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1st Department of Neurology AHEPA Uni... 1 Center for Medicine of the Elderly Ke... 1 Centre for Health Studies and Researc... 1 Department of Clinical Neurophysiolog... 1 Department of Epidemiology and Biosta... 1 Department of Neurology 2nd Faculty o... 1 Department of Neurology 4Brain Ghent ... 1 Department of Neurology Medical Colle... 1 Faculty of Public Health Slovak Medic... 1 Institute of Systems Molecular and In... 1 Neurological Clinic Department of Exp... 1 Research Centre for Tourism Sustainab... 1 School of Public Health Babes Bolyai ... 1 The Swedish Institute for Health Econ... 1 Unité d'épileptologie CHU Pontchaillo... 1 Universidade do Algarve ESGHT Faro Po... 1
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1st Department of Neurology AHEPA Uni... 1 Center for Medicine of the Elderly Ke... 1 Centre for Health Studies and Researc... 1 Department of Clinical Neurophysiolog... 1 Department of Epidemiology and Biosta... 1 Department of Neurology 2nd Faculty o... 1 Department of Neurology 4Brain Ghent ... 1 Department of Neurology Medical Colle... 1 Faculty of Public Health Slovak Medic... 1 Institute of Systems Molecular and In... 1 Neurological Clinic Department of Exp... 1 Research Centre for Tourism Sustainab... 1 School of Public Health Babes Bolyai ... 1 The Swedish Institute for Health Econ... 1 Unité d'épileptologie CHU Pontchaillo... 1 Universidade do Algarve ESGHT Faro Po... 1
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- Vonck, Kristl
- Biraben, Arnaud
- Bosak, Magdalena
- Jennum, Poul Jørgen
- Kimiskidis, Vasilios K
- Marusic, Petr
- Mitchell, James W
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Ferreira, Lara N
Autor Ferreira, Lara N ORCID Universidade do Algarve-ESGHT, Faro, Portugal Centre for Health Studies and Research of the University of Coimbra (CEISUC), Centre for Innovative Biomedicine and Biotechnology (CIBB), Coimbra, Portugal Research Centre for Tourism, Sustainability and Well-Being (CinTurs), Universidade do Algarve, Faro, Portugal
- Ondrušová, Martina
- Pana, Adrian
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PubMed
37997564
DOI
10.1002/brb3.3342
Knihovny.cz E-zdroje
BACKGROUND: The use of patient-reported outcomes (PRO) in clinical practice is gaining increasing attention. This study aimed to provide a critical assessment of the current state-of-the-art and beliefs about the use of PRO in the management of people with epilepsy across some European countries. METHODS: Structured interviews were conducted with European experts to collect insights about (I) the personal experience with PRO; (II) the value and impact of PRO in the decision-making process at the national level; and (III) the interest for and use of PRO by national health authorities. RESULTS: Nine neurologists (Austria, Belgium, Czechia, Denmark, France, Greece, Italy, Poland, and United Kingdom), three health economists (Portugal, Romania, and Sweden), and one epidemiologist (Slovakia) participated. They all stated that PRO are collected at their own countries in the context of clinical trials and/or specific projects. During everyday clinical practice, PRO are collected routinely/almost routinely in Austria and Sweden and only at the discretion of the treating physicians in Czechia, Denmark, France, Greece, and Portugal. There was complete consensus about the favorable impact that the PRO can have in terms of clinical outcomes, healthcare resources utilization, and general patient satisfaction. Only participants from Portugal and Sweden answered that the PRO are perceived as very important by the National Health Authorities of their respective countries. CONCLUSIONS: Differences exist in attitudes and perspectives about PRO in epilepsy across Europe. An active plan is warranted to harmonize the measurement of PRO and ensure they can be relevant to people with epilepsy and health services.
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