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ERS statement on transition of care in childhood interstitial lung diseases
P. Pohunek, E. Manali, S. Vijverberg, J. Carlens, F. Chua, R. Epaud, C. Gilbert, M. Griese, B. Karadag, E. Kerem, V. Koucký, N. Nathan, S. Papiris, S. Terheggen-Lagro, L. Plch, A. Torrent Vernetta, A. Bush
Jazyk angličtina Země Anglie, Velká Británie
Typ dokumentu časopisecké články, přehledy
- MeSH
- dítě MeSH
- dospělí MeSH
- intersticiální plicní nemoci * terapie diagnóza MeSH
- lidé MeSH
- mladiství MeSH
- pneumologie normy MeSH
- přechod k lékaři pro dospělé * normy organizace a řízení MeSH
- prognóza MeSH
- společnosti lékařské MeSH
- Check Tag
- dítě MeSH
- dospělí MeSH
- lidé MeSH
- mladiství MeSH
- Publikační typ
- časopisecké články MeSH
- přehledy MeSH
- Geografické názvy
- Evropa MeSH
Interstitial lung diseases (ILD) are a heterogeneous group of rare diffuse diseases affecting the lung parenchyma in children and adults. Childhood interstitial lung diseases (chILD) are often diagnosed at very young age, affect the developing lung, and can have different presentations and prognosis compared to adult forms of these diseases. In addition, chILD in many cases may apparently remit, and have a better response to therapy and better prognosis than adult ILD. Many affected children will reach adulthood with minimal activity or clinical remission of the disease. They need continuing care and follow-up from childhood to adulthood if the disease persists and progresses over time, but also if they are asymptomatic and in full remission. Therefore, for every chILD patient an active transition process from paediatric to adult care should be guaranteed. This European Respiratory Society (ERS) statement provides a review of the literature and current practice concerning transition of care in chILD. It draws on work in existing transition care programmes in other chronic respiratory diseases, disease-overarching transition-of-care programmes, evidence on the impact of these programmes on clinical outcomes, current evidence regarding long-term remission of chILD as well as the lack of harmonisation between the current adult ILD and chILD classifications impacting on transition of care. While the transition system is well established in several chronic diseases, such as cystic fibrosis or diabetes mellitus, we could not find sufficient published evidence on transition systems in chILD. This statement summarises current knowledge, but cannot yet provide evidence-based recommendations for clinical practice.
Centre des Maladies Respiratoires Rares CRCM Créteil France
Centre Hospitalier Intercommunal de Créteil Service de Pédiatrie Générale Créteil France
Department of Educational Sciences Faculty of Arts Masaryk University Brno Czech Republic
Department of Pediatrics and CF Center Hadassah Hebrew University Medical Center Jerusalem Israel
Fédérations Hospitalo Universitaires Créteil France
Institute of Population Health The University of Liverpool Liverpool UK
Interstitial Lung Disease Unit Royal Brompton and Harefield Hospitals London UK
Marmara University School of Medicine Division of Pediatric Pulmonology Istanbul Turkey
Pulmonary Medicine Amsterdam UMC University of Amsterdam Amsterdam The Netherlands
University Campus Library Masaryk University Brno Czech Republic
Citace poskytuje Crossref.org
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- $a Interstitial lung diseases (ILD) are a heterogeneous group of rare diffuse diseases affecting the lung parenchyma in children and adults. Childhood interstitial lung diseases (chILD) are often diagnosed at very young age, affect the developing lung, and can have different presentations and prognosis compared to adult forms of these diseases. In addition, chILD in many cases may apparently remit, and have a better response to therapy and better prognosis than adult ILD. Many affected children will reach adulthood with minimal activity or clinical remission of the disease. They need continuing care and follow-up from childhood to adulthood if the disease persists and progresses over time, but also if they are asymptomatic and in full remission. Therefore, for every chILD patient an active transition process from paediatric to adult care should be guaranteed. This European Respiratory Society (ERS) statement provides a review of the literature and current practice concerning transition of care in chILD. It draws on work in existing transition care programmes in other chronic respiratory diseases, disease-overarching transition-of-care programmes, evidence on the impact of these programmes on clinical outcomes, current evidence regarding long-term remission of chILD as well as the lack of harmonisation between the current adult ILD and chILD classifications impacting on transition of care. While the transition system is well established in several chronic diseases, such as cystic fibrosis or diabetes mellitus, we could not find sufficient published evidence on transition systems in chILD. This statement summarises current knowledge, but cannot yet provide evidence-based recommendations for clinical practice.
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