OBJECTIVES: Dignity of patients with early-stage dementia (PwESD) is a core value of person-centered care. To evaluate the effectiveness of the intervention programs targeted at this population, a reliable tool that would measure dignity in PwESD is needed. Based on a qualitative analysis of how PwESD perceive and experience dignity, this study aims to determine the adequacy of the Czech version of the Patient Dignity Inventory (PDI-CZ) for this patient population. METHOD: The sample from two outpatient clinics in Czechia included home-dwelling individuals aged 60 years or older with mild dementia. In the first interview (T1), there were 21 respondents; 10 of whom participated in the second interview (T2) that was conducted after 12 months. The qualitative material was analyzed using a deductive approach based on the PDI-CZ domains. RESULTS: Thematic analysis shows that the PwESD thematized all domains of the PDI-CZ in their interviews and their views of dignity were stable over time. Some experiences were not considered in the PDI-CZ (such as lowered support of the society, lowered ability to advocate for oneself, or feeling of not suitable living conditions). CONCLUSION: When developing a revised version of the tool, items that reflect missing views of dignity should be included.
- MeSH
- demence * psychologie MeSH
- důstojnost lidského života * MeSH
- kvalitativní výzkum MeSH
- lidé středního věku MeSH
- lidé MeSH
- longitudinální studie MeSH
- samostatný způsob života * MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- uznání * MeSH
- Check Tag
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Česká republika MeSH
Soubor a metodika: Primárním cílem studie je zjistit hodnoty související s pocitem ztráty důstojnosti pomocí dotazníku PDI-CZ u nemocných s revmatologickým onemocněním. Studijní soubor tvořilo 170 pacientů s revmatologickým onemocněním, kteří byli hospitalizováni ve vybrané fakultní nemocnici v České republice. Výsledky: Většinu respondentů tvořily ženy (n = 128; 75,3 %) ve věku do 64 let (n = 102; 60,0 %). Respondenti měli nejčastěji diagnostikovanou revmatoidní artritidu (n = 81; 47,6 %). Průměrné souhrnné skóre nástroje PDI-CZ bylo 45,00 (SD = 15,496). Statisticky významné korelace byly zjištěny mezi průměrným souhrnným skóre nástroje PDI-CZ a psychologickými funkcemi (r = –0,308), aktivitami denního života (r = –0,458) a hodnocením bolesti (r = 0,307). Diskuze: Revmatologickým pacientům často onemocnění zasahuje do jejich identity. Onemocnění ovlivňuje jejich vnější obraz těla a pacienti mohou pociťovat silné obavy o budoucnost. Pokud chceme objektivně zhodnotit kvalitu života u revmatologického pacienta, musíme zároveň hodnotit i vlivy vnímání jeho osobní důstojnosti. Závěr: PDI v každodenních situacích může lékařům a sestrám nabídnout nové možnosti jak lépe porozumět a prozkoumat problémy a obavy pacientů s chronickým onemocněním.
Patients: The primary aim of the study is to determine the values related to the sense of loss of dignity using the PDI-CZ questionnaire in patients with rheumatological diseases. The study population consisted of 170 patients with rheumatological disease who were hospitalized in a selected teaching hospital in the Czech Republic. Results: Statistically significant correlations were found between the mean PDI-CZ tool summary score and psychological functions (r = –0.308), activities of daily living (r = –0.458), and pain ratings (r = 0.307). Discussion: Rheumatology patients often find their disease interferes with their identity. The disease affects their external body image and patients may feel strong anxiety about the future. Thus, if we want to objectively assess the quality of life of a rheumatology patient, we must also assess the effects of the patient’s perception of personal dignity. Conclusion. The PDI in everyday situations may offer new opportunities for physicians and nurses to better understand and explore the problems and concerns of patients with chronic illness.
První vydání 494 stran, xvi stran obrazových příloh : ilustrace (některé barevné), faksimile ; 23 cm
Publikace se zaměřuje na téma porodu v současném Česku a na preference žen. Obsahuje i příběhy žen. Určeno široké veřejnosti.
- MeSH
- dějiny 21. století MeSH
- matky MeSH
- pacientova volba MeSH
- porod * MeSH
- porodnictví MeSH
- postnatální péče MeSH
- uznání MeSH
- zdraví matek MeSH
- Check Tag
- dějiny 21. století MeSH
- Publikační typ
- osobní vyprávění MeSH
- Geografické názvy
- Česká republika MeSH
- Konspekt
- Gynekologie. Porodnictví
- NLK Obory
- gynekologie a porodnictví
OBJECTIVE: To ascertain and explore the views of women and their partners, giving birth in the Czech Republic, of the level of respectful or disrespectful care provided during pregnancy and early labour. DESIGN: Ethical approval was granted for a descriptive, online anonymous survey of 65 questions, with quantitative and qualitative responses. SETTING: The Czech Republic.The survey was completed by 8,767 women and 69 partners in 2018. MEASUREMENTS AND FINDINGS: Descriptive statistics and thematic analysis were used to present results. The majority of women were aged 26-35 years. Most had birthed in one of 93 hospitals, with 1.5% home births. Almost 40% never had an abdominal examination.in pregnancy. Quantitative data analysis revealed that less than half were given information on place of birth, or how to keep labour normal or non-interventionist. Almost 60% did not get information on positions for birth. Most (68%) commenced labour naturally, 25% had labour induced, 40% of them before term, and 7% had an elective caesarean section; 55% stated they had not been given any choice in the decision. Over half of those who had a membrane sweep said permission had not been sought. Half (54%) only had 'checking' visits from the midwife in labour. KEY CONCLUSIONS: Findings reveal a lack of information-giving, discussion and shared decision-making from healthcare professionals during pregnancy and early labour. Some practices were non-evidenced-based, and interventions were sometimes made without consent. IMPLICATIONS FOR PRACTICE: The examples of disrespectful care described in this study caused women distress during childbirth, which may result in an increased fear of childbirth or an increase in free-birthing.
- MeSH
- dospělí MeSH
- lidé MeSH
- mladý dospělý MeSH
- porodní děj psychologie MeSH
- postoj zdravotnického personálu MeSH
- průzkumy a dotazníky MeSH
- těhotenství MeSH
- těhotné ženy psychologie MeSH
- uznání * MeSH
- vedení porodu psychologie MeSH
- vztahy mezi zdravotnickým pracovníkem a pacientem MeSH
- Check Tag
- dospělí MeSH
- lidé MeSH
- mladý dospělý MeSH
- těhotenství MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Česká republika MeSH
BACKGROUND: A psychosocial problem faced by people with early-stage dementia (PwESD) is the perception of threats to personal dignity. Insights into its dynamics are important for understanding how it changes as dementia advances and to develop suitable interventions. However, longitudinal studies on this change in PwESD are lacking. AIMS: To determine how perceptions of dignity and selected clinical and social factors change over 1 year in home-dwelling PwESD and the predictors associated with changes in perceptions of dignity over 1 year. RESEARCH DESIGN AND METHODS: A longitudinal study was conducted. The sample included 258 home-dwelling Czech PwESD. Data were collected using the Patient Dignity Inventory (PDI-CZ), Mini-Mental State Examination, Bristol Activities of Daily Living Scale, Geriatric Depression Scale and items related to social involvement. Questionnaires were completed by the PwESD at baseline and after 1 year. ETHICAL CONSIDERATIONS: The study was approved by the ethics committee and informed consent was provided by the participants. RESULTS: People with Early-Stage Dementia rated the threat to dignity as mild and the ratings did not change significantly after 1 year. Cognitive function, self-sufficiency, vision, and hearing worsened, and more PwESD lived with others rather than with a partner after 1 year. Worsened depression was the only predictor of change in perceived personal dignity after 1 year, both overall and in each of the PDI-CZ domains. Predictors of self-sufficiency and pain affected only some PDI-CZ domains. CONCLUSIONS: Perceptions of threat to dignity were mild in PwESD after 1 year, although worsened clinical factors represented a potential threat to dignity. Our findings lead us to hypothesise that perceived threats to personal dignity are not directly influenced by health condition, but rather by the social context.
- MeSH
- demence * psychologie MeSH
- důstojnost lidského života * MeSH
- lidé MeSH
- longitudinální studie MeSH
- průzkumy a dotazníky MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- uznání MeSH
- Check Tag
- lidé MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- Geografické názvy
- Česká republika MeSH
Background: Given the ageing of the population, it is important to examine the perception of dignity and the factors that may influence it among older adults.Aim: To determine how the perception of dignity and the factors that influence it differ in hospitalized older adult men and women.Methods: A quantitative cross-sectional study was used with a battery of the following questionnaires in their Czech versions: Patient Dignity Questionnaire (PDI-CZ), Geriatric Depression Scale, Attitudes to Ageing Questionnaire, Barthel's Index and Mini-Mental State Examination.Results and discussion: 294 hospitalized older adults participated in the study. In the overall assessment of dignity, men and women did not differ. Differences were confirmed in two PDI-CZ items which were more often perceived as a problem by men, namely: Feeling that I do not have control over my life (p = 0.019) and Feeling that I am not being treated with respect and understanding by others (p = 0.048). It was also shown that the men with higher depression (ß = 2.337, p < 0.0001), a more negative attitude to ageing (ß = -0.481, p = 0.002) and those who did not live alone (ß = 8.379, p = 0.008) had a worse perception of dignity. In women, a lower perception of dignity was associated only with higher depression (ß = 1.99, p < 0.0001) and lower age (ß = -0.311, p = 0.012).Conclusion: The results showed that the only common factor influencing the perception of dignity in both men and women was the level of depression.
- MeSH
- deprese MeSH
- genderová identita * MeSH
- hospitalizace MeSH
- lidé MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- stárnutí * psychologie MeSH
- uznání MeSH
- Check Tag
- lidé MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Geografické názvy
- Česká republika MeSH
BACKGROUND: Dignity is a multidimensional construct that includes perception, knowledge, and emotions related to competence or respect. Attitudes to aging are a comprehensive personal view of the experience of aging over the course of life, which can be influenced by various factors, such as the levels of health and self-sufficiency and social, psychological, or demographic factors. AIM: The purpose of this study was to explore the attitudes to aging of home-dwelling and inpatient older adults, and whether dignity and other selected factors belong among the predictors influencing attitudes to aging in these two different groups of older adults. RESEARCH DESIGN: Cross-sectional study using a set of questionnaires: Patient Dignity Inventory, Attitudes to Aging Questionnaire, and Barthel Index. Pearson and Spearman correlation analyses and multivariable linear regression were used for statistical processing. PARTICIPANTS AND RESEARCH CONTEXT: 233 inpatients and 237 home-dwelling older adults participated in the research in two regions of the Czech Republic. ETHICAL CONSIDERATIONS: Institutional Review Board approval was received from the authors' university. FINDINGS: The inpatients had more negative attitudes to aging (M = 74.9±10.9; P <0.0001). The predictors of their attitudes to aging were gender and dignity. Women (β = -2.969, P = 0.045) and inpatients with poor dignity ratings (β = -0.332, P <0.0001) had more negative attitudes to aging. The predictors for home-dwelling older adults were education, living arrangement, and dignity. More negative attitudes to aging were found in older adults with lower levels of education (β = 2.716, P = 0.007) who lived alone (β = 2.163, P = 0.046) and rated their dignity as low (β = -0.325, P <0.0001). DISCUSSION AND CONCLUSIONS: The results of this study add to the understanding that a sense of dignity is an important predictor of attitudes to aging for both home-dwelling older adults and inpatients.
- MeSH
- lidé MeSH
- postoj MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- senioři MeSH
- stárnutí * psychologie MeSH
- uznání * MeSH
- Check Tag
- lidé MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
1. vydání 109 stran : ilustrace ; 21 cm
Publikace se zaměřuje na respektující péči během porodu. Určeno odborné veřejnosti.
- MeSH
- matky MeSH
- peripartální období MeSH
- porod MeSH
- porodnické ošetřovatelství MeSH
- uznání MeSH
- vedení porodu MeSH
- zapojení pacienta MeSH
- Publikační typ
- monografie MeSH
- Konspekt
- Gynekologie. Porodnictví
- NLK Obory
- gynekologie a porodnictví
- ošetřovatelství
1. elektronické vydání 1 online zdroj (112 stran)
Monografie přináší jedinečný a komplexní pohled na problematiku respektu a úcty v porodnictví z hlediska vědecky ověřených poznatků, které tvoří jádro péče o ženu. Respektující péče o rodičku přináší mnoho benefitů po emoční, fyzické, ale i duševní stránce.
- Klíčová slova
- Gynekologie a porodnictví,
- MeSH
- matky MeSH
- peripartální období MeSH
- porod MeSH
- porodnické ošetřovatelství MeSH
- uznání MeSH
- vedení porodu MeSH
- zapojení pacienta MeSH
- NLK Obory
- gynekologie a porodnictví
- ošetřovatelství
BACKGROUND: Dementia is a serious problem in old age, that impacts an individual's ability to function and may threaten personal dignity. Given the variable features of the illness and the diversity of life experiences, many factors may contribute to the perception of dignity by men and women with dementia. The purpose of the study was to explore the factors that contribute to dignity and its domains in men and women with dementia. METHODS: This cross-sectional study involved 316 community-dwelling patients with early-stage dementia (aged ≥ 60) (PwD). We assessed the participants' sociodemographic and social involvement characteristics, health-related variables (pain, depression, physical performance, visual and hearing impairments), attitude to aging, and self-sufficiency in the activities of daily living (ADL). These factors were investigated as independent variables for the perception of dignity and of its domains in men and women. RESULTS: Multivariate regression analysis showed that PwD experienced minor dignity problems in the early stages of dementia. In both men and women higher rates of depression, negative attitudes to aging, and pain were associated with reductions in the perception of dignity. In men, but not in women visual impairment had a negative effect on overall dignity, and on the associated domains of 'Loss of Autonomy' and 'Loss of Confidence'. In women, lowered self-sufficiency in ADL contributed to reduced self-perception of dignity and in the associated domains of 'Loss of Purpose of Life', 'Loss of Autonomy', and 'Loss of Confidence'. Sociodemographic and social involvement characteristics, hearing impairment, and physical performance did not influence the participants' self-perception of dignity. CONCLUSION: The results suggested that several common factors (depression, attitudes to aging, and pain) contribute to the perception of dignity in both men and women. Other factors, visual impairments in men, and self-sufficiency in ADL in women, appear to be more gender specific. These differences might relate to their specific gender roles and experiences. The self-perception of dignity in PwD can be helped by supporting the individual, to the extent that their illness allows, in maintaining activities that are important to their gender roles, and that preserve their gender identity. TRIAL REGISTRATION: NCT04443621.
- MeSH
- bolest MeSH
- činnosti denního života MeSH
- demence * diagnóza MeSH
- genderová identita MeSH
- lidé MeSH
- percepce MeSH
- průřezové studie MeSH
- senioři MeSH
- uznání * MeSH
- Check Tag
- lidé MeSH
- mužské pohlaví MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH