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The Czech version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
P. Doležalová, M. Bohm, L. Linková, M. Saifrídová, D. Němcová, T. Dallos, A. Consolaro, F. Bovis, N. Ruperto, . ,
Jazyk angličtina Země Německo
Typ dokumentu časopisecké články, multicentrická studie, validační studie
- MeSH
- dítě MeSH
- hodnocení výsledků péče pacientem * MeSH
- juvenilní artritida diagnóza patofyziologie psychologie terapie MeSH
- kulturní charakteristiky MeSH
- kvalita života MeSH
- lidé MeSH
- mladiství MeSH
- pacienti psychologie MeSH
- posuzování pracovní neschopnosti * MeSH
- prediktivní hodnota testů MeSH
- předškolní dítě MeSH
- překládání MeSH
- prognóza MeSH
- psychometrie MeSH
- reprodukovatelnost výsledků MeSH
- revmatologie metody MeSH
- rodiče psychologie MeSH
- studie případů a kontrol MeSH
- věk při počátku nemoci MeSH
- zdravotní stav MeSH
- Check Tag
- dítě MeSH
- lidé MeSH
- mladiství MeSH
- mužské pohlaví MeSH
- předškolní dítě MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- multicentrická studie MeSH
- validační studie MeSH
- Geografické názvy
- Česká republika MeSH
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Czech language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. The participating centre was asked to collect demographic and clinical data along the JAMAR questionnaire in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 103 JIA patients (5.8% systemic, 35.9% oligoarticular, 37.9% RF-negative polyarthritis, 20.4% other categories) and 100 healthy children, were enrolled. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related problems variable and in the Psychosocial Health of the Paediatric Rheumatology Quality of Life scale. All JAMAR components revealed good psychometric performances. In conclusion, the Czech version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Citace poskytuje Crossref.org
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- $a Doležalová, Pavla $u Department of Paediatrics and Adolescent Medicine, 1st Faculty of Medicine, General University Hospital, Charles University in Prague, Ke Karlovu 2, 121 09, Prague, Czech Republic. dolezalova.pavla@vfn.cz.
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- $a The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Czech language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. The participating centre was asked to collect demographic and clinical data along the JAMAR questionnaire in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 103 JIA patients (5.8% systemic, 35.9% oligoarticular, 37.9% RF-negative polyarthritis, 20.4% other categories) and 100 healthy children, were enrolled. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related problems variable and in the Psychosocial Health of the Paediatric Rheumatology Quality of Life scale. All JAMAR components revealed good psychometric performances. In conclusion, the Czech version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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