Moving towards Integrated and Personalized Care in Parkinson's Disease: A Framework Proposal for Training Parkinson Nurses
Status PubMed-not-MEDLINE Language English Country Switzerland Media electronic
Document type Journal Article, Review
Grant support
HESOCARE-329-073
EU Joint Programme - Neurodegenerative Disease Research
01789-000
CIHR - Canada
PubMed
34209024
PubMed Central
PMC8304750
DOI
10.3390/jpm11070623
PII: jpm11070623
Knihovny.cz E-resources
- Keywords
- Parkinson nurse, Parkinson’s disease, integrated care, multidisciplinary care, nursing training, personalized care,
- Publication type
- Journal Article MeSH
- Review MeSH
Delivering healthcare to people living with Parkinson's disease (PD) may be challenging in face of differentiated care needs during a PD journey and a growing complexity. In this regard, integrative care models may foster flexible solutions on patients' care needs whereas Parkinson Nurses (PN) may be pivotal facilitators. However, at present hardly any training opportunities tailored to the care priorities of PD-patients are to be found for nurses. Following a conceptual approach, this article aims at setting a framework for training PN by reviewing existing literature on care priorities for PD. As a result, six prerequisites were formulated concerning a framework for training PN. The proposed training framework consist of three modules covering topics of PD: (i) comprehensive care, (ii) self-management support and (iii) health coaching. A fourth module on telemedicine may be added if applicable. The framework streamlines important theoretical concepts of professional PD management and may enable the development of novel, personalized care approaches.
CNS Campus Neurológico Sénior Torres Vedras 2560 280 Torres Vedras Portugal
Department of Neurology University Hospital Marburg 35033 Marburg Germany
Parkinson and Movement Disorders Unit University of Padua 35122 Padua Italy
Research Unit Ethics University Hospital Cologne 50931 Cologne Germany
The Ottawa Hospital Research Institute Ottawa ON K1Y 4E9 Canada
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