BACKGROUND: To support family caregivers of people with dementia in end-of-life decision making, a family booklet on comfort care has been adapted and adopted by several European jurisdictions since the original publication in Canada in 2005. METHODS: We analyzed and compared the adaptations to the family booklets used in Canada, the Czech Republic, Italy, the Netherlands, the UK and Ireland that were made up to 2021. Qualitative content analysis was used to create a typology of changes to the original booklet. Interviews with the teams that adapted the booklets contributed to methodological triangulation. Further, using an established framework, we assessed whether the contents of the booklets addressed all domains relevant to optimal palliative dementia care. RESULTS: The booklets differed in the types of treatment addressed, in particular tube feeding, euthanasia, and spiritual care. There was also variability in the extent to which medical details were provided, an emphasis on previously expressed wishes in medical decision making, addressing of treatment dilemmas at the end of life, the tone of the messages (indirect or explicit) and the discussion of prognosis (as more or less positive), and the involvement of various healthcare professionals and family caregivers in care. All booklets addressed all domains of palliative dementia care. CONCLUSIONS: We identified core elements in providing information on end-of-life care to family caregivers of people with dementia as related to optimal palliative care in dementia. Additionally, local adaptations and updates are required to account for socio-cultural, clinical, and legal differences which may also change over time. These results may inform development of educational and advance care planning materials for different contexts.

• Klíčová slova
• Decision aid, Dementia, Education, End of life, Family caregivers, Nursing homes, Palliative care,
• MeSH
• brožury MeSH
• demence * terapie   MeSH
• komfort pacienta MeSH
• lidé MeSH
• osoby pečující o pacienty MeSH
• paliativní péče metody   MeSH
• péče o umírající * MeSH
• rodina MeSH
• smrt MeSH
• Check Tag
• lidé MeSH
• Publikační typ
• časopisecké články MeSH

The European Society of Gastrointestinal Endoscopy (ESGE) and United European Gastroenterology present a list of key performance measures for endoscopy services. We recommend that these performance measures be adopted by all endoscopy services across Europe. The measures include those related to the leadership, organization, and delivery of the service, as well as those associated with the patient journey. Each measure includes a recommendation for a minimum and target standard for endoscopy services to achieve. We recommend that all stakeholders in endoscopy take note of these ESGE endoscopy services performance measures to accelerate their adoption and implementation. Stakeholders include patients and their advocacy groups; service leaders; staff, including endoscopists; professional societies; payers; and regulators.

• MeSH
• bezpečnost normy   MeSH
• gastrointestinální endoskopie škodlivé účinky   normy   MeSH
• informovaný souhlas pacienta normy   MeSH
• komfort pacienta normy   MeSH
• konziliární vyšetření a konzultace normy   MeSH
• lidé MeSH
• pracovní síly normy   MeSH
• soukromí MeSH
• ukazatele kvality zdravotní péče * MeSH
• vůdcovství MeSH
• výběr pacientů MeSH
• vzdělávání pacientů jako téma normy   MeSH
• zapojení pacienta MeSH
• zdravotnická zařízení normy   MeSH
• zdravotnické prostředky normy   MeSH
• zlepšení kvality * MeSH
• Check Tag
• lidé MeSH
• Publikační typ
• časopisecké články MeSH
• směrnice pro lékařskou praxi MeSH