A significant increase in life expectancy in successive birth cohorts of people with cystic fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely recognized that outcomes for patients cared for in specialist CF Centres are better than for those who are not. Key to the effectiveness of the specialist CF Centre is the multidisciplinary team (MDT), which should include consultants, clinical nurse specialist, microbiologist, physiotherapist, dietitian, pharmacist, clinical psychologist, social worker, clinical geneticist and allied healthcare professionals, all of whom should be experienced in CF care. Members of the MDT are also expected to keep up to date with developments in CF through continued professional development, attendance at conferences, auditing and involvement in research. Specialists CF Centres should also network with other Centres both nationally and internationally, and feed Centre data to registries in order to further the understanding of the disease. This paper provides a framework for the specialist CF Centre, including the organisation of the Centre and the individual roles of MDT members, as well as highlighting the value of CF organisations and disease registries.

Adult Cystic Fibrosis Unit St James's Hospital Leeds UK

Copenhagen CF Centre Rigshospitalet University Hospital Copenhagen Denmark

Cystic Fibrosis Centre University Hospital Leuven Belgium

Cystic Fibrosis Europe Belgium

Department of Biology and Medical Genetics University Hospital Motol Prague Czech Republic; 2nd School of Medicine Charles University Prague Prague Czech Republic

Department of Medical Microbiology 2nd Faculty of Medicine Charles University Prague Czech Republic; Department of Paediatrics 2nd Faculty of Medicine Charles University Prague Czech Republic; University Hospital Motol Prague Czech Republic

Department of Microbiology Papworth Hospital NHS Foundation Trust Papworth Everard Cambridge UK

Department of Pediatrics Institute of Mother and Child Warsaw Poland

Department of Respiratory Medicine Royal Brompton Hospital Sydney Street London UK

Dutch Cystic Fibrosis Foundation The Netherlands

Gartnavel General Hospital West of Scotland Adult CF Unit Glasgow UK

Gothenburg CF Centre Queen Silvia Children's Hospital Göteborg Sweden

HagaZiekenhuis Department of Pulmonology and Cystic Fibrosis The Hague The Netherlands

National Referral Centre for Adult Cystic Fibrosis Pharmacy Department St Vincent's University Hospital Ireland

Paediatric and Adult CF Units Leeds Teaching Hospitals Trust UK

Royal Brompton Hospital Sydney Street London UK

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