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The agenda of the global patient reported outcomes for multiple sclerosis (PROMS) initiative: Progresses and open questions
P. Zaratin, P. Vermersch, MP. Amato, G. Brichetto, T. Coetzee, G. Cutter, G. Edan, G. Giovannoni, E. Gray, HP. Hartung, J. Hobart, A. Helme, R. Hyde, U. Khan, L. Leocani, LG. Mantovani, R. McBurney, X. Montalban, IK. Penner, BMJ. Uitdehaag, P....
Jazyk angličtina Země Nizozemsko
Typ dokumentu časopisecké články
- MeSH
- hodnocení výsledků péče pacientem MeSH
- lidé MeSH
- roztroušená skleróza * terapie MeSH
- zdravotnický personál MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
On 12 September 2019, the global Patient Reported Outcome for Multiple Sclerosis (PROMS) Initiative was launched at the 35th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS). The multi-stakeholder PROMS Initiative is jointly led by the European Charcot Foundation (ECF) and the Multiple Sclerosis International Federation (MSIF), with the Italian Multiple Sclerosis Society (AISM) acting as the lead agency for and on behalf of the global MSIF movement. The initiative has the ambitious mission to (i) maximize the impact of science with and of patient input on the life of people affected by MS, and (ii) to represent a unified view on Patient-Reported Outcomes for MS to people affected by MS, healthcare providers, regulatory agencies and Health Technologies Assessments agencies. Equipped with an innovative participatory governance of an international and interdisciplinary network of different stakeholders, PROMS has the potential to guide future breakthroughs in MS patient-focused research and care. In this paper we present the progresses of the global PROMS Initiative and discuss the open questions that we aim to address.
Accelerated Cure Project Waltham MA United States of America
Biogen International GmbH Switzerland
Brain and Mind Center University of Sydney Australia
Casa di Cura del Policlinico Milan Italy
Department of Life Science University of Siena Siena Italy
Department of NEUROFARBA University of Florence IRCCS Fondazione Don Carlo Gnocchi Florence Italy
Department of Neurology Medical Faculty Heinrich Heine University Dusseldorf Germany
Department of Neurology Medical University of Vienna Austria
Department of Neurology Palacky University Olomouc Czech Republic
Department of Neurology UKD Medical Faculty Heinrich Heine Universität Düsseldorf Germany
Hopital Vall d'Hebron Universitat Autònoma de Barcelona Barcelona Spain
Institute for Healthcare Policy KU Leuven Belgium
IRCCS Multimedica Sesto San Giovanni Italy
Multiple Sclerosis International Federation London UK
Multiple Sclerosis Society London UK
Multiple Sclerosis Society of Canada Toronto Canada
Multiple Sclerosis South Africa Western Cape South African
National Multiple Sclerosis Society New York United States of America
Neurology Department University Hospital of Rennes Rennes France
Plymouth University Peninsula Schools of Medicine and Dentistry Devon UK
Research Centre on Public Health University of Milan Bicocca Milan Italy
Research Department Italian Multiple Sclerosis Foundation Via Operai 40 Genoa Italy
Univ Lille Inserm U1172 LilNCog CHU Lille FHU Precise Lille France
Citace poskytuje Crossref.org
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