Evaluation of Web-Based Health Information From the Perspective of Women With Eating Disorders: Thematic Analysis

. 2022 Jun 13 ; 24 (6) : e31148. [epub] 20220613

Jazyk angličtina Země Kanada Médium electronic

Typ dokumentu časopisecké články, práce podpořená grantem

Perzistentní odkaz   https://www.medvik.cz/link/pmid35699984
Odkazy

PubMed 35699984
PubMed Central PMC9237763
DOI 10.2196/31148
PII: v24i6e31148
Knihovny.cz E-zdroje

BACKGROUND: Users with experience of eating disorders use the internet as a source of information, whether for prorecovery activities (such as web-based treatment, looking for information, support, and sharing) or activities that promote eating disorder behavior as a desirable lifestyle choice (such as pro-eating disorder communities and reading and creating pro-eating disorder posts). Their assessment of web-based eating disorder-related information is crucial for understanding the context of the illness and for health professionals and their web-based interventions. OBJECTIVE: This study aimed to understand the criteria young women with the experience of eating disorders use in evaluating eating disorder-related web-based information and what eating disorder-related characteristics of these women are involved in their evaluation. METHODS: We analyzed 30 semistructured individual interviews with Czech women aged 16 to 28 years with past or present eating disorder experience using a qualitative approach. Thematic analysis was adopted as an analytical tool. RESULTS: The specifics of eating disorder phases (the disorder stage and the treatment process) emerged as important aspects in the process of information assessment. Other specific characteristics of respondents (eg, motivation, abilities, and resources) addressed how the respondents arrived at certain web-based information and how they evaluated it. In addition, the respondents described some content cues as features of information (eg, novelty and social information pooling). Another finding is that other users' attitudes, experiences, activities, and personal features are involved in the information evaluation of these users and the information presented by them. Finally, the respondents evaluated the websites' visual look and graphic components. CONCLUSIONS: This study shows that web-based information evaluation reported by women with experience of eating disorders is a complex process. The assessment is influenced by current personal characteristics related to the illness (mainly the motivation for maintaining or curing the eating disorder) using cues associated with information content, other users, and website look. The study findings have important implications for health professionals, who should ask their clients questions about web-based communities and their needs to understand what information and sources they choose.

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Rieh SY, Danielson DR. Credibility: a multidisciplinary framework. Annual Rev Inf Sci Technol. 2008 Oct 24;41(1):307–64. doi: 10.1002/aris.2007.1440410114. DOI

Metzger MJ, Flanagin AJ. Credibility and trust of information in online environments: the use of cognitive heuristics. J Pragmatics. 2013 Dec;59:210–20. doi: 10.1016/j.pragma.2013.07.012. DOI

Wilson JL, Peebles R, Hardy KK, Litt IF. Surfing for thinness: a pilot study of pro-eating disorder web site usage in adolescents with eating disorders. Pediatrics. 2006 Dec;118(6):e1635–43. doi: 10.1542/peds.2006-1133.118/6/e1635 PubMed DOI

Schlegl S, Bürger C, Schmidt L, Herbst N, Voderholzer U. The potential of technology-based psychological interventions for anorexia and bulimia nervosa: a systematic review and recommendations for future research. J Med Internet Res. 2015 Mar 31;17(3):e85. doi: 10.2196/jmir.3554. v17i3e85 PubMed DOI PMC

ter Huurne ED, de Haan HA, Postel MG, van der Palen J, VanDerNagel JE, DeJong CA. Web-based cognitive behavioral therapy for female patients with eating disorders: randomized controlled trial. J Med Internet Res. 2015 Jun 18;17(6):e152. doi: 10.2196/jmir.3946. v17i6e152 PubMed DOI PMC

Syed-Abdul S, Fernandez-Luque L, Jian W, Li Y, Crain S, Hsu M, Wang Y, Khandregzen D, Chuluunbaatar E, Nguyen PA, Liou D. Misleading health-related information promoted through video-based social media: anorexia on YouTube. J Med Internet Res. 2013 Feb 13;15(2):e30. doi: 10.2196/jmir.2237. v15i2e30 PubMed DOI PMC

Maine M, McGilley BH, Bunnell DW. Treatment of Eating Disorders Bridging the Research - Practice Gap Book, 1st edition. Amsterdam, The Netherlands: Elsevier; 2010.

Ágh T, Kovács G, Supina D, Pawaskar M, Herman BK, Vokó Z, Sheehan DV. A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder. Eat Weight Disord. 2016 Sep;21(3):353–64. doi: 10.1007/s40519-016-0264-x. 10.1007/s40519-016-0264-x PubMed DOI PMC

Nagl M, Jacobi C, Paul M, Beesdo-Baum K, Höfler M, Lieb R, Wittchen H. Prevalence, incidence, and natural course of anorexia and bulimia nervosa among adolescents and young adults. Eur Child Adolesc Psychiatry. 2016 Aug;25(8):903–18. doi: 10.1007/s00787-015-0808-z.10.1007/s00787-015-0808-z PubMed DOI

The number of people with eating disorders is increasing in the Czech Republic. NewsBeezer. [2022-04-20]. https://czechpoints.com/eating-disorders-are-on-the-rise-in-the-czech-republic/

Ulfvebrand S, Birgegård A, Norring C, Högdahl L, von Hausswolff-Juhlin Y. Psychiatric comorbidity in women and men with eating disorders results from a large clinical database. Psychiatry Res. 2015 Dec 15;230(2):294–9. doi: 10.1016/j.psychres.2015.09.008.S0165-1781(15)30292-4 PubMed DOI

Seah XY, Tham XC, Kamaruzaman NR, Yobas PK. Knowledge, attitudes and challenges of healthcare professionals managing people with eating disorders: a literature review. Arch Psychiatr Nurs. 2017 Feb;31(1):125–36. doi: 10.1016/j.apnu.2016.09.002.S0883-9417(16)30218-7 PubMed DOI

Stefanini MC, Troiani MR, Caselli M, Dirindelli P, Lucarelli S, Caini S, Martinetti MG. Living with someone with an eating disorder: factors affecting the caregivers' burden. Eat Weight Disord. 2019 Dec;24(6):1209–14. doi: 10.1007/s40519-018-0480-7.10.1007/s40519-018-0480-7 PubMed DOI

Eating Disorders and Obesity, Second Edition A Comprehensive Handbook. New York, USA: The Guilford Press; 2002. Clinical presentation of anorexia nervosabulimia nervosa.

Rome E, Ammerman S, Rosen D, Keller R, Lock J, Mammel K, O'Toole J, Rees J, Sanders M, Sawyer S, Schneider M, Sigel E, Silber TJ. Children and adolescents with eating disorders: the state of the art. Pediatrics. 2003 Jan;111(1):e98–108. doi: 10.1542/peds.111.1.e98. PubMed DOI

Hart LM, Granillo MT, Jorm AF, Paxton SJ. Unmet need for treatment in the eating disorders: a systematic review of eating disorder specific treatment seeking among community cases. Clin Psychol Rev. 2011 Jul;31(5):727–35. doi: 10.1016/j.cpr.2011.03.004.S0272-7358(11)00052-3 PubMed DOI

DiClemente C, Prochaska J. Treating Addictive Behaviors. Boston, MA, USA: Springer; 1986. Toward a comprehensive model of change.

Hasler G, Delsignore A, Milos G, Buddeberg C, Schnyder U. Application of Prochaska's transtheoretical model of change to patients with eating disorders. J Psychosom Res. 2004 Jul;57(1):67–72. doi: 10.1016/S0022-3999(03)00562-2.S0022399903005622 PubMed DOI

Keel PK, Forney KJ. Psychosocial risk factors for eating disorders. Int J Eat Disord. 2013 Jul;46(5):433–9. doi: 10.1002/eat.22094. PubMed DOI

Rodgers RF, Lowy AS, Halperin DM, Franko DL. A meta-analysis examining the influence of pro-eating disorder websites on body image and eating pathology. Eur Eat Disord Rev. 2016 Jan;24(1):3–8. doi: 10.1002/erv.2390. PubMed DOI

Murphy R, Frost S, Webster P, Schmidt U. An evaluation of web-based information. Int J Eat Disord. 2004 Mar;35(2):145–54. doi: 10.1002/eat.10245. PubMed DOI

McCormack A. Individuals with eating disorders and the use of online support groups as a form of social support. Comput Inform Nurs. 2010;28(1):12–9. doi: 10.1097/NCN.0b013e3181c04b06.00024665-201001000-00006 PubMed DOI

Beaunoyer E, Arsenault M, Lomanowska AM, Guitton MJ. Understanding online health information: evaluation, tools, and strategies. Patient Educ Couns. 2017 Feb;100(2):183–9. doi: 10.1016/j.pec.2016.08.028.S0738-3991(16)30402-5 PubMed DOI

Tao D, LeRouge C, Smith KJ, De Leo G. Defining information quality into health websites: a conceptual framework of health website information quality for educated young adults. JMIR Hum Factors. 2017 Oct 06;4(4):e25. doi: 10.2196/humanfactors.6455. v4i4e25 PubMed DOI PMC

Kim H, Park SY, Bozeman I. Online health information search and evaluation: observations and semi-structured interviews with college students and maternal health experts. Health Info Libr J. 2011 Sep;28(3):188–99. doi: 10.1111/j.1471-1842.2011.00948.x. doi: 10.1111/j.1471-1842.2011.00948.x. PubMed DOI

Diviani N, van den Putte B, Giani S, van Weert JC. Low health literacy and evaluation of online health information: a systematic review of the literature. J Med Internet Res. 2015 May 07;17(5):e112. doi: 10.2196/jmir.4018. v17i5e112 PubMed DOI PMC

Knight S, Burn J. Developing a framework for assessing information quality on the world wide web. Informing Sci J. 2005;8:159–72. doi: 10.28945/493. DOI

Huizingh E. The content and design of web sites: an empirical study. Inf Manag. 2000 Apr;37(3):123–34. doi: 10.1016/S0378-7206(99)00044-0. doi: 10.1016/s0378-7206(99)00044-0. DOI

Zhang Y, Sun Y, Xie B. Quality of health information for consumers on the web: a systematic review of indicators, criteria, tools, and evaluation results. J Assn Inf Sci Tec. 2015 Apr 29;66(10):2071–84. doi: 10.1002/asi.23311. DOI

Hu Y, Shyam Sundar S. Effects of online health sources on credibility and behavioral intentions. Commun Res. 2009 Nov 25;37(1):105–32. doi: 10.1177/0093650209351512. DOI

Fogg BJ. Prominence-interpretation theory: explaining how people assess credibility online. Proceedings of the Extended Abstracts on Human Factors in Computing Systems; CHI03: Human Factors in Computing Systems; Apr 5 - 10, 2003; Ft. Lauderdale Florida USA. 2003. DOI

Hargittai E, Fullerton L, Menchen-Trevino E, Thomas KY. Trust online: young adults' evaluation of web content. Int J Commun. 2010;4(1):468–94.

Hilligoss B, Rieh SY. Developing a unifying framework of credibility assessment: construct, heuristics, and interaction in context. Inf Process Manag. 2008 Jul;44(4):1467–84. doi: 10.1016/j.ipm.2007.10.001. DOI

Rafalak M, Abramczuk K, Wierzbicki A. Incredible: is (almost) all web content trustworthy? analysis of psychological factors related to website credibility evaluation. Proceedings of the 23rd International Conference on World Wide Web; WWW '14: 23rd International World Wide Web Conference; Apr 7-11, 2014; Seoul, Korea. 2014. DOI

Digital Media, Youth, and Credibility. Cambridge, MA, USA: MIT Press; 2008.

Metzger MJ. Making sense of credibility on the web: models for evaluating online information and recommendations for future research. J Am Soc Inf Sci. 2007 Nov;58(13):2078–91. doi: 10.1002/asi.20672. DOI

Metzger MJ, Flanagin AJ, Medders RB. Social and heuristic approaches to credibility evaluation online. J Commun. 2010 Aug 19;60(3):413–39. doi: 10.1111/j.1460-2466.2010.01488.x. DOI

Cassin SE, von Ranson KM. Personality and eating disorders: a decade in review. Clin Psychol Rev. 2005 Nov;25(7):895–916. doi: 10.1016/j.cpr.2005.04.012.S0272-7358(05)00089-9 PubMed DOI

Aspen V, Darcy AM, Lock J. A review of attention biases in women with eating disorders. Cogn Emot. 2013;27(5):820–38. doi: 10.1080/02699931.2012.749777. PubMed DOI PMC

Lang K, Roberts M, Harrison A, Lopez C, Goddard E, Khondoker M, Treasure J, Tchanturia K. Central coherence in eating disorders: a synthesis of studies using the Rey Osterrieth complex figure test. PLoS One. 2016;11(11):e0165467. doi: 10.1371/journal.pone.0165467. PONE-D-16-18369 PubMed DOI PMC

Wu M, Brockmeyer T, Hartmann M, Skunde M, Herzog W, Friederich H. Set-shifting ability across the spectrum of eating disorders and in overweight and obesity: a systematic review and meta-analysis. Psychol Med. 2014 Dec;44(16):3365–85. doi: 10.1017/S0033291714000294.S0033291714000294 PubMed DOI

Kanakam N, Raoult C, Collier D, Treasure J. Set shifting and central coherence as neurocognitive endophenotypes in eating disorders: a preliminary investigation in twins. World J Biol Psychiatry. 2013 Aug;14(6):464–75. doi: 10.3109/15622975.2012.665478. PubMed DOI

Tchanturia K, Hambrook D. The Treatment of Eating Disorders: A Clinical Handbook. New York, USA: The Guilford Press; 2011. Cognitive remediation therapy for anorexia nervosa.

Almenara CA, Machackova H, Smahel D. Sociodemographic, attitudinal, and behavioral correlates of using nutrition, weight loss, and fitness websites: an online survey. J Med Internet Res. 2019 Apr 04;21(4):e10189. doi: 10.2196/10189. v21i4e10189 PubMed DOI PMC

Rohde P, Stice E, Marti CN. Development and predictive effects of eating disorder risk factors during adolescence: implications for prevention efforts. Int J Eat Disord. 2015 Mar 06;48(2):187–98. doi: 10.1002/eat.22270. PubMed DOI PMC

Mitchison D, Hay P, Slewa-Younan S, Mond J. The changing demographic profile of eating disorder behaviors in the community. BMC Public Health. 2014 Sep 11;14:943. doi: 10.1186/1471-2458-14-943. 1471-2458-14-943 PubMed DOI PMC

Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006 Jan;3(2):77–101. doi: 10.1191/1478088706qp063oa. DOI

Guest G, MacQueen KM, Namey E. Applied Thematic Analysis. Los Angeles, CA, USA: SAGE Publications, Inc; 2014.

Chang Y, Voils CI, Sandelowski M, Hasselblad V, Crandell JL. Transforming verbal counts in reports of qualitative descriptive studies into numbers. West J Nurs Res. 2009 Nov;31(7):837–52. doi: 10.1177/0193945909334434. 0193945909334434 PubMed DOI PMC

Sandelowski M. Real qualitative researchers do not count: the use of numbers in qualitative research. Res Nurs Health. 2001 Jun;24(3):230–40. doi: 10.1002/nur.1025.10.1002/nur.1025 PubMed DOI

Guardiola-Wanden-Berghe R, Gil-Pérez JD, Sanz-Valero J, Wanden-Berghe C. Evaluating the quality of websites relating to diet and eating disorders. Health Info Libr J. 2011 Dec;28(4):294–301. doi: 10.1111/j.1471-1842.2011.00961.x. doi: 10.1111/j.1471-1842.2011.00961.x. PubMed DOI

Sundar SS. Digital Media, Youth, and Credibility. Cambridge, MA, USA: The MIT Press; 2008. The MAIN model: a heuristic approach to understanding technology effects on credibility.

Ferguson CJ, Muñoz ME, Garza A, Galindo M. Concurrent and prospective analyses of peer, television and social media influences on body dissatisfaction, eating disorder symptoms and life satisfaction in adolescent girls. J Youth Adolesc. 2014 Jan;43(1):1–14. doi: 10.1007/s10964-012-9898-9. PubMed DOI

Boero N, Pascoe C. Pro-anorexia communities and online interaction: bringing the pro-ANA body online. Body Soc. 2012 May 24;18(2):27–57. doi: 10.1177/1357034X12440827. DOI

Cruwys T, Platow M, Rieger E, Byrne DG, Haslam SA. The social psychology of disordered eating: the situated identity enactment model. Eur Rev Soc Psychol. 2016 Oct 24;27(1):160–95. doi: 10.1080/10463283.2016.1229891. DOI

McNamara N, Parsons H. 'Everyone here wants everyone else to get better': the role of social identity in eating disorder recovery. Br J Soc Psychol. 2016 Dec;55(4):662–80. doi: 10.1111/bjso.12161. PubMed DOI

Giles D. Constructing identities in cyberspace: the case of eating disorders. Br J Soc Psychol. 2006 Sep;45(Pt 3):463–77. doi: 10.1348/014466605X53596. PubMed DOI

Yeshua-Katz D, Martins N. Communicating stigma: the pro-ana paradox. Health Commun. 2013;28(5):499–508. doi: 10.1080/10410236.2012.699889. PubMed DOI

Morahan-Martin JM. How internet users find, evaluate, and use online health information: a cross-cultural review. Cyberpsychol Behav. 2004 Oct;7(5):497–510. doi: 10.1089/cpb.2004.7.497. PubMed DOI

Senkowski V, Branscum P. How college students search the internet for weight control and weight management information: an observational study. Am J Health Educ. 2015 Jul 06;46(4):231–40. doi: 10.1080/19325037.2015.1044139. DOI

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