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Consensus-based recommendations for the management of juvenile dermatomyositis
FB. Enders, B. Bader-Meunier, E. Baildam, T. Constantin, P. Dolezalova, BM. Feldman, P. Lahdenne, B. Magnusson, K. Nistala, S. Ozen, C. Pilkington, A. Ravelli, R. Russo, Y. Uziel, M. van Brussel, J. van der Net, S. Vastert, LR. Wedderburn, N....
Jazyk angličtina Země Anglie, Velká Británie
Typ dokumentu konsensus - konference, časopisecké články, přehledy
NLK
ProQuest Central
od 1939-01-01 do Před 6 měsíci
Health & Medicine (ProQuest)
od 1939-01-01 do Před 6 měsíci
Family Health Database (ProQuest)
od 1939-01-01 do Před 6 měsíci
- MeSH
- cyklosporin terapeutické užití MeSH
- dermatomyozitida diagnóza terapie MeSH
- glukokortikoidy terapeutické užití MeSH
- imunosupresiva terapeutické užití MeSH
- kyselina mykofenolová terapeutické užití MeSH
- lidé MeSH
- medicína založená na důkazech MeSH
- methotrexát terapeutické užití MeSH
- prednisolon terapeutické užití MeSH
- přípravky chránící proti slunci terapeutické užití MeSH
- rituximab terapeutické užití MeSH
- směrnice pro lékařskou praxi jako téma * MeSH
- společnosti lékařské MeSH
- terapie cvičením * MeSH
- týmová péče o pacienty organizace a řízení MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- konsensus - konference MeSH
- přehledy MeSH
- Geografické názvy
- Evropa MeSH
BACKGROUND: In 2012, a European initiative called Single Hub and Access point for pediatric Rheumatology in Europe (SHARE) was launched to optimise and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases. Juvenile dermatomyositis (JDM) is a rare disease within the group of paediatric rheumatic diseases (PRDs) and can lead to significant morbidity. Evidence-based guidelines are sparse and management is mostly based on physicians' experience. Consequently, treatment regimens differ throughout Europe. OBJECTIVES: To provide recommendations for diagnosis and treatment of JDM. METHODS: Recommendations were developed by an evidence-informed consensus process using the European League Against Rheumatism standard operating procedures. A committee was constituted, consisting of 19 experienced paediatric rheumatologists and 2 experts in paediatric exercise physiology and physical therapy, mainly from Europe. Recommendations derived from a validated systematic literature review were evaluated by an online survey and subsequently discussed at two consensus meetings using nominal group technique. Recommendations were accepted if >80% agreement was reached. RESULTS: In total, 7 overarching principles, 33 recommendations on diagnosis and 19 recommendations on therapy were accepted with >80% agreement among experts. Topics covered include assessment of skin, muscle and major organ involvement and suggested treatment pathways. CONCLUSIONS: The SHARE initiative aims to identify best practices for treatment of patients suffering from PRD. Within this remit, recommendations for the diagnosis and treatment of JDM have been formulated by an evidence-informed consensus process to produce a standard of care for patients with JDM throughout Europe.
2nd Department of Pediatrics Semmelweis Hospital Budapest Hungary
Alder Hey Children's NHS Foundation Trust Liverpool UK
Centre for Adolescent Rheumatology Institute of Child Health University College London London UK
Department of Paediatrics Hacettepe University Faculty of Medicine Ankara Turkey
Division of Rheumatology The Hospital for Sick Children University of Toronto Toronto Ontario Canada
Service of Immunology and Rheumatology Hospital de Pediatría Garrahan Buenos Aires Argentina
Università degli Studi di Genova and Istituto Giannina Gaslini Genoa Italy
Citace poskytuje Crossref.org
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- $a Enders, Felicitas Bellutti $u Department of Pediatric Immunology, Wilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands. Division of Allergology, Immunology and Rheumatology, Department of Pediatrics, University Hospital, Lausanne, Switzerland.
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