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European Competence Network on Mastocytosis (ECNM): 20-Year Jubilee, Updates, and Future Perspectives
P. Valent, K. Hartmann, P. Bonadonna, WR. Sperr, M. Niedoszytko, O. Hermine, HC. Kluin-Nelemans, K. Sotlar, G. Hoermann, B. Nedoszytko, S. Broesby-Olsen, R. Zanotti, M. Lange, M. Doubek, K. Brockow, I. Alvarez-Twose, J. Varkonyi, S. Yavuz, G....
Jazyk angličtina Země Spojené státy americké
Typ dokumentu časopisecké články, přehledy
- MeSH
- lidé MeSH
- mastocytóza * diagnóza terapie MeSH
- mastocyty MeSH
- předpověď MeSH
- systémová mastocytóza * diagnóza MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- přehledy MeSH
In 2002, the European Competence Network on Mastocytosis (ECNM) was launched as a multidisciplinary collaborative initiative to increase the awareness and to improve diagnosis and management of patients with mast cell (MC) disorders. The ECNM consists of a net of specialized centers, expert physicians, and scientists who dedicate their work to MC diseases. One essential aim of the ECNM is to timely distribute all available information about the disease to patients, doctors, and scientists. In the past 20 years, the ECNM has expanded substantially and contributed successfully to the development of new diagnostic concepts, and to the classification, prognostication, and treatments of patients with mastocytosis and MC activation disorders. The ECNM also organized annual meetings and several working conferences, thereby supporting the development of the World Health Organization classification between 2002 and 2022. In addition, the ECNM established a robust and rapidly expanding patient registry and supported the development of new prognostic scoring systems and new treatment approaches. In all projects, ECNM representatives collaborated closely with their U.S. colleagues, various patient organizations, and other scientific networks. Finally, ECNM members have started several collaborations with industrial partners, leading to the preclinical development and clinical testing of KIT-targeting drugs in systemic mastocytosis, and some of these drugs received licensing approval in recent years. All these networking activities and collaborations have strengthened the ECNM and supported our efforts to increase awareness of MC disorders and to improve diagnosis, prognostication, and therapy in patients.
Allergy Unit Verona University Hospital Verona Italy
Department of Allergology Medical University of Gdansk Gdansk Poland
Department of Biomedicine University Hospital Basel and University of Basel Basel Switzerland
Department of Dermatology and Allergy Biederstein Technical University of Munich Munich Germany
Department of Dermatology and Allergy Centre Odense University Hospital Odense Denmark
Department of Dermatology Venereology and Allergology Medical University of Gdansk Gdansk Poland
Department of Hematology and Oncology University Hospital Mannheim Mannheim Germany
Division of Allergy and Clinical Immunology University of Salerno Salerno Italy
Division of Hematology Istanbul Medical School University of Istanbul Istanbul Turkey
Guy's and St Thomas' NHS Foundation Trust Guy's Hospital London UK
Institute of Pathology Ludwig Maximilians University Munich Germany
Institute of Pathology University Hospital Salzburg Paracelsus Medical University Salzburg Austria
Ludwig Boltzmann Institute for Hematology and Oncology Medical University of Vienna Vienna Austria
MLL Munich Leukemia Laboratory Munich Germany
Citace poskytuje Crossref.org
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- $a Valent, Peter $u Department of Internal Medicine I, Division of Hematology and Hemostaseology, Medical University of Vienna, Vienna, Austria; Ludwig Boltzmann Institute for Hematology and Oncology, Medical University of Vienna, Vienna, Austria. Electronic address: peter.valent@meduniwien.ac.at
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- $a In 2002, the European Competence Network on Mastocytosis (ECNM) was launched as a multidisciplinary collaborative initiative to increase the awareness and to improve diagnosis and management of patients with mast cell (MC) disorders. The ECNM consists of a net of specialized centers, expert physicians, and scientists who dedicate their work to MC diseases. One essential aim of the ECNM is to timely distribute all available information about the disease to patients, doctors, and scientists. In the past 20 years, the ECNM has expanded substantially and contributed successfully to the development of new diagnostic concepts, and to the classification, prognostication, and treatments of patients with mastocytosis and MC activation disorders. The ECNM also organized annual meetings and several working conferences, thereby supporting the development of the World Health Organization classification between 2002 and 2022. In addition, the ECNM established a robust and rapidly expanding patient registry and supported the development of new prognostic scoring systems and new treatment approaches. In all projects, ECNM representatives collaborated closely with their U.S. colleagues, various patient organizations, and other scientific networks. Finally, ECNM members have started several collaborations with industrial partners, leading to the preclinical development and clinical testing of KIT-targeting drugs in systemic mastocytosis, and some of these drugs received licensing approval in recent years. All these networking activities and collaborations have strengthened the ECNM and supported our efforts to increase awareness of MC disorders and to improve diagnosis, prognostication, and therapy in patients.
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