OBJECTIVE: Face transplantation is a groundbreaking and complex surgical intervention offering profound physical and psychological benefits to patients with severe facial disfigurements. This report provides an update on the long-term psychosocial outcome of eight face transplant recipients. METHOD: All transplant recipients were initially transplanted at Brigham and Women ́s Hospital (Boston, USA) between 2011 and 2020 and seen as outpatient patients at Yale New Haven Hospital (New Haven, USA). A mixed-methods approach was used to assess the psychological and social well-being of these patients. The Short-Form 12, Brief-COPE, EQ-VAS and CES-D were administered between October 2022 and October 2023. RESULTS: Older age of face transplant recipients was significantly and positively associated with better mental health and increased use of both emotional and instrumental support (Brief-COPE). The initial enhancement in patients' self-reported quality of life, as assessed by the EQVAS, declined on the EQ-VAS score at the last follow-up. Similarly, an increase in depression score was observed (CES-D score) up through the last follow-up assessment. Both of the latter results, however, did not reach statistical significance. CONCLUSIONS: These results underscore the importance of ongoing psychological support throughout the long-term journey of recovery for face transplant recipients. These findings emphasize the need for a comprehensive, patient-centered approach that also addresses the complex psychological dimensions and contributes to our understanding of the mental health dynamics involved in face transplantation, stressing the need for guidelines and continued research in this evolving field.
- MeSH
- deprese psychologie MeSH
- dospělí MeSH
- kvalita života * psychologie MeSH
- lidé středního věku MeSH
- lidé MeSH
- příjemce transplantátu psychologie MeSH
- senioři MeSH
- sociální opora MeSH
- transplantace obličeje * psychologie MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
1. vydání 236 stran : ilustrace ; 21 cm
Publikace se zaměřuje na psychologii a podporu rodin s dětmi, kteří procházejí paliativní péčí. Určeno odborné i široké veřejnosti.
- MeSH
- adaptace psychologická MeSH
- dítě MeSH
- paliativní péče * MeSH
- psychická odolnost MeSH
- psychický stres MeSH
- rodiče MeSH
- rodinné vztahy MeSH
- sociální opora MeSH
- sourozenci MeSH
- umírající MeSH
- Check Tag
- dítě MeSH
- Publikační typ
- monografie MeSH
- populární práce MeSH
- Konspekt
- Psychologie
- NLK Obory
- psychologie, klinická psychologie
- sociologie
- MeSH
- emigranti a imigranti MeSH
- etnické a rasové minority MeSH
- lidé MeSH
- ozbrojené konflikty MeSH
- psychosociální podpůrné systémy MeSH
- sociální integrace MeSH
- sociální práce * metody trendy MeSH
- uprchlíci * MeSH
- veřejná politika MeSH
- ženy MeSH
- Check Tag
- lidé MeSH
- Geografické názvy
- Česká republika MeSH
- Ukrajina MeSH
Prehabilitation aims to improve patients' physical condition before a stressful event, such as surgery, and enhance recovery. Despite its potential benefits, many emerging prehabilitation programs face challenges in enrolling or retaining patients. In our prehabilitation study PHOCUS, which aims to prepare ovarian cancer patients for surgery, we have also encountered lower acceptance and retention rates. Particularly the most vulnerable patients, who are old and frail, and may benefit the most from the prehabilitation, decline participation due to the complexity of the proposed program. In our review we discussed obstacles and barriers that prevent patients' participation based on both literature and our experience. Among the main reasons are patient's low motivation, high intensity of the program and a lack of social support. To overcome these challenges, we suggest increasing the program's flexibility, adapting the program according to individual patient's needs and enhancing patients' education about the benefits of prehabilitation.
- MeSH
- fyzioterapie v předoperační přípravě * psychologie MeSH
- lidé MeSH
- motivace MeSH
- nádory vaječníků chirurgie MeSH
- nádory ženských pohlavních orgánů * rehabilitace chirurgie MeSH
- pacientův souhlas se zdravotní péčí psychologie MeSH
- předoperační péče metody MeSH
- sociální opora MeSH
- vzdělávání pacientů jako téma metody MeSH
- Check Tag
- lidé MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- přehledy MeSH
PROBLEM: Up to 75 % of at-risk perinatal women do not receive treatment in Czechia. BACKGROUND: Pregnant women with mental health difficulties are more likely to undergo less controversial nonpharmaceutical treatment during pregnancy, but structural and psychological barriers interfere with their capacity to seek professional help. AIM: We tested the effectiveness of the telephone-based peer support intervention Mom Supports Mom (MSM) in Czech pregnant women at risk of mental disorder. METHODS: The Edinburgh Postnatal Depression Scale (EPDS) was used to assess risk in women (EPDS ≥ 10). Women at risk were randomized into two groups; the intervention group received the MSM, while the control group received the care as usual, which did not contain any psychological support intervention. One month after completing the EPDS, the women's mental statuses were again measured and compared, this time with data before and after the intervention, using the Perinatal Anxiety Screening Scale (PASS) to measure anxiety, the EPDS to measure depression, the Prenatal Psychosocial Profile (PPP) to measure stress, and the Prenatal Attachment Inventory - Revised (PAI-R) to measure attachment. The trial was registered under the name Pregnancy without psychosocial stress (ClinicalTrials.gov ID NCT04853693). FINDINGS: A total of 167 women were included in the study and randomized into two groups. Depressive symptoms did not decrease (Cohen ́s d; 95 % CI = 0.48; 0.17-0.79; p = .002), but levels of anxiety (Cohen ́s d; 95 % CI = 0.44; 0.13-0.75; p = .005) and psychosocial stress (Cohen ́s d; 95 % CI = 0.55; 0.20-0.82; p = .002) were reduced in women in the intervention group compared with women in the control. In addition, prenatal attachment increased among intervened women (Cohen ́s d; 95 % CI = 0.48; 0.17-0.79; p = .002). DISCUSSION: The telephone-based peer support intervention MSM is effective in reducing stress and anxiety and increasing prenatal attachment but does not reduce depression among high-risk women.
- MeSH
- dospělí MeSH
- lidé MeSH
- matky psychologie MeSH
- prenatální péče metody MeSH
- psychiatrické posuzovací škály MeSH
- sociální opora * MeSH
- těhotenství MeSH
- vyrovnaná skupina * MeSH
- Check Tag
- dospělí MeSH
- lidé MeSH
- těhotenství MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- randomizované kontrolované studie MeSH
- Geografické názvy
- Česká republika MeSH
Objectives: The main objective was to determine the prevalence of depression and anxiety in older adults living in the Moravian-Silesian region. Methods: Empirical data was collected using a set of questionnaires and a personal data form. These tools were the Geriatric Scale of Depression, the Inventory of Geriatric Anxiety, the OPQoL-brief questionnaire, the Rosenberger Self-Esteem Scale, and the Social Support Questionnaire. A total of 935 older adults participated in the research. Results: Depression symptoms were found in 17.2% of older adults and anxiety symptoms in 22.8%. A correlation was shown between a higher prevalence of depression and anxiety and between the number of diseases and low social support. A higher prevalence of depression was also associated with older age (r = 0.162, p = 0.039). Older adults with depression and anxiety also showed a lower quality of life (r = -0.529, p < 0.001; r = -0.362, p < 0.001), lower self-assessment (r = -0.464, p < 0.001; r = -0.429, p < 0.001), and little social support (r = -0.260, p < 0.001; r = -0.211, p < 0.001). Conclusion: Depression and anxiety in older people is underdiagnosed and treated in primary care settings, although it significantly affects morbidity and quality of life in affected persons.
- MeSH
- deprese * diagnóza epidemiologie MeSH
- duševní zdraví MeSH
- lidé středního věku MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- senioři MeSH
- sociální opora MeSH
- úzkost diagnóza epidemiologie psychologie MeSH
- Check Tag
- lidé středního věku MeSH
- senioři MeSH
- Publikační typ
- práce podpořená grantem MeSH
Aim: The study aims to determine the level of family burden and psychological symptoms in mothers who have children with Cerebral Palsy (CP) in Turkey. Methods: The descriptive study was completed with 200 mothers of children with CP. Results: Depression was found in mothers (1.11 ± 0.79) and the Family Burden Assessment Scale (FBAS) mean score was also high (143.71 ± 22.68). A statistically significant difference was found between mothers who received support to care for their children and their level of depression (p = 0.003). A positive and significant relationship was also found between emotional burden and psychiatric symptoms, such as anxiety, depression, negative self-perception, somatization, and hostility (r = 0.458, p = 0.001; r = 0.552, p = 0.001; r = 0.494, p = 0.001; r = 0.376, p = 0.001; r = 0.404, p = 0.001), respectively. A weak and positive relationship was determined between time requirement and psychiatric symptoms, such as anxiety, depression, and negative self-perception (r = 0.166, p = 0.019; r = 0.259, p = 0.001; r = 0.223, p = 0.001, respectively). Conclusion: The main factor affecting depression in caregivers was lack of support. As the mothers' emotional burden increases, their psychiatric symptom scores also increase. In our study, mothers' anxiety, depression, and negative self-perception scores increase as their time requirements increase. Mothers should be supported with certain interventions, such as education and instruction, to meet the necessities while caring for their children. Policymakers should support mothers with low-income levels to ensure that the required services reach their recipients. Psychological support and counseling services can be provided to the children and mothers following the diagnosis of CP.
Aim: The number of older adults with chronic diseases is growing. When caring for and accompanying their family members, the quality of life (QoL) of elderly family caregivers is highly affected. The aim is to find the relationship between family burden, family environment, and QoL among caregivers of older adults with chronic diseases. Methods: The study involved 409 caregivers in Samarinda (East Kalimantan), Makassar, and Gowa (South Sulawesi), Indonesia. It analyzed family burden, family environment, and QoL using descriptive, Spearman, Kruskal-Wallis, Mann-Whitney, and hierarchy regression analysis using SPSS version 21. Results: Family burden was negatively associated with QoL physical domain (r = -0.05, p = 0.26), psychological domain (r = 0.05, p = 0.31), and social domain (r = -0.02, p = 0.55), Family burden was positively associated with QoL environmental domain (r = -0.09, p = 0.05). Family environment was positively associated with QoL physical domain (r = -0.24, p = 0.00), psychological domain (r = 0.39, p = 0.00), social domain (r = 0.30, p = 0.00), and environmental domain (r = 0.41, p = 0.00). Hierarchy regression analysis shows that family environment has a tremendous positive correlation on QoL physical domain (β = 0.21, p = 0.00), psychological domain (β = 0.31, p = 0.00), social domain (β = 0.23, p = 0.00), and environmental domain (β = 0.33, p = 0.00). Conclusion: Family burden and family environment are crucial factors in the QoL of caregivers of older adults with chronic diseases. Family and public health nurses should develop interventions to relieve the burden and enhance family environments, ultimately improving caregiver's QoL.
BACKGROUND: Delivering serious news is usually challenging for healthcare professionals and the pandemic of COVID-19 and related restrictions brought additional challenges in this process. AIMS: To explore the experience of bereaved relatives with receiving serious news from healthcare professionals during the pandemic COVID-19. DESIGN: A qualitative study using thematic analysis and a codebook approach of data collected in semi-structured interviews with bereaved relatives. SETTING/PARTICIPANTS: Data were collected from July to August 2022 in person/via phone with bereaved relatives who lost their relatives during the pandemic (from March 2020 to March 2022). Participants were recruited using a convenience sample and snowball method through social media and through one university hospital palliative care unit that invited bereaved relatives of deceased patients treated at the unit to participate in this study. RESULTS: A total of 22 participants, consisting of 4 men and 18 women, were interviewed for this study. Most of the participants were sons or daughters of individuals who had died (5 grandchildren, 14 sons/daughters, 2 spouses, 1 great-niece). Six themes were identified: Burden caused by visit ban, Fear of COVID-19, Inappropriate behaviour and communication of healthcare professionals, High need for emotional support, Need for detailed and honest communication, Tendency to make excuses for mistakes and lapses by healthcare professionals. CONCLUSIONS: Delivering serious news during a pandemic was negatively influenced by a lack of contact with patients and a lack of support and empathetic communication with staff. Overcoming these circumstances can be achieved by frequent communication using various communication tools (such as videoconferences or phone calls), and maintaining empathy and honesty in the communication process.
- MeSH
- COVID-19 * psychologie epidemiologie MeSH
- dospělí MeSH
- komunikace MeSH
- kvalitativní výzkum * MeSH
- lidé středního věku MeSH
- lidé MeSH
- pandemie * MeSH
- rodina * psychologie MeSH
- rozhovory jako téma metody MeSH
- SARS-CoV-2 MeSH
- senioři MeSH
- sociální opora MeSH
- ztráta blízké osoby * MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
Transdisciplinární přístup napříč různými odbornými disciplínami umožňuje lépe porozumět komplexním potřebám rodin dětí s postižením a přináší jim mnoho benefitů. Jako přínosná se jeví spolupráce pediatrů se sociální službou rané péče. Článek stručně představuje sociální službu rané péče, zaměřuje se benefity spolupráce pediatrie a rané péče, zmiňuje rovněž příklad dobré praxe.
A transdisciplinary approach across various professional disciplines enables a better understanding of the complex needs of families of children with special needs and brings them many benefits. Cooperation between pediatricians and early childhood intervention appears to be beneficial. The article briefly introduces the early childhood intervention social service and it focuses on the benefits of cooperation between pediatrics and early childhood intervention, and also mentions an example of good practice.
- MeSH
- časná lékařská intervence metody MeSH
- lidé MeSH
- pediatrie metody MeSH
- podpora rodiny metody MeSH
- postižené děti * MeSH
- raná péče * metody MeSH
- sociální opora metody MeSH
- sociální práce metody MeSH
- týmová péče o pacienty klasifikace MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- přehledy MeSH
