• Je něco špatně v tomto záznamu ?

Functional neurological disorder in Europe: regional differences in education and health policy

T. Serranová, I. Di Vico, M. Tinazzi, S. Aybek, E. Bilic, S. Binzer, E. Bøen, A. Bruggeman, C. Bratanov, VRA. Cabreira, D. Golder, A. Dunalska, C. Falup-Pecurariu, B. Garcin, J. Gelauff, A. Laffan, S. Podnar, I. Pareés, T. Plender, S. Popkirov,...

. 2024 ; 31 (10) : e16350. [pub] 20240815

Jazyk angličtina Země Anglie, Velká Británie

Typ dokumentu časopisecké články

Perzistentní odkaz   https://www.medvik.cz/link/bmc24018759

Grantová podpora
CooperatioNeuroscience Charles University
MHCZ-DRO-VFN64165 General University Hospital in Prague

BACKGROUND: Functional neurological disorder (FND) is a common cause of neurological disability. Despite recent advances in pathophysiological understanding and treatments, application of this knowledge to clinical practice is variable and limited. OBJECTIVE: Our aim was to provide an expert overview of the state of affairs of FND practice across Europe, focusing on education and training, access to specialized care, reimbursement and disability policies, and academic and patient-led representation of people with FND. METHODS: We conducted a survey across Europe, featuring one expert per country. We asked experts to compare training and services for people with FND to those provided to people with multiple sclerosis (MS). RESULTS: Responses from 25 countries revealed that only five included FND as a mandatory part of neurological training, while teaching about MS was uniformly included. FND was part of final neurology examinations in 3/17 countries, unlike MS that was included in all 17. Seventeen countries reported neurologists with an interest in FND but the estimated mean ratio of FND-interested neurologists to MS neurologists was 1:20. FND coding varied, with psychiatric coding for FND impacting treatment access and disability benefits in the majority of countries. Twenty countries reported services refusing to see FND patients. Eight countries reported an FND special interest group or network; 11 reported patient-led organizations. CONCLUSIONS: FND is largely a marginal topic within European neurology training and there is limited access to specialized care and disability benefits for people with FND across Europe. We discuss how this issue can be addressed at an academic, healthcare and patient organization level.

Department of Clinical Brain Sciences The University of Edinburgh Royal Infirmary of Edinburgh Edinburgh UK

Department of Neurology and Center of Clinical Neuroscience Charles University 1st Faculty of Medicine and General University Hospital Prague Prague Czechia

Department of Neurology and Neurosurgery Institute of Clinical Medicine Faculty of Medicine Vilnius University Vilnius Lithuania

Department of Neurology Avicenne Hospital AP HP Bobigny France

Department of Neurology Clinical Hospital Centre Zagreb Zagreb Croatia

Department of Neurology Geneva University Hospital Geneva Switzerland

Department of Neurology Ghent University Hospital Ghent Belgium

Department of Neurology Kolding Hospital Kolding Denmark

Department of Neurology L Pasteur University Hospital Košice Slovakia

Department of Neurology Medical University of Graz Graz Austria

Department of Neurology Pavol Jozef Šafárik University Košice Slovakia

Department of Neurology St James's Hospital Dublin Ireland

Department of Neurology Ulm University Ulm Germany

Department of Neurology University Hospital Knappschaftskrankenhaus Bochum Ruhr University Bochum Bochum Germany

Department of Neurology Vrije Universiteit Amsterdam Amsterdam The Netherlands

Department of Neurosciences Biomedicine and Movement Sciences University of Verona Verona Italy

Division of Neurology Institute of Clinical Neurophysiology University Medical Centre Ljubljana Ljubljana Slovenia

Faculté des Sciences et de Médecine Université de Fribourg Fribourg Switzerland

Faculty of Medicine Brasov Transilvania University of Brașov Brașov Romania

FND Action Chatham UK

FND Hope UK Banbury UK

Institute of Psychiatry Psychology and NeuroscienceKing's College London London UK

Movement Disorders Program Neurology Department Hospital Ruber Internacional Madrid Spain

Movement Disorders Unit Neurology Department Hospital Universitario Ramón y Cajal Madrid Spain

Neurology Department Centro Hospitalar Universitario de Sao Joao Porto Portugal

Neurology Department CHU Grenoble Alpes Grenoble France

Parkinson's Disease and Movement Disorders DepartmentHygeia Hospital Athens Greece

Primary Care West Gästrikland Sandviken Sweden

Psychiatric Clinic of the Faculty of Health Sciences Medical University of Warsaw Warsaw Poland

Psychosomatic and CL Psychiatry Division of Mental Health and Addiction Oslo University Hospital Oslo Norway

Ukrainian Medical Academy Kyiv Ukraine

Citace poskytuje Crossref.org

000      
00000naa a2200000 a 4500
001      
bmc24018759
003      
CZ-PrNML
005      
20241024111340.0
007      
ta
008      
241015s2024 enk f 000 0|eng||
009      
AR
024    7_
$a 10.1111/ene.16350 $2 doi
035    __
$a (PubMed)39145716
040    __
$a ABA008 $b cze $d ABA008 $e AACR2
041    0_
$a eng
044    __
$a enk
100    1_
$a Serranová, Tereza $u Department of Neurology and Center of Clinical Neuroscience, Charles University, 1st Faculty of Medicine and General University Hospital in Prague, Prague, Czechia $1 https://orcid.org/0000000165253971 $7 xx0128890
245    10
$a Functional neurological disorder in Europe: regional differences in education and health policy / $c T. Serranová, I. Di Vico, M. Tinazzi, S. Aybek, E. Bilic, S. Binzer, E. Bøen, A. Bruggeman, C. Bratanov, VRA. Cabreira, D. Golder, A. Dunalska, C. Falup-Pecurariu, B. Garcin, J. Gelauff, A. Laffan, S. Podnar, I. Pareés, T. Plender, S. Popkirov, V. Romanenko, P. Schwingenschuh, Y. Seliverstov, C. Sjöström, M. Škorvánek, M. Stamelou, D. Zailskas, MJ. Edwards, J. Stone
520    9_
$a BACKGROUND: Functional neurological disorder (FND) is a common cause of neurological disability. Despite recent advances in pathophysiological understanding and treatments, application of this knowledge to clinical practice is variable and limited. OBJECTIVE: Our aim was to provide an expert overview of the state of affairs of FND practice across Europe, focusing on education and training, access to specialized care, reimbursement and disability policies, and academic and patient-led representation of people with FND. METHODS: We conducted a survey across Europe, featuring one expert per country. We asked experts to compare training and services for people with FND to those provided to people with multiple sclerosis (MS). RESULTS: Responses from 25 countries revealed that only five included FND as a mandatory part of neurological training, while teaching about MS was uniformly included. FND was part of final neurology examinations in 3/17 countries, unlike MS that was included in all 17. Seventeen countries reported neurologists with an interest in FND but the estimated mean ratio of FND-interested neurologists to MS neurologists was 1:20. FND coding varied, with psychiatric coding for FND impacting treatment access and disability benefits in the majority of countries. Twenty countries reported services refusing to see FND patients. Eight countries reported an FND special interest group or network; 11 reported patient-led organizations. CONCLUSIONS: FND is largely a marginal topic within European neurology training and there is limited access to specialized care and disability benefits for people with FND across Europe. We discuss how this issue can be addressed at an academic, healthcare and patient organization level.
650    _2
$a lidé $7 D006801
650    12
$a zdravotní politika $7 D006291
650    _2
$a nemoci nervového systému $x terapie $7 D009422
650    _2
$a neurologie $x výchova $7 D009462
650    _2
$a neurologové $7 D000072141
650    _2
$a roztroušená skleróza $x terapie $7 D009103
650    _2
$a dostupnost zdravotnických služeb $7 D006297
651    _2
$a Evropa $7 D005060
655    _2
$a časopisecké články $7 D016428
700    1_
$a Di Vico, Ilaria $u Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy $1 https://orcid.org/0000000171268686
700    1_
$a Tinazzi, Michele $u Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
700    1_
$a Aybek, Selma $u Faculté des Sciences et de Médecine, Université de Fribourg, Fribourg, Switzerland
700    1_
$a Bilic, Ervina $u Department of Neurology, Clinical Hospital Centre Zagreb, Zagreb, Croatia
700    1_
$a Binzer, Stefanie $u Department of Neurology, Kolding Hospital, Kolding, Denmark
700    1_
$a Bøen, Erlend $u Psychosomatic and CL Psychiatry, Division of Mental Health and Addiction, Oslo University Hospital, Oslo, Norway
700    1_
$a Bruggeman, Arnout $u Department of Neurology, Ghent University Hospital, Ghent, Belgium $1 https://orcid.org/0000000301619705
700    1_
$a Bratanov, Christo $u Neurology Department, CHU Grenoble Alpes, Grenoble, France $u Department of Neurology, Geneva University Hospital, Geneva, Switzerland
700    1_
$a Cabreira, Veronica Raquel Alheia $u Neurology Department, Centro Hospitalar Universitario de Sao Joao, Porto, Portugal $u Department of Clinical Brain Sciences, The University of Edinburgh, Royal Infirmary of Edinburgh, Edinburgh, UK $1 https://orcid.org/0000000199457681
700    1_
$a Golder, Dawn $u FND Hope UK, Banbury, UK
700    1_
$a Dunalska, Anna $u Psychiatric Clinic of the Faculty of Health Sciences, Medical University of Warsaw, Warsaw, Poland
700    1_
$a Falup-Pecurariu, Cristian $u Faculty of Medicine Brasov, Transilvania University of Brașov, Brașov, Romania
700    1_
$a Garcin, Beatrice $u Department of Neurology, Avicenne Hospital, AP-HP, Bobigny, France $1 https://orcid.org/0000000191099904
700    1_
$a Gelauff, Jeannette $u Department of Neurology, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands
700    1_
$a Laffan, Aoife $u Department of Neurology, St. James's Hospital, Dublin, Ireland
700    1_
$a Podnar, Simon $u Division of Neurology, Institute of Clinical Neurophysiology, University Medical Centre Ljubljana, Ljubljana, Slovenia $1 https://orcid.org/0000000325410172
700    1_
$a Pareés, Isabel $u Movement Disorders Program, Neurology Department Hospital Ruber Internacional, Madrid, Spain $u Movement Disorders Unit, Neurology Department, Hospital Universitario Ramón y Cajal, Madrid, Spain
700    1_
$a Plender, Tom $u FND Action, Chatham, UK
700    1_
$a Popkirov, Stoyan $u Department of Neurology, University Hospital Knappschaftskrankenhaus Bochum, Ruhr University Bochum, Bochum, Germany $1 https://orcid.org/0000000161680036
700    1_
$a Romanenko, Volodymyr $u Ukrainian Medical Academy, Kyiv, Ukraine $1 https://orcid.org/0000000200149660
700    1_
$a Schwingenschuh, Petra $u Department of Neurology, Medical University of Graz, Graz, Austria $1 https://orcid.org/0000000232946824
700    1_
$a Seliverstov, Yury $u Department of Neurology, Ulm University, Ulm, Germany
700    1_
$a Sjöström, Carl $u Primary Care West Gästrikland, Sandviken, Sweden
700    1_
$a Škorvánek, Matej $u Department of Neurology, Pavol Jozef Šafárik University, Košice, Slovakia $u Department of Neurology, L. Pasteur University Hospital, Košice, Slovakia
700    1_
$a Stamelou, Maria $u Parkinson's Disease and Movement Disorders DepartmentHygeia Hospital, Athens, Greece
700    1_
$a Zailskas, Donatas $u Department of Neurology and Neurosurgery, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania
700    1_
$a Edwards, Mark J $u Institute of Psychiatry, Psychology and NeuroscienceKing's College London, London, UK
700    1_
$a Stone, Jon $u Department of Clinical Brain Sciences, The University of Edinburgh, Royal Infirmary of Edinburgh, Edinburgh, UK $1 https://orcid.org/0000000198298092
773    0_
$w MED00001629 $t European journal of neurology $x 1468-1331 $g Roč. 31, č. 10 (2024), s. e16350
856    41
$u https://pubmed.ncbi.nlm.nih.gov/39145716 $y Pubmed
910    __
$a ABA008 $b sig $c sign $y - $z 0
990    __
$a 20241015 $b ABA008
991    __
$a 20241024111334 $b ABA008
999    __
$a ok $b bmc $g 2201555 $s 1230732
BAS    __
$a 3
BAS    __
$a PreBMC-MEDLINE
BMC    __
$a 2024 $b 31 $c 10 $d e16350 $e 20240815 $i 1468-1331 $m European journal of neurology $n Eur J Neurol $x MED00001629
GRA    __
$a CooperatioNeuroscience $p Charles University
GRA    __
$a MHCZ-DRO-VFN64165 $p General University Hospital in Prague
LZP    __
$a Pubmed-20241015

Najít záznam

Citační ukazatele

Nahrávání dat ...

Možnosti archivace

Nahrávání dat ...