The healthcare model is shifting towards integrated care approaches. This new model requires patients to be more closely involved. The iCARE-PD project aims to address this need by developing a technology-enabled, home-based, and community-centered integrated care paradigm. A central part of this project is the codesign process of the model of care, exemplified by the active participation of patients in the design and iterative evaluation of three sensor-based technological solutions. We proposed a codesign methodology used for testing the usability and acceptability of these digital technologies and present initial results for one of them, MooVeo. Our results show the usefulness of this approach in testing the usability and acceptability as well as the opportunity to incorporate patients' feedback into the development. This initiative will hopefully help other groups incorporate a similar codesign approach and develop tools that are well adapted to patients' and care teams' needs.

• Klíčová slova
• Parkinson’s disease, codesign, digital care, digital technologies,
• MeSH
• digitální technologie * MeSH
• lidé MeSH
• Parkinsonova nemoc * terapie   MeSH
• technologie MeSH
• učení MeSH
• Check Tag
• lidé MeSH
• Publikační typ
• časopisecké články MeSH

An integrated care model for people living with Parkinson's disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients' trajectories. Three typical trajectories were identified: (a) the "unpredictable" trajectory, (b) the "situated" trajectory, and (c) the "demanding" trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.

• Klíčová slova
• Canada, Europe, Parkinson’s disease, co-design, integrated care, narrative interviews, patients’ experience, trajectory,
• MeSH
• integrované poskytování zdravotní péče * MeSH
• kvalita života MeSH
• lidé MeSH
• Parkinsonova nemoc * terapie   MeSH
• vyprávění MeSH
• Check Tag
• lidé MeSH
• Publikační typ
• časopisecké články MeSH
• práce podpořená grantem MeSH