Experience of stigma in private life of relatives of people diagnosed with schizophrenia in the Republic of Belarus
Jazyk angličtina Země Německo Médium print-electronic
Typ dokumentu časopisecké články, práce podpořená grantem
PubMed
26873615
DOI
10.1007/s00127-016-1190-y
PII: 10.1007/s00127-016-1190-y
Knihovny.cz E-zdroje
- Klíčová slova
- Courtesy stigma *, Family studies *, Qualitative approach *,
- MeSH
- adaptace psychologická MeSH
- dospělí MeSH
- kvalitativní výzkum MeSH
- lidé středního věku MeSH
- lidé MeSH
- osobní újma zaviněná nemocí MeSH
- osoby pečující o pacienty psychologie MeSH
- předsudek MeSH
- rozvojové země * MeSH
- schizofrenie (psychologie) * MeSH
- schizofrenie diagnóza terapie MeSH
- sociální izolace MeSH
- společenské stigma * MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- Geografické názvy
- Běloruská republika MeSH
PURPOSE: Family stigma constitutes a major problem in schizophrenia worldwide. Data on first-hand experience of stigma in families is necessary for planning and implementing interventions to reduce its burden. The aim of the study was to investigate the experience of stigma among relatives of persons with schizophrenia in Belarus. METHODS: Qualitative research methods, such as the thematic analysis of in-depth semi-structured interviews with 20 relatives of people diagnosed with schizophrenia, were used. Experience of discrimination, strategies used to cope with it, and requests for interventions were investigated. RESULTS: The most salient themes in experience of stigma in the private domain of life elicited in the narratives included anticipated stigma and dissolution of families. The experience of stigma was associated with burdensome feelings of guilt, tiredness and loneliness, together with fear and anxiety due to uncertainty in the future and sorrow because of frustrated hopes in past. Analysis of the strategies used to overcome the difficulties revealed concealment and "life behind closed doors", avoidance of the rest of the family, taking full responsibility and sacrificing one's personal life. CONCLUSION: To reduce the burden of stigma in the private life of the family members of people living with schizophrenia in Belarus, important steps should be taken to promote the empowerment of families including: reforming mental health services; provision of better access to information; family support services, community care; development of family organisations; assistance in communication, re-socialisation and independent living for people diagnosed with schizophrenia.
Association for the Improvement of Mental Health Programmes Geneva Switzerland
Children's Clinical University Hospital Riga Latvia
Department of Medical Psychology and Psychotherapy Grodno State Medical University Grodno Belarus
Faculty of Medicine Clinic of Psychiatry Vilnius University Vilnius Lithuania
Institute of Psychiatry Psychology and Neuroscience King's College London London UK
Zobrazit více v PubMed
Br J Psychiatry. 1996 May;168(5):580-7 PubMed
Soc Psychiatry Psychiatr Epidemiol. 2001 Jun;36(6):299-303 PubMed
Hosp Community Psychiatry. 1994 Oct;45(10):987-92 PubMed
Eur Psychiatry. 2014 Aug;29(6):381-9 PubMed
Can J Psychiatry. 2012 Aug;57(8):464-9 PubMed
Br J Psychiatry. 1997 Jul;171:26-30 PubMed
Soc Psychiatry Psychiatr Epidemiol. 2007 Jan;42(1):14-23 PubMed
Med Educ. 2006 Apr;40(4):314-21 PubMed
Can J Psychiatry. 2004 Sep;49(9):625-9 PubMed
PLoS One. 2012;7(6):e38490 PubMed
Psychiatr Serv. 2011 Dec;62(12):1456-62 PubMed
Br J Psychiatry. 2004 Apr;184:321-6 PubMed
Psychiatr Serv. 2001 Dec;52(12):1633-8 PubMed
Br J Psychiatry. 2006 Feb;188:173-9 PubMed
Clin Pract Epidemiol Ment Health. 2007 Oct 29;3:23 PubMed
Int J Ment Health Nurs. 2014 Aug;23(4):355-63 PubMed
Psychiatr Serv. 2015 May 1;66(5):543-6 PubMed
Cochrane Database Syst Rev. 2010 Dec 08;(12):CD000088 PubMed
Schizophr Res. 2008 Jan;98(1-3):184-93 PubMed
Lancet. 2009 Jan 31;373(9661):408-15 PubMed
World J Psychiatry. 2015 Mar 22;5(1):118-25 PubMed
Br J Psychiatry. 2002 Dec;181:494-8 PubMed
Br J Psychiatry. 1999 Feb;174:154-8 PubMed
Int J Soc Psychiatry. 2004 Jun;50(2):153-62 PubMed
BMC Health Serv Res. 2014 Jan 27;14:42 PubMed
Schizophr Bull. 1998;24(1):115-26 PubMed
Acad Psychiatry. 2008 Mar-Apr;32(2):87-91 PubMed
Psychol Med. 1990 Nov;20(4):857-65 PubMed
Br J Psychiatry Suppl. 2013 Apr;55:s45-8 PubMed
Int J Ment Health Syst. 2008 Apr 13;2(1):3 PubMed
J Nerv Ment Dis. 2014 Oct;202(10):710-7 PubMed
Br J Psychiatry. 2010 Apr;196(4):259-65 PubMed
Br J Psychiatry. 1992 Feb;160:230-41; discussion 241-3 PubMed
Soc Sci Med. 2014 Dec;123:149-59 PubMed
Soc Sci Med. 2014 Feb;103:84-93 PubMed
Schizophr Bull. 1989;15(1):131-9 PubMed
Soc Psychiatry Psychiatr Epidemiol. 2003 Oct;38(10):593-602 PubMed
