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Autor
Albayda, Jemima 1 Alexanderson, Helene 1 Basharat, Pari 1 Benitez, Alejandro C 1 Bromley, Rachel 1 Chinoy, Hector 1 Christopher-Stine, Lisa 1 Day, Jessica A 1 Dimachkie, Mazen M 1 Edison, Suzanne E 1 Ernste, Floranne C 1 Gupta, Latika 1 Isenberg, David A 1 Lang, Bianca 1 Lanis, Aviya 1 Lood, Christian 1 Machado, Pedro M 1 Mecoli, Christopher A 1 Naddaf, Elie 1 Oddis, Chester V 1
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Pracoviště
Centre for Rheumatology Division of M... 1 CureJM Foundation Maryland USA 1 Department of Dermatology University ... 1 Department of Neurology University of... 1 Department of Neuromuscular Diseases ... 1 Department of Paediatrics and Medicin... 1 Department of Rheumatology Royal Wolv... 1 Department of Rheumatology and Clinic... 1 Department of Rheumatology and Queen ... 1 Division of Musculoskeletal and Derma... 1 Division of Rheumatology University o... 1 Division of Rheumatology University o... 1 Institute of Rheumatology Prague Czec... 1 Johns Hopkins Division of Rheumatolog... 1 Karolinska Medical Unit Occupational ... 1 Mayo Clinic Rochester Minnesota USA 1 New Orleans Scleroderma and Sarcoidos... 1 Patient Research Partner New Jersey USA 1 Rheumatology Department at the Nation... 1 Seattle Children's Hospital Seattle W... 1
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Autor
Albayda, Jemima 1 Alexanderson, Helene 1 Basharat, Pari 1 Benitez, Alejandro C 1 Bromley, Rachel 1 Chinoy, Hector 1 Christopher-Stine, Lisa 1 Day, Jessica A 1 Dimachkie, Mazen M 1 Edison, Suzanne E 1 Ernste, Floranne C 1 Gupta, Latika 1 Isenberg, David A 1 Lang, Bianca 1 Lanis, Aviya 1 Lood, Christian 1 Machado, Pedro M 1 Mecoli, Christopher A 1 Naddaf, Elie 1 Oddis, Chester V 1
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Pracoviště
Centre for Rheumatology Division of M... 1 CureJM Foundation Maryland USA 1 Department of Dermatology University ... 1 Department of Neurology University of... 1 Department of Neuromuscular Diseases ... 1 Department of Paediatrics and Medicin... 1 Department of Rheumatology Royal Wolv... 1 Department of Rheumatology and Clinic... 1 Department of Rheumatology and Queen ... 1 Division of Musculoskeletal and Derma... 1 Division of Rheumatology University o... 1 Division of Rheumatology University o... 1 Institute of Rheumatology Prague Czec... 1 Johns Hopkins Division of Rheumatolog... 1 Karolinska Medical Unit Occupational ... 1 Mayo Clinic Rochester Minnesota USA 1 New Orleans Scleroderma and Sarcoidos... 1 Patient Research Partner New Jersey USA 1 Rheumatology Department at the Nation... 1 Seattle Children's Hospital Seattle W... 1
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Myositis International Health and Research Collaborative Alliance (MIHRA) is a newly formed purpose-built non-profit charitable research organization dedicated to accelerating international clinical trial readiness, global professional and lay education, career development and rare disease advocacy in IIM-related disorders. In its long form, the name expresses the community's scope of engagement and intent. In its abbreviation, MIHRA, conveys linguistic roots across many languages, that reflects the IIM community's spirit with meanings such as kindness, community, goodness, and peace. MIHRA unites the global multi-disciplinary community of adult and pediatric healthcare professionals, researchers, patient advisors and networks focused on conducting research in and providing care for pediatric and adult IIM-related disorders to ultimately find a cure. MIHRA serves as a resourced platform for collaborative efforts in investigator-initiated projects, consensus guidelines for IIM assessment and treatment, and IIM-specific career development through connecting research networks.MIHRA's infrastructure, mission, programming and operations are designed to address challenges unique to rare disease communities and aspires to contribute toward transformative models of rare disease research such as global expansion and inclusivity, utilization of community resources, streamlining ethics and data-sharing policies to facilitate collaborative research. Herein, summarises MIHRA operational cores, missions, vision, programming and provision of community resources to sustain, accelerate and grow global collaborative research in myositis-related disorders.
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