Survey of legislative frameworks and national recommendations governing paediatric maintenance haemodialysis in Europe
Jazyk angličtina Země Německo Médium print-electronic
Typ dokumentu časopisecké články
PubMed
39847057
PubMed Central
PMC12031754
DOI
10.1007/s00467-025-06667-8
PII: 10.1007/s00467-025-06667-8
Knihovny.cz E-zdroje
- Klíčová slova
- Child, Legal status, Maintenance haemodialysis, Recommendations, Survey,
- MeSH
- chronické selhání ledvin * terapie MeSH
- dialýza ledvin * normy MeSH
- dítě MeSH
- kojenec MeSH
- lidé MeSH
- mladiství MeSH
- nefrologie zákonodárství a právo MeSH
- novorozenec MeSH
- pediatrie * zákonodárství a právo normy MeSH
- předškolní dítě MeSH
- průzkumy a dotazníky MeSH
- směrnice pro lékařskou praxi jako téma MeSH
- Check Tag
- dítě MeSH
- kojenec MeSH
- lidé MeSH
- mladiství MeSH
- novorozenec MeSH
- předškolní dítě MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Evropa MeSH
BACKGROUND: The application of international recommendations for paediatric maintenance haemodialysis (HD) could be strengthened by national laws or written recommendations. Our aim was therefore to describe the national rules governing paediatric maintenance HD in European countries. METHODS: A national representative, approved by the president of each paediatric nephrology society, was contacted in all 42 European countries to complete two online questionnaires. RESULTS: Answers were received from 36 countries. The population served by HD centres varies from 83,000 to 1,197,000 residents below 18 years of age and the estimated mean number of children on HD per centre from 0.2 to 13.5. The lowest age at which a child can be dialysed in an adult centre varies from 0 to 18 years. Laws or written national recommendations specifying: this age, the need for a paediatrician as part of medical team in mixed adult-paediatric centres, the minimum number of doctors per centre and the number of patients per nurse or nurse's aide required during sessions exist in only 25, 22, 22, 44 and 8% of the countries, respectively. Similarly, dietitians, social workers, school service, psychologists and play specialists/youth workers are required by law or written national recommendations in 36, 28, 36, 31 and 14% of countries, respectively. CONCLUSION: Laws or written national recommendations for paediatric maintenance HD are rare in European countries and very heterogeneous when they exist. This calls for discussion among paediatric and adult nephrologists and health authorities on the organisation of safe and effective paediatric HD practices.
Center for Pediatric and Adolescent Medicine University Hospital Heidelberg Heidelberg Germany
Centro Materno Infantil do Norte Centro Hospitalar Universitario de Santo António Porto Portugal
Department of Nephrology Dialysis and Transplantation University Children's Hospital Belgrade Serbia
Department of Nephrology P and A Kyriakou Children's Hospital Athens Greece
Department of Pediatric and Adolescent Medicine Medical University Vienna Vienna Austria
Department of Pediatric Nephrology Bristol Children's Hospital Bristol UK
Department of Pediatric Nephrology Ghent University Hospital Ghent Belgium
Department of Pediatric Nephrology Hospital Universitari La Fe Valencia Spain
Department of Pediatric Nephrology Mother Teresa Hospital Tirana Tirana Albania
Department of Pediatric Tallinn Children's Hospital Tallinn Estonia
Department of Pediatrics 2 University of Medicine and Pharmacy Iuliu Hatieganu Cluj Napoca Romania
Department of Pediatrics Archbishop Makarios 3 Hospital Nicosia Cyprus
Department of Pediatrics Mater Dei Hospital Malta Msida Malta
Department of Pediatrics Pediatric Nephrology Inselspital University of Berne Berne Switzerland
Department of Pediatrics Skane University Hospital Lund University Lund Sweden
Institute for Children's Diseases Clinical Center of Montenegro Prodgorica Montenegro
KfH Pediatric Kidney Center and Department of Pediatrics Philipps University Marburg Germany
Medical Faculty Skopje University Children's Hospital Skopje Macedonia
Pediatric Centre MTA Centre of Excellence Semmelweis University Budapest Hungary
Pediatric Clinic Clinical Centre University of Sarajevo Sarajevo Bosnia and Herzegovina
Pediatric Nephrology Oslo University Hospital Rikshospitalet Oslo Norway
UCL Great Ormond Street Hospital and Institute of Child Health London UK
University of Zagreb School of Medicine University Hospital Center Zagreb Zagreb Croatia
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