• This record comes from PubMed

European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

. 2021 Aug ; 6 (4) : 100174. [epub] 20210615

Language English Country Great Britain, England Media print-electronic

Document type News, Research Support, Non-U.S. Gov't

Links

PubMed 34139485
PubMed Central PMC8219752
DOI 10.1016/j.esmoop.2021.100174
PII: S2059-7029(21)00134-4
Knihovny.cz E-resources

Department of Chemotherapy Clinic of Haematology and Oncology North Estonia Medical Centre Foundation Tallinn Estonia

Department of Comprehensive Cancer Care Masaryk Memorial Cancer Institute Brno Czech Republic

Department of Medical Oncology Amsterdam UMC University of Amsterdam Amsterdam The Netherlands

Department of Medical Oncology Centre Leon Berard and Centre de Recherche en Cancérologie de Lyon and Université Claude Bernard Lyon 1 Lyon France

Department of Medical Oncology Charing Cross Hospital Campus of Imperial College London London UK

Department of Medical Oncology Fondazione IRCCS Istituto Nazionale dei Tumori and University of Milan Milan Italy

Department of Medical Oncology University Medical Centre Groningen Groningen The Netherlands

Department of Oncology 2nd Faculty of Medicine Charles University and Motol University Hospital Prague Czech Republic

EURORDIS Rare Diseases Europe

Institute of Biomedicine of Sevilla Virgen Virgen del Rocío University Hospital Seville Spain

International Neuroendocrine Cancer Alliance Boston USA

Lithuanian University of Health Sciences Department of Neurosurgery Kaunas Lithuania

Maria Skłodowska Curie Institute Warsaw Poland

Medical Oncology Department Institut Curie Paris France

Medical University of Graz Graz Austria

Melanoma Patient Network Europe OcuMel Birmingham UK

National Institute of Oncology Budapest Hungary

Neuroendocrine Cancer Unit Royal Free Hospital London UK

Oncology Department and Danish Centre for Particle Therapy University Hospital Aarhus Denmark

Oncology Department Centro Hospitalar e Universitário Universitário do Porto Porto Portugal

Research and Innovation Department Centre Léon Bérard Lyon France

Salivary Gland Cancer London UK

Sarcoma Patient EuroNet

Sorbonne Université Inserm CNRS UMR S 1127 Institut du Cerveau ICM AP HP Hôpitaux Universitaires La Pitié Salpêtrière Charles Foix Service de Neurologie 2 Mazarin Paris France

Thyroid Cancer Alliance Rotterdam The Netherlands

See more in PubMed

Gatta G., Capocaccia R., Botta L. Burden and centralised treatment in Europe of rare tumours: results of RARECAREnet – a population-based study. Lancet Oncol. 2017;18(8):1022–1039. PubMed

de Pinieux G., Karanian M., Le Loarer F. Nationwide incidence of sarcomas and connective tissue tumors of intermediate malignancy over four years using an expert pathology review network. PLoS One. 2021;16(2):e0246958. PubMed PMC

Gatta G., van der Zwan J.M., Casali P.G. Rare cancers are not so rare: the rare cancer burden in Europe. Eur J Cancer. 2011;47:2493–2511. PubMed

Gatta G., Ciccolallo L., Kunkler I. Survival from rare cancer in adults: a population-based study. Lancet Oncol. 2006;7:132–140. PubMed

Heudel P.E., Cousin P., Lurkin A. Territorial inequalities in management and conformity to clinical guidelines for sarcoma patients: an exhaustive population-based cohort analysis in the Rhone-Alpes region. Int J Clin Oncol. 2014;19:744–752. PubMed

Fayet Y., Coindre J.M., Dalban C. Geographical accessibility of the referral networks in France. intermediate results from the IGeAS research program. Int J Environ Res Public Health. 2018;15:2204. PubMed PMC

Martin-Broto J., Hindi N., Cruz J. Relevance of reference centers in sarcoma care and quality item evaluation: results from the prospective registry of the Spanish Group for Research in Sarcoma (GEIS) Oncologist. 2019;24:e338–e346. PubMed PMC

Blay J.Y., Honore C., Stoeckle E. Surgery in reference centres improves survival of sarcoma patients: a nationwide study. Ann Oncol. 2019;30:1143–1153. PubMed PMC

Blay J.Y., Soibinet P., Penel N. Improved survival using specialized multidisciplinary board in sarcoma patients. Ann Oncol. 2017;28:2852–2859. PubMed PMC

Bonvalot S., Gaignard E., Stoeckle E. Survival benefit of the surgical management of retroperitoneal sarcoma in a reference center: a Nationwide Study of the French Sarcoma Group from the NetSarc Database. Ann Surg Oncol. 2019;26:2286–2293. PubMed

Casali P.G., Abecassis N., Aro H.T. Soft tissue and visceral sarcomas: ESMO-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol. 2018;29(suppl 4):iv268–iv269. PubMed

Casali P.G., Abecassis N., Aro H.T. Gastrointestinal stromal tumours: ESMO-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol. 2018;29(suppl 4):iv267. PubMed

Casali P.G., Bielack S., Abecassis N. Bone sarcomas: ESMO-PaedCan-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol. 2018;29(suppl 4):iv79–iv95. PubMed

Franceschi E., Hofer S., Brandes A.A. EANO-EURACAN clinical practice guideline for diagnosis, treatment, and follow-up of post-pubertal and adult patients with medulloblastoma. Lancet Oncol. 2019;20:e715–e728. PubMed

Nicholson A.G., Sauter J.L., Nowak A.K. EURACAN/IASLC proposals for updating the histologic classification of pleural mesothelioma: towards a more multidisciplinary approach. J Thorac Oncol. 2020;15:29–49. PubMed

Kusamura S., Kepenekian V., Villeneuve L. Peritoneal mesothelioma: PSOGI/EURACAN clinical practice guidelines for diagnosis, treatment and follow-up. Eur J Surg Oncol. 2020;47:36–59. PubMed

https://ec.europa.eu/health/sites/health/files/ern/docs/integration_healthcaresystems_en.pdf Available at. Accessed June 7, 2021.

https://ec.europa.eu/health/sites/default/files/ern/docs/integration_healthcaresystems_en.pdf Available at. Accessed June 7, 2021.

https://www.esmo.org/oncology-news/2020-cancer-incidence-and-mortality-in-eu-27-countries Available at. Accessed June 7, 2021.

http://download2.eurordis.org.s3.amazonaws.com/ern/Draft%20Recommendations%20for%20Integration_final.pdf Available at. Accessed June 7, 2021.

Tumiene B., Graessner H., Mathijssen I.M. European Reference Networks: challenges and opportunities. J Community Genet. 2021;17:1–13. PubMed PMC

Find record

Citation metrics

Loading data ...

Archiving options

Loading data ...