Possibilities and challenges of a large international benchmarking in pediatric diabetology-The SWEET experience
Jazyk angličtina Země Spojené státy americké Médium print
Typ dokumentu časopisecké články, multicentrická studie, přehledy, práce podpořená grantem
PubMed
27982492
DOI
10.1111/pedi.12432
Knihovny.cz E-zdroje
- Klíčová slova
- benchmarking, diabetes, international comparison, pediatric,
- MeSH
- benchmarking * MeSH
- diabetes mellitus epidemiologie terapie MeSH
- dítě MeSH
- lidé MeSH
- mladiství MeSH
- pediatrie normy MeSH
- Check Tag
- dítě MeSH
- lidé MeSH
- mladiství MeSH
- mužské pohlaví MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- multicentrická studie MeSH
- práce podpořená grantem MeSH
- přehledy MeSH
AIM: Despite the existence of evidence-based guidelines for the care of children with diabetes, widespread gaps in knowledge, attitude, and practice remain. The purpose of this paper is to present a review of benchmarking practices and results of this process within SWEET, moreover focusing on current challenges and future directions. METHODS: Biannually, members electronically transfer de-identified clinic data for 37 parameters to the SWEET database. Each center receives benchmarking and data validation reports. RESULTS: In 2015, 48 centers have contributed data for 20 165 unique patients (51.6% male). After exclusion for missing data 19 131 patients remain for further analysis. The median age is 14.2 years, with a median diabetes duration 4.8 years; 96.0% of patients have type 1, 1.1% type 2, and 2.9% other diabetes types. Data completeness has increased over time. In 2015, median HbA1c of all patients' (diabetes type 1) medians was 7.8% (61.7 mmol/mol) with 39.1%, 41.4%, and 19.4% of patients having HbA1c < 7.5% (58 mmol/mol), 7.5%-9% (58-75 mmol/mol) and >9% (75 mmol/mol), respectively. Although HbA1c has been stable over time [7.7%-7.8% (60.7-61.7 mmol/mol)], there remains wide variation between centers. Fourteen centers achieve a median HbA1c <7.5% (58 mmol/mol). CONCLUSIONS: Our vision is that the participation in SWEET is encouraging members to deliver increasingly accurate and complete data. Dissemination of results and prospective projects serve as further motivation to improve data reporting. Comparing processes and outcomes will help members identify weaknesses and introduce innovative solutions, resulting in improved and more uniform care for patients with diabetes.
1st Clinic of Pediatric Endocrinology University Hospital 'Sv Marina' Varna Bulgaria
Agia Sophia Children's Hospital University of Athens Medical School Athens Greece
APDP Portuguese Diabetes Association Lisbon Portugal
Barbara Davis Center for Childhood Diabetes University of Colorado Denver USA
Centre for Pediatric and Young Adult Diabetes Care and Research Rotterdam The Netherlands
DECCP Clinique Pédiatrique Centre Hospitalier de Luxembourg Luxembourg Luxembourg
Department of Paediatrics Aarhus University Hospital Skejby Department of Pediatrics Aarhus Denmark
Department of Pediatrics NU Hospital Group Uddevalla Sweden
Department of Pediatrics University Hospital Motol Prague Prague Czech Republic
Department of Women's and Children's Health G Salesi Hospital Ancona Italy
Diabetes Centre for Children and Adolescents Kinderkrankenhaus Auf der Bult Hannover Germany
Diacare Diabetes Care and Hormone Clinic Ahmedabad India
German Center for Diabetes Research Munich Germany
Institute of Epidemiology and Medical Biometry ZIBMT University of Ulm Ulm Germany
NGO Santé Diabète Délégation Mali Bamako Mali
Pediatric Department Herlev University Hospital Copenhagen Denmark
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