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Autor
Di Giulio, Paola 1 Gonella, Silvia 1 Harrison Dening, Karen 1 Holmerova, Iva 1 In der Schmitten, Jürgen 1 Korfage, Ida J 1 Larkin, Philip 1 Martins Pereira, Sandra 1 Mimica, Ninoslav 1 Nakanishi, Miharu 1 Parker, Deborah 1 Rietjens, Judith A C 1 Sudore, Rebecca L 1 Van den Block, Lieve 1 van der Steen, Jenny T 1
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CEGE Research Center in Management an... 1 Department of Design Organisation and... 1 Department of Primary and Community C... 1 Department of Psychiatric Nursing Toh... 1 Department of Public Health Erasmus M... 1 Department of Public Health Sciences ... 1 Department of Public Health and Prima... 1 Direction of Health Professions City ... 1 Division of Geriatrics Department of ... 1 Faculty of Health and Life Sciences D... 1 Faculty of Humanities Centre of Exper... 1 IMPACCT School of Nursing and Midwife... 1 Institute for General Practice Family... 1 Palliative and Supportive Care Servic... 1 Research and Publications Dementia UK... 1 San Francisco Veterans Affairs Medica... 1 University Psychiatric Hospital Vrapč... 1 VUB UGent End of Life Care Research G... 1
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Autor
Di Giulio, Paola 1 Gonella, Silvia 1 Harrison Dening, Karen 1 Holmerova, Iva 1 In der Schmitten, Jürgen 1 Korfage, Ida J 1 Larkin, Philip 1 Martins Pereira, Sandra 1 Mimica, Ninoslav 1 Nakanishi, Miharu 1 Parker, Deborah 1 Rietjens, Judith A C 1 Sudore, Rebecca L 1 Van den Block, Lieve 1 van der Steen, Jenny T 1
- Organizace
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Pracoviště
CEGE Research Center in Management an... 1 Department of Design Organisation and... 1 Department of Primary and Community C... 1 Department of Psychiatric Nursing Toh... 1 Department of Public Health Erasmus M... 1 Department of Public Health Sciences ... 1 Department of Public Health and Prima... 1 Direction of Health Professions City ... 1 Division of Geriatrics Department of ... 1 Faculty of Health and Life Sciences D... 1 Faculty of Humanities Centre of Exper... 1 IMPACCT School of Nursing and Midwife... 1 Institute for General Practice Family... 1 Palliative and Supportive Care Servic... 1 Research and Publications Dementia UK... 1 San Francisco Veterans Affairs Medica... 1 University Psychiatric Hospital Vrapč... 1 VUB UGent End of Life Care Research G... 1
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PubMed
37985444
DOI
10.1002/alz.13526
Knihovny.cz E-zdroje
INTRODUCTION: Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention. METHODS: Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online surveys by 107 experts from 33 countries, September 2021 to June 2022; (C) approval by the EAPC board. RESULTS: ACP in dementia was defined as a communication process adapted to the person's capacity, which includes, and is continued with, family if available. We identified pragmatic boundaries regarding participation and time (i.e., current or end-of-life care). Three interrelated issues that deserve particular attention were capacity, family, and engagement and communication. DISCUSSION: A communication and relationship-centered definitional framework of ACP in dementia evolved through international consensus supporting inclusiveness of persons with dementia and their family. HIGHLIGHTS: This article offers a consensus definitional framework of advance care planning in dementia. The definition covers all stages of capacity and includes family caregivers. Particularly important are (1) capacity, (2) family, (3) engagement, and communication. Fluctuating capacity was visualized in relation to roles and engaging stakeholders.
- MeSH
- delfská metoda MeSH
- demence * terapie MeSH
- konsensus MeSH
- lidé MeSH
- péče o umírající * MeSH
- předběžné plánování péče * MeSH
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- lidé MeSH
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- časopisecké články MeSH
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