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The European Renal Association - European Dialysis and Transplant Association (ERA-EDTA) Registry Annual Report 2016: a summary

. 2019 Oct ; 12 (5) : 702-720. [epub] 20190226

Status PubMed-not-MEDLINE Language English Country Great Britain, England Media electronic-ecollection

Document type Journal Article

BACKGROUND: This article summarizes the ERA-EDTA Registry's 2016 Annual Report, by describing the epidemiology of renal replacement therapy (RRT) for end-stage renal disease (ESRD) in 2016 within 36 countries. METHODS: In 2017 and 2018, the ERA-EDTA Registry received data on patients undergoing RRT for ESRD in 2016 from 52 national or regional renal registries. In all, 32 registries provided individual patient data and 20 provided aggregated data. The incidence and prevalence of RRT and the survival probabilities of these patients were determined. RESULTS: In 2016, the incidence of RRT for ESRD was 121 per million population (pmp), ranging from 29 pmp in Ukraine to 251 pmp in Greece. Almost two-thirds of patients were men, over half were aged ≥65 years and almost a quarter had diabetes mellitus as their primary renal diagnosis. Treatment modality at the start of RRT was haemodialysis for 84% of patients. On 31 December 2016, the prevalence of RRT was 823 pmp, ranging from 188 pmp in Ukraine to 1906 pmp in Portugal. In 2016, the transplant rate was 32 pmp, varying from 3 pmp in Ukraine to 94 pmp in the Spanish region of Catalonia. For patients commencing RRT during 2007-11, the 5-year unadjusted patient survival probability on all RRT modalities combined was 50.5%. For 2016, the incidence and prevalence of RRT were higher among men (187 and 1381 pmp) than women (101 and 827 pmp), and men had a higher rate of kidney transplantation (59 pmp) compared with women (33 pmp). For patients starting dialysis and for patients receiving a kidney transplant during 2007-11, the adjusted patient survival probabilities appeared to be higher for women than for men.

Austrian Dialysis and Transplant Registry Rohr Austria

Belarusian Medical Academy of Postgraduate Education Minsk Belarus

Catalan Renal Registry Committee Hospital Arnau de Vilanova Lleida Spain

Complejo Hospitalario de Navarra Pamplona Navarra Spain

Departamento de Sanidad de Aragón Dirección General de Asistencia Sanitaria Zaragoza Spain

Department of Internal Medicine Riga Stradins University Riga Latvia

Department of Internal Medicine Tartu University Tartu Estonia

Department of Medicine Prague General University Hospital Prague Strahov Czech Republic

Department of Medicine Zealand University Hospital Roskilde Denmark

Department of Nephrology Cerrahpasa Medical Faculty Istanbul University Cerrahpaşa Istanbul Turkey

Department of Nephrology Dialysis and Hypertension Dutch speaking Belgian Renal Registry Sint Niklaas Belgium

Department of Nephrology Gdańsk Medical University Gdansk Poland

Department of Transplantation Medicine Oslo University Hospital Rikshospitalet Oslo Norway

Dialysis Clinic Alexandrovska University Hospital Sofia Medical University Sofia Bulgaria

Division of Nephrology Ambroise Paré University Hospital Boulogne Billancourt France

Division of Nephrology Landspitali The National University Hospital of Iceland Reykjavik Iceland

Dutch Renal Registry Renine Nefrovisie Foundation Utrecht The Netherlands

ERA EDTA Registry Department of Medical Informatics Amsterdam UMC University of Amsterdam Amsterdam Public Health Research Institute Amsterdam The Netherlands

ESPN ERA EDTA Registry Department of Medical Informatics Amsterdam UMC University of Amsterdam Amsterdam Public Health Research Institute Amsterdam The Netherlands

Faculty of Medicine School of Health Sciences University of Iceland Reykjavik Iceland

Finnish Registry for Kidney Diseases Helsinki Finland

Georgian Renal Registry Dialysis Nephrology and Transplantation Union of Georgia Tbilisi State Medical University Tbilisi Georgia

Information System of the Autonomic Transplant Coordination of Andalucia Seville Andalucia Spain

Institut National de la Santé et de la Recherche Médicale University of Paris Ouest Versailles St Quentin en Yveline Villejuif France

Institute of Nephrology Stadtspital Waid Zurich Zurich Switzerland

Israel Renal Registry ISNH Hemodialysis Unit Meir Medical Center Kfar Saba Israel

Lithuanian Nephrology Dialysis and Transplantation Association Kaunas Lithuania

Medical Faculty of Skopje University Clinic of Nephrology Skopje Macedonia

Nephrology Abdominal Center University of Helsinki Helsinki University Hospital Helsinki Finland

Nephrology Department American Medical Center Nicosia Cyprus

Nephrology Department Apollonion Private Hospital Nicosia Cyprus

Nephrology Department Centro Hospitalar e Universitario de Coimbra Coimbra Portugal

Nephrology Department Medical Academy Lithuanian University of Health Sciences Kaunas Lithuania

Oficina Regional de Coordinación de Trasplantes de la Comunidad de Madrid Madrid Spain

Population Health Sciences University of Bristol Bristol UK

Public Health Directorate Oviedo Asturias Spain

Registro de Enfermos Renales de la Región de Murcia Servicio de Epidemiología Consejería de Sanidad IMIB Arrixaca Murcia Spain

REIN Registry Agence de la biomédecine Saint Denis La Plaine France

Scottish Renal Registry Glasgow Renal and Transplant Unit Queen Elizabeth University Hospital Glasgow UK

Service of Nephrology UHC Mother Teresa Tirana Albania

Servicio de Nefrología Hospital Universitario Valdecilla Santander Spain

State financed health institution City Clinical Hospital 52 of Moscow City Health Department Moscow Russia

UK Renal Registry Southmead Hospital Bristol UK

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ERA-EDTA Registry. ERA-EDTA Registry Annual Report 2016. Amsterdam: Academic Medical Center, Department of Medical Informatics, 2018

Kramer A, Pippias M, Stel VS. et al. Renal replacement therapy in Europe: a summary of the 2013 ERA-EDTA Registry Annual Report with a focus on diabetes mellitus. Clin Kidney J 2016; 9: 457–469 PubMed PMC

Pippias M, Kramer A, Noordzij M. et al. The European Renal Association-European Dialysis and Transplant Association Registry Annual Report 2014: a summary. Clin Kidney J 2017; 10: 154–169 PubMed PMC

Kramer A, Pippias M, Noordzij M. et al. The European Renal Association-European Dialysis and Transplant Association Registry Annual Report 2015: a summary. Clin Kidney J 2018; 11: 108–122 PubMed PMC

Eurostat. http://ec.europa.eu/eurostat/data/database (21 February 2017, date last accessed)

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The ERA-EDTA Registry Annual Report 2017: a summary

. 2020 Aug ; 13 (4) : 693-709. [epub] 20200622

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