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PULSE survey: Population Survey on Knowledge, Gaps and Perception of Heart Rhythm disorders-an initiative of the Scientific Initiatives Committee of the European Heart Rhythm Association
MA. Gunawardene, H. Pürerfellner, JL. Merino, D. Linz, A. Sultan, D. Scherr, JC. Deharo, P. Wohlmuth, J. Feldhege, FM. Costa, S. Ribeiro, E. Charitakis, A. Verstrael, M. Anselmino, G. Szeplaki, S. Simovic, T. Jadczyk, R. Adelino, I. Katsoularis,...
Language English Country England, Great Britain
Document type Journal Article
NLK
PubMed Central
from 2008
Open Access Digital Library
from 1999-01-01
Medline Complete (EBSCOhost)
from 1999-01-01
Oxford Journals Open Access Collection
from 1999-01-01
- MeSH
- Adult MeSH
- Cardiopulmonary Resuscitation MeSH
- Middle Aged MeSH
- Humans MeSH
- Adolescent MeSH
- Young Adult MeSH
- Perception MeSH
- Surveys and Questionnaires MeSH
- Aged MeSH
- Arrhythmias, Cardiac * therapy diagnosis psychology MeSH
- Fear MeSH
- Health Knowledge, Attitudes, Practice * MeSH
- Check Tag
- Adult MeSH
- Middle Aged MeSH
- Humans MeSH
- Adolescent MeSH
- Young Adult MeSH
- Male MeSH
- Aged MeSH
- Female MeSH
- Publication type
- Journal Article MeSH
- Geographicals
- Europe MeSH
AIMS: Despite increasing prevalence, the general population lacks knowledge regarding diagnosis, implications, and management of cardiac arrhythmias (CA). This study aims to assess public perception of CA and identify knowledge gaps. METHODS AND RESULTS: The 36-item PULSE survey was disseminated via social media to the general population and conducted under the auspices of the European Heart Rhythm Association Scientific Initiatives Committee (EHRA SIC) with EHRA patient committee support. Among 3924 participants (2177 healthy, 1747 with previously diagnosed CA; 59% female, 90% European), 81% reported fear of CA. Females were more likely to be 'very' or 'moderately afraid' than males [odds ratio (OR) 1.159 (1.005, 1.337), P = 0.046]. While most recognized complications of CA-heart failure (82%), stroke (80%), and death (75%)-43% were unaware that CA can be asymptomatic. Those with cardiopulmonary resuscitation (CPR) training in the past 5 years were 2.6 times and 4.7 times more confident identifying sudden cardiac death and initiating CPR (P < 0.001). Confidence was lower in retired participants [OR 0.574 (0.499, 0.660), P < 0.001] and Southern Europeans [OR 0.703 (0.600, 0.824), P < 0.001]. Without CPR training, only 15% felt confident initiating CPR. Among CA participants, 28% reported severe to disabling daily symptoms. Males were more often asymptomatic (20% vs. 9%, P < 0.001). Treatment rates were comparable between sex categories (81% vs. 79%, P = 0.413). Interdisciplinary shared decision-making processes were reported by 4%. Notably, 1 in 10 CA cases was self-diagnosed using a wearable device, and 30% of CA participants used smartwatches for self-monitoring. CONCLUSION: Significant knowledge gaps regarding CA exist in the general population. Targeted educational initiatives could be a viable tool to enhance public knowledge, confidence in detecting and managing arrhythmias, particularly for women, who experience greater fear and symptom severity despite similar treatment rates.
3rd Department of Cardiology Medical University of Silesia Katowice 40 635 Poland
Arrhythmia and Robotic Electrophysiology Unit La Paz University Hospital Madrid Spain
Arrhythmia Unit Vall d'Hebron University Hospital Barcelona 08035 Spain
ASKLEPIOS proresearch Institute Lohmühlenstrasse 5 20099 Hamburg Germany
C2VN Aix Marseille Université Marseille France
Cardioangiologic Center Bethanien Frankfurt am Main Germany
Clinic for Cardiology University Clinical Centre Kragujevac Kragujevac Serbia
Department of Cardiology Hospital Sta Cruz Lisboa Portugal
Department of Cardiology Karolinska University Hospital Stockholm Sweden
Department of Cardiology St Antonius Hospital Nieuwegein The Netherlands
Department of Cardiology Unidade Local de Saúde do Alto Ave Guimarães Portugal
Department of Cardiology University Hospital Giessen Rudolf Buchheim Straße 8 35392 Giessen Germany
Department of Heart and Lung Diseases Karolinska Institute Huddinge Stockholm Sweden
Department of Public Health and Clinical Medicine Umeå University Umea Sweden
Division of Cardiology Medical University of Graz Graz Austria
European Society of Cardiology Patient Forum Sophia Antipolis France
German Center for Cardiovascular Research Partner Site Hamburg Kiel Lübeck Lübeck Germany
Ordensklinikum Linz Elisabethinen Department of Cardiology Linz Austria
References provided by Crossref.org
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