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Monitoring of ECFS quality standards for the clinical management of adults with cystic fibrosis
A. Gramegna, S. Aliberti, A. Amorim, F. Blasi, S. Bourke, PR. Burgel, F. Diamantea, I. Durieu, L. Fila, RMG. Moreno, B. Messore, E. Pokojová, G. Taccetti, S. Verhulst, AV. Dugac, S. Wege, A. Duff, KW. Southern, C. Castellani
Jazyk angličtina Země Nizozemsko
Typ dokumentu časopisecké články
- MeSH
- cystická fibróza * terapie MeSH
- delfská metoda MeSH
- dodržování směrnic MeSH
- dospělí MeSH
- lidé MeSH
- management nemoci MeSH
- poradní výbory MeSH
- retrospektivní studie MeSH
- směrnice pro lékařskou praxi jako téma MeSH
- standardní péče MeSH
- Check Tag
- dospělí MeSH
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Evropa MeSH
BACKGROUND: Although cystic fibrosis (CF) standards of care have been produced and regularly updated, they are not specifically targeting at the adult population. The ECFS Standards of Care Project established an international task force of experts to identify quality standards for adults with CF and assess their adherence. METHODS: This study was composed of two phases. In the first one, a task force of international experts derived from published guidelines and graded ten quality standards for adult CF care using a modified Delphi methodology. In the second phase, an international audit was conducted among adult CF centers to retrospectively validate the quality statements and monitor adherence. RESULTS: The task force identified 10 quality standards specific to the care of adults with CF, mainly based on the 2018 ECFS standards of care. 14 adult CF centers participated in the audit, which showed that most quality standards for the management of CF in adults are met across Europe. Heterogeneity in adherence to standards was found across centers according to geographical setting and centers' characteristics. CONCLUSIONS: The identification of quality standards is a valuable resource for the standardization and monitoring of care delivery across centers taking care of adults with CF.
Adult CF Unit Sismanoglio General Hospital Athens Greece
Adult Cystic Fibrosis Center Pulmonology Dept AOU San Luigi Gonzaga Orbassano Turin Italy
Adult Cystic Fibrosis Center Royal Victoria Infirmary Newcastle upon Tyne United Kingdom
Adult Reference CF Center Pulmonology Department Faculty of Medicine University of Porto Portugal
Cystic Fibrosis Center IRCCS Istituto Giannina Gaslini Genoa Italy
Cystic Fibrosis Centre Department of Pneumology University Hospital in Motol Prague Czech Republic
Cystic Fibrosis Centre for Children and Adults University Hospital Centre Zagreb Croatia
Department of Pathophysiology and Transplantation University of Milan Milan 20122 Italy
ERN Lung Cystic Fibrosis Network Frankfurt Germany
Faculty of Medicine Masaryk University Brno Czech Republic
IRCCS Humanitas Research Hospital Respiratory Unit Via Manzoni 56 20089 Rozzano Milan Italy
Leeds Children's Hospital Leeds United Kingdom
School of Medicine University of Zagreb Croatia
Université Paris Cité and Inserm U1016 Institut Cochin Paris France
Women and Children's Health University of Liverpool Liverpool United Kingdom
Citace poskytuje Crossref.org
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- $a Gramegna, Andrea $u Department of Pathophysiology and Transplantation, University of Milan, Milan 20122, Italy; Respiratory Unit and Adult Cystic Fibrosis Center, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan 20122, Italy
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- $a BACKGROUND: Although cystic fibrosis (CF) standards of care have been produced and regularly updated, they are not specifically targeting at the adult population. The ECFS Standards of Care Project established an international task force of experts to identify quality standards for adults with CF and assess their adherence. METHODS: This study was composed of two phases. In the first one, a task force of international experts derived from published guidelines and graded ten quality standards for adult CF care using a modified Delphi methodology. In the second phase, an international audit was conducted among adult CF centers to retrospectively validate the quality statements and monitor adherence. RESULTS: The task force identified 10 quality standards specific to the care of adults with CF, mainly based on the 2018 ECFS standards of care. 14 adult CF centers participated in the audit, which showed that most quality standards for the management of CF in adults are met across Europe. Heterogeneity in adherence to standards was found across centers according to geographical setting and centers' characteristics. CONCLUSIONS: The identification of quality standards is a valuable resource for the standardization and monitoring of care delivery across centers taking care of adults with CF.
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- $a Aliberti, Stefano $u Department of Biomedical Sciences, Humanitas University, Via Rita Levi Montalcini 4, Pieve Emanuele, Milan 20072, Italy; IRCCS Humanitas Research Hospital, Respiratory Unit, Via Manzoni 56, 20089 Rozzano, Milan, Italy. Electronic address: stefano.aliberti@hunimed.eu
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