Achieving patient engagement in multiple sclerosis: A perspective from the multiple sclerosis in the 21st Century Steering Group
Jazyk angličtina Země Nizozemsko Médium print-electronic
Typ dokumentu časopisecké články, práce podpořená grantem, přehledy
PubMed
26008937
DOI
10.1016/j.msard.2015.02.005
PII: S2211-0348(15)00024-3
Knihovny.cz E-zdroje
- Klíčová slova
- Care, Management, Multiple sclerosis, Patient engagement, Shared decision-making,
- MeSH
- kvalita života MeSH
- lidé MeSH
- motivace MeSH
- péče orientovaná na pacienta * MeSH
- roztroušená skleróza psychologie terapie MeSH
- zapojení pacienta * MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- přehledy MeSH
While advances in medicine, technology and healthcare services offer promises of longevity and improved quality of life (QoL), there is also increasing reliance on a patient׳s skills and motivation to optimize all the benefits available. Patient engagement in their own healthcare has been described as the 'blockbuster drug of the century'. In multiple sclerosis (MS), patient engagement is vital if outcomes for the patient, society and healthcare systems are to be optimized. The MS in the 21st Century Steering Group devised a set of themes that require action with regard to patient engagement in MS, namely: 1) setting and facilitating engagement by education and confidence-building; 2) increasing the importance placed on QoL and patient concerns through patient-reported outcomes (PROs); 3) providing credible sources of accurate information; 4) encouraging treatment adherence through engagement; and 5) empowering through a sense of responsibility. Group members independently researched and contributed examples of patient engagement strategies from several countries and examined interventions that have worked well in areas of patient engagement in MS, and other chronic illnesses. The group presents their perspective on these programs, discusses the barriers to achieving patient engagement, and suggests practical strategies for overcoming these barriers. With an understanding of the issues that influence patient engagement in MS, we can start to investigate ways to enhance engagement and subsequent health outcomes. Engaging patients involves a broad, multidisciplinary approach.
Blizard Institute Bart׳s School of Medicine and Dentistry London UK
CHUM Research Centre Montreal Quebec Canada
European Charcot Foundation Molenhoek The Netherlands
European Health Economics Spéracèdes France
General Faculty Hospital Charles University Prague Czech Republic
Kliniken Valens Valens Switzerland
Moscow MS Centre Russian State Research Medical University named by NI Pirogov Moscow Russia
Northern Ireland Neurology Service Portadown UK
Rehabilitation in MS Brussels Belgium
Royal Holloway University of London Egham UK
Sozialstiftung Bamberg Hospital Bamberg Germany
Tampere University Hospital Tampere Finland
Università di Roma Tor Vergata Rome Italy
Universitätsspital Zürich Zürich Switzerland
University Hospital of Lille Lille France
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