The improved survival in people with cystic fibrosis has led to an increasing number of patients reaching adulthood. This trend is likely to be maintained over the next decades, suggesting a need to increase the number of centres with expertise in the management of adult patients with cystic fibrosis. These centres should be capable of delivering multidisciplinary care addressing the complexity of the disease, in addition to addressing the psychological burden on patients and their families. Further issues that require attention are organ transplantation and end of life management.Lung disease in adults with cystic fibrosis drives most of the clinical care requirements, and major life-threatening complications, such as respiratory infection, respiratory failure, pneumothorax and haemoptysis, and the management of lung transplantation require expertise from trained respiratory physicians. The taskforce therefore strongly reccommends that medical leadership in multidisciplinary adult teams should be attributed to a respiratory physician adequately trained in cystic fibrosis management.The task force suggests the implementation of a core curriculum for trainees in adult respiratory medicine and the selection and accreditation of training centres that deliver postgraduate training to the standards of the HERMES programme.

CF Centre Aarhus University Hospital Aarhus Denmark

Christiane Herzog CF Centre Dept of Respiratory Diseases Goethe University Frankfurt am Main Frankfurt am Main Germany

Cystic Fibrosis Center Azienda Ospedaliera Universitaria Integrata Verona Italy

Cystic Fibrosis Europe Brussels Belgium

Cystic Fibrosis Foundation Bethesda MD USA

Dept of Medical Microbiology Motol University Hospital and 2nd Faculty of Medicine Charles University Prague Czech Republic

Dept of Paediatrics Queen Silvia Children's Hospital Sahlgrenska University Hospital Gothenburg Sweden

Dept of Pathophysiology and Transplantation University of Milan IRCCS Fondazione Cà Granda Milan Italy

Dept of Respiratory Medicine Cochin Hospital Assistance Publique Hôpitaux de Paris and Université Paris Descartes Sorbonne Paris Cité Paris France

Dept of Respiratory Medicine Hannover Medical School Hanover Germany

Dept of Respiratory Medicine Royal Brompton Hospital London UK

Dept of Thoracic Medicine The Prince Charles Hospital and QIMR Berghofer Medical Research Institute Brisbane Australia

Dipartimento di Scienze Cliniche e di Comunità Università degli Studi di Milano Milan Italy

Haga Teaching Hospital Dept of Pulmonology and Cystic Fibrosis The Hague The Netherlands

Lung Transplant and Adult Cystic Fibrosis Dept of Pneumology University Hospital la FE Valencia Spain

Mukoviszidose eV Berlin Germany

Mukoviszidose Institut gGmbH Bonn Germany

Paediatric and Adult CF Units Leeds Teaching Hospitals Trust Leeds UK

School of Medicine Dentistry and Biomedical Sciences Queen's University of Belfast Belfast UK

Scottish Adult Cystic Fibrosis Service Western General Hospital Edinburgh UK

References provided by Crossref.org

The future of cystic fibrosis care: a global perspective