet health needs of Roma women in the two biggest Roma communities in the Republic of srpska, Bosnia and Herzegovina. Front Public Health. 2020;8(30):1–6. PubMed PMC
Rochovská A, Rusnáková J. Poverty, segregation and social exclusion of Roma communities in Slovakia. Bull Geogr Socio-economic Ser. 2018;42(42):195–212.
European Roma Rights Center. ERRC submission to the European Commission on Slovakia. 2013. https://www.errc.org/reports-and-submissions/errc-submission-to-the-european-commission-on-slovakia-april-2013
European Commission: Directorate-General for Health and Consumers. Roma health report: health status of the Roma population, data collection in the Member States of the European Union. 2014. https://data.europa.eu/doi/10.2772/3140 DOI
Muncan B. Eastern European roma: ethnic discrimination in the public healthcare system. J Global Health Rep. 2018;2:e2018025. DOI
Idzerda L, Adams O, Patrick J, Schrecker T, Tugwell P. Access to primary healthcare services for the Roma population in serbia: a secondary data analysis. BMC Int Health Hum Rights. 2011;11(10):1–14. PubMed PMC
Belák A, van Dijk JP, Reijneveld SA. (2024). Social mechanisms behind the poor health of marginalized Roma: novel insights and implications from four ethnographic studies in Slovakia. Soc Sci Med. 2024;360:117322. PubMed
Tomanek P, Matejova A. Family and current Socio-legal measures for its members in the Slovak Republic. In: Stala J, editor. Mocna Rodzina Fundamentemzdrowego Społeczeństwa. Krakow: Uniwersytet Papieski Jana Pawła II. w Krakowie; 2019. pp. 69–89.
Serafinova Z, Gazdikova K, Morzova L, Dzupa P. Oral health status in Romani children in Slovakia. Clin Social Work Health Intervention. 2022;13(5):34–41. DOI
Hellebrandt T. Revízia výdavkov na skupiny ohrozené chudobou alebo sociálnym vylúčením. 2019. https://www.minedu.sk/data/att/14208.pdf
Pantović L. Somebodies or nobody’s patient: the importance of social positioning and informal relations during childbirth in Serbia. Glasnik Etnografskog Instituta SANU. 2021;69(1):205–25. DOI
Garzon N, Ivanco S. New report: Roma women experience discrimination, receive poor reproductive health care in Slovakia. 2021. https://poradna-prava.sk/wp-content/uploads/2021/11/press-release-roma-women-experience-discrimination-receive-poor-reproductive-health-care-in-slovakia.pdf
Bednarik M, Hidas S, Machlica G. Enhancing the social integration of Roma in Slovak Republic. 2019. https://www.mfsr.sk/files/archiv/28/OECD_EnhancingthesocialintegrationofRoma.pdf
Ivanco S, Lorenci J, Spitalsky A. Equality and justice on the sidelines: comparative report on discrimination against Roma and their access to justice in Slovakia and Slovenia. 2022. https://poradna-prava.sk/wp-content/uploads/2022/11/MRGE_PressRep_EN_Nov22_corrected.pdf
Sloboda M, Sičáková-Beblavá E, Šmeringaiová M, bazerová P, Slavíková N. Tematické zisťovanie zamerané na identifikáciu bariér rómskych žien pri poskytovaní zdravotnej starostlivosti. 2023. https://www.romovia.vlada.gov.sk/site/assets/files/1276/bariery_romskych_zien_analyticka_sprava.pdf?csrt=271198499570032226
Renjith V, Yesodharan R, Noronha JA, Ladd E, George A. Qualitative methods in health care research. Int J Prev Med. 2021;12(20):1–7. PubMed PMC
Levesque J, Harris MF, Russell G. (2013). Patient-centred access to health care: conceptualizing access at the interface of health systems and populations. Int J Equity Health. 2013;12(18):1–9. PubMed PMC
Gulliford M, Figueroa-Munoz J, Morgan M, Hughes D, Gibson B, Beec R, Hudson M. What does access to health care mean? J Health Serv Res Policy. 2002;7(3):186–88. PubMed DOI
WHO. Understanding primary health care. 2023. https://www.who.int/europe/news-room/questions-and-answers/item/questions-and-answers-understanding-primary-health-care
The Office of the Plenipotentiary of the Government of the Slovak Republic for Roma Communities. Atlas of the Roma communities. 2019. https://www.romovia.vlada.gov.sk/atlas-romskych-komunit/atlas-romskych-komunit-2019/?csrt=4547345310834871025
Filakovska Bobakova D, Plavnicka J, Urbancikova I, Edelstein M, Jansen D, Dankulincova Veselska Z. Barriers to HPV vaccination in marginalized Roma communities in Slovakia. Front Public Health. 2023;5(11):1239963. PubMed DOI PMC
Hill CE, Knox S, Thompson BJ, Williams EN, Hess SA, Ladany N. Consensual qualitative research: an update. J Couns Psychol. 2005;52(2):196–205. DOI
Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Res Psychol. 2006;3(2):77–101. DOI
Sørensen. K. Health literacy is a human rights concern: a needs assessment and gap analysis of health literacy challenges and human rights. 2024. https://rm.coe.int/expert-report-on-health-literacy-sorensen-2024/1680b2a373
Belak A, Filakovska Bobakova D, Madarasova Geckova A, van Dijk JP, Reijneveld SA. Why don’t health care frontline professionals do more for segregated roma?? Exploring mechanisms supporting unequal care practices. Soc Sci Med. 2020;246:112739. PubMed DOI
Sándor J, Kósa Z, Boruzs K, Boros J, Tokaji I, McKee M, Ádány R. The decade of Roma inclusion: did it make a difference to health and use of health care services? Int J Public Health. 2017;62(7):803–15. PubMed DOI PMC
Vacková J, Maňhalová J, Rolantová L, Urban D. Health literacy in the Roma population. Kontakt. 2020;22(4):243–50. DOI
Varga B, Marton L, Balázs A, Lőrincz A, Kovács T, Sorbán O, Szabó MI. Differences in literacy, education level, and healthcare attendance in two different Roma subgroups from transylvania, Romania. Acta Marisiensis Seria Med. 2023;69(3):195–200. DOI
European Commision. Slovakia: country health profile 2023. 2023. https://eurohealthobservatory.who.int/publications/m/slovakia-country-health-profile-2023
Ministry of Finance of the Slovak Republic, Ministry of Health of the Slovak Republic. Healthcare spending review II: final report. 2019. https://www.mfsr.sk/files/archiv/77/HealthcareSpendingReview2_EN.pdf
Sharma M, Akhter MS, Roy S, Srejon R. Future issues in global health: challenges and conundrums. Int J Environ Res Public Health. 2025;22(3):325. PubMed DOI PMC
Ort-Mertlová S, Jerotijević D. Causes of health disadvantages and consequences of stigmatization in the Roma community in Slovakia. Social Sci Humanit Open. 2024;11:101200.
People in Peril. Sú Rómovia v osadách zdravší než majorita? 2021. https://clovekvohrozeni.sk/su-romovia-v-osadach-zdravsi-nez-majorita/
Office for National Statistics. Gypsies’ and Travellers’ lived experiences, health, England, and Wales: 2022. 2022. www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/healthcaresystem/bulletins/gypsiesandtravellerslivedexperienceshealthenglandandwales/2022
George S, Daniels K, Fioratou E. A qualitative study into the perceived barriers of accessing healthcare among a vulnerable population involved with a community centre in Romania. Int J Equity Health. 2018;17(1):1–13. PubMed DOI PMC
Kósa K, Katona C, Papp M, Fürjes G, Sándor J, Bíró K, Ádány R. Health mediators as members of multidisciplinary group practice: lessons learned from a primary health care model programme in Hungary. BMC Fam Pract. 2020;21(1):1–9. PubMed DOI PMC
Healthy Regions. Annual report 2021. 2021. https://www.zdraveregiony.eu/wp-content/uploads/2018/04/Vyrocna-sprava-2022_online.pdf
Bednarik M, Hidas S, Machlica G. Enhancing the social integration of Roma in Slovak Republic. OECD Economics Department Working Papers. 2019;(1551).
Brandenberger J, et al. A systematic literature review of reported challenges in health care delivery to migrants and refugees in high-income countries: the 3 C model. BMC Public Health. 2019;19:755. PubMed DOI PMC
British Medical Association. Addressing unmet needs in women’s health. 2018. https://www.bma.org.uk/media/2117/bma-womens-global-health-report-aug-2018.pdf
Bártlová S, et al. Health literacy among selected population groups in the South Bohemian region. Prague: Grada; 2018.
Mózes N, Takács J, Ungvari Z, Feith HJ. Screening attendance disparities among Hungarian-speaking Roma and non-Roma women in central and Eastern European countries. Front Public Health. 2023;11:1292598. PubMed DOI PMC
Plaza del Pino FJ, Arrogante O, Gallego-Gómez JI, Simonelli-Muñoz AJ, Castro-Luna G, Jiménez-Rodríguez D. Romani women and health: the need for a cultural Safety-Based approach. Healthcare. 2022;10(2):271. PubMed DOI PMC