Reinforcing Health Data Sharing through Data Democratization
Status PubMed-not-MEDLINE Jazyk angličtina Země Švýcarsko Médium electronic
Typ dokumentu časopisecké články
Grantová podpora
288856
The Research Council of Norway
PubMed
36143165
PubMed Central
PMC9503051
DOI
10.3390/jpm12091380
PII: jpm12091380
Knihovny.cz E-zdroje
- Klíčová slova
- data democratization, eHealth, health data infrastructure, privacy-enhancing technologies,
- Publikační typ
- časopisecké články MeSH
In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A programmatic design of an HD platform was elaborated, followed by an introduction of one of our critical designs-a "reverse onus" mechanism that aims to incentivize creditable data accessing behaviors. This scheme shows a promising prospect of enabling a democratic health data-sharing platform.
1st Medical Faculty Charles University 12800 Prague Czech Republic
eHealth Competence Center Bavaria Deggendorf Institute of Technology 94469 Deggendorf Germany
Medical Faculty University of Regensburg 93053 Regensburg Germany
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