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Availability, coverage, and scope of health information systems for kidney care across world countries and regions
EJ. See, AK. Bello, A. Levin, M. Lunney, MA. Osman, F. Ye, GE. Ashuntantang, E. Bellorin-Font, M. Benghanem Gharbi, S. Davison, M. Ghnaimat, P. Harden, H. Htay, V. Jha, K. Kalantar-Zadeh, PG. Kerr, S. Klarenbach, CP. Kovesdy, V. Luyckx, B. Neuen,...
Language English Country Great Britain
Document type Journal Article, Research Support, Non-U.S. Gov't
NLK
Free Medical Journals
from 1996 to 1 year ago
Open Access Digital Library
from 1996-01-01
PubMed
33351951
DOI
10.1093/ndt/gfaa343
Knihovny.cz E-resources
- MeSH
- Renal Insufficiency, Chronic * epidemiology therapy MeSH
- Kidney MeSH
- Humans MeSH
- Cross-Sectional Studies MeSH
- Developing Countries MeSH
- Health Information Systems * MeSH
- Check Tag
- Humans MeSH
- Publication type
- Journal Article MeSH
- Research Support, Non-U.S. Gov't MeSH
BACKGROUND: Health information systems (HIS) are fundamental tools for the surveillance of health services, estimation of disease burden and prioritization of health resources. Several gaps in the availability of HIS for kidney disease were highlighted by the first iteration of the Global Kidney Health Atlas. METHODS: As part of its second iteration, the International Society of Nephrology conducted a cross-sectional global survey between July and October 2018 to explore the coverage and scope of HIS for kidney disease, with a focus on kidney replacement therapy (KRT). RESULTS: Out of a total of 182 invited countries, 154 countries responded to questions on HIS (85% response rate). KRT registries were available in almost all high-income countries, but few low-income countries, while registries for non-dialysis chronic kidney disease (CKD) or acute kidney injury (AKI) were rare. Registries in high-income countries tended to be national, in contrast to registries in low-income countries, which often operated at local or regional levels. Although cause of end-stage kidney disease, modality of KRT and source of kidney transplant donors were frequently reported, few countries collected data on patient-reported outcome measures and only half of low-income countries recorded process-based measures. Almost no countries had programs to detect AKI and practices to identify CKD-targeted individuals with diabetes, hypertension and cardiovascular disease, rather than members of high-risk ethnic groups. CONCLUSIONS: These findings confirm significant heterogeneity in the global availability of HIS for kidney disease and highlight important gaps in their coverage and scope, especially in low-income countries and across the domains of AKI, non-dialysis CKD, patient-reported outcomes, process-based measures and quality indicators for KRT service delivery.
Bhumirajanagarindra Kidney Institute Bangkok Thailand
Centre for Kidney Disease Research University of Queensland Brisbane QLD Australia
Department of Community Health Sciences University of Calgary Calgary AB Canada
Department of Intensive Care Austin Health Melbourne VIC Australia
Department of Medicine Monash University Clayton VIC Australia
Department of Medicine Queen Mary Hospital The University of Hong Kong Hong Kong
Department of Medicine University of Calgary Calgary AB Canada
Department of Medicine University of Tennessee Health Science Center Memphis TN USA
Department of Nephrology General University Hospital Charles University Prague Czechia
Department of Nephrology Kidney Foundation Hospital and Research Institute Dhaka Bangladesh
Department of Renal Medicine Singapore General Hospital Singapore Singapore
Dialysis Unit CASMU IAMPP Montevideo Uruguay
Division of Nephology and Hypertension Department of Medicine St Louis University St Louis MO USA
Division of Nephrology and Hypertension University of California Irvine Medical Center Orange CA USA
Division of Nephrology and Hypertension University of Cape Town Cape Town South Africa
Division of Nephrology Bezmialem Vakif University Istanbul Turkey
Division of Nephrology Department of Medicine University of British Columbia Vancouver BC Canada
Division of Nephrology Department of Medicine University of Toronto Toronto ON Canada
George Institute for Global Health India New Delhi India
Institute of Biomedical Ethics and the History of Medicine University of Zurich Zurich Switzerland
Key Laboratory of Renal Disease Ministry of Health of China Beijing China
Kidney and Hypertension Research Unit University of Cape Town Cape Town South Africa
Monash Medical Centre Department of Nephrology Monash Health Clayton VIC Australia
Nephrology Development Clinical Center Tbilisi State Medical University Tbilisi Georgia
Nephrology Division Department of Internal Medicine The Specialty Hospital Amman Jordan
Nuffield Department of Clinical Medicine University of Oxford Oxford UK
Oxford Kidney Unit Oxford University Hospitals NHS Foundation Trust Oxford UK
Peking Tsinghua Center for Life Sciences Beijing China
Population Health Sciences University of Bristol Bristol UK
Renal Division Department of Medicine Peking University 1st Hospital Beijing China
Renal Division Harvard Medical School Brigham and Women's Hospital Boston MA USA
Salford Royal NHS Foundation Trust Salford UK
School of Medicine University of Melbourne Melbourne VIC Australia
Sorbonne Université Paris France
The George Institute for Global Health Newtown NSW Australia
The George Institute for Global Health University of New South Wales Sydney Sydney NSW Australia
The Richard Bright Renal Unit Southmead Hospital North Bristol NHS Trust Bristol UK
Translational Research Institute Brisbane QLD Australia
UK Renal Registry Learning and Research Building Southmead Hospital Bristol UK
University of Leicester Leicester UK
References provided by Crossref.org
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