• Je něco špatně v tomto záznamu ?

Possibilities and challenges of a large international benchmarking in pediatric diabetology-The SWEET experience

M. Witsch, I. Kosteria, O. Kordonouri, G. Alonso, M. Archinkova, S. Besancon, NH. Birkebæk, N. Bratina, V. Cherubini, R. Hanas, D. Hasnani, V. Iotova, JF. Raposo, A. Schwandt, Z. Sumnik, J. Svensson, H. Veeze, . ,

. 2016 ; 17 Suppl 23 (-) : 7-15.

Jazyk angličtina Země Dánsko

Typ dokumentu časopisecké články, multicentrická studie, přehledy, práce podpořená grantem

Perzistentní odkaz   https://www.medvik.cz/link/bmc18016859

AIM: Despite the existence of evidence-based guidelines for the care of children with diabetes, widespread gaps in knowledge, attitude, and practice remain. The purpose of this paper is to present a review of benchmarking practices and results of this process within SWEET, moreover focusing on current challenges and future directions. METHODS: Biannually, members electronically transfer de-identified clinic data for 37 parameters to the SWEET database. Each center receives benchmarking and data validation reports. RESULTS: In 2015, 48 centers have contributed data for 20 165 unique patients (51.6% male). After exclusion for missing data 19 131 patients remain for further analysis. The median age is 14.2 years, with a median diabetes duration 4.8 years; 96.0% of patients have type 1, 1.1% type 2, and 2.9% other diabetes types. Data completeness has increased over time. In 2015, median HbA1c of all patients' (diabetes type 1) medians was 7.8% (61.7 mmol/mol) with 39.1%, 41.4%, and 19.4% of patients having HbA1c < 7.5% (58 mmol/mol), 7.5%-9% (58-75 mmol/mol) and >9% (75 mmol/mol), respectively. Although HbA1c has been stable over time [7.7%-7.8% (60.7-61.7 mmol/mol)], there remains wide variation between centers. Fourteen centers achieve a median HbA1c <7.5% (58 mmol/mol). CONCLUSIONS: Our vision is that the participation in SWEET is encouraging members to deliver increasingly accurate and complete data. Dissemination of results and prospective projects serve as further motivation to improve data reporting. Comparing processes and outcomes will help members identify weaknesses and introduce innovative solutions, resulting in improved and more uniform care for patients with diabetes.

Citace poskytuje Crossref.org

000      
00000naa a2200000 a 4500
001      
bmc18016859
003      
CZ-PrNML
005      
20210907092028.0
007      
ta
008      
180515s2016 dk f 000 0|eng||
009      
AR
024    7_
$a 10.1111/pedi.12432 $2 doi
035    __
$a (PubMed)27982492
040    __
$a ABA008 $b cze $d ABA008 $e AACR2
041    0_
$a eng
044    __
$a dk
100    1_
$a Witsch, Michael $u DECCP, Clinique Pédiatrique Centre Hospitalier de Luxembourg, Luxembourg, Luxembourg.
245    10
$a Possibilities and challenges of a large international benchmarking in pediatric diabetology-The SWEET experience / $c M. Witsch, I. Kosteria, O. Kordonouri, G. Alonso, M. Archinkova, S. Besancon, NH. Birkebæk, N. Bratina, V. Cherubini, R. Hanas, D. Hasnani, V. Iotova, JF. Raposo, A. Schwandt, Z. Sumnik, J. Svensson, H. Veeze, . ,
520    9_
$a AIM: Despite the existence of evidence-based guidelines for the care of children with diabetes, widespread gaps in knowledge, attitude, and practice remain. The purpose of this paper is to present a review of benchmarking practices and results of this process within SWEET, moreover focusing on current challenges and future directions. METHODS: Biannually, members electronically transfer de-identified clinic data for 37 parameters to the SWEET database. Each center receives benchmarking and data validation reports. RESULTS: In 2015, 48 centers have contributed data for 20 165 unique patients (51.6% male). After exclusion for missing data 19 131 patients remain for further analysis. The median age is 14.2 years, with a median diabetes duration 4.8 years; 96.0% of patients have type 1, 1.1% type 2, and 2.9% other diabetes types. Data completeness has increased over time. In 2015, median HbA1c of all patients' (diabetes type 1) medians was 7.8% (61.7 mmol/mol) with 39.1%, 41.4%, and 19.4% of patients having HbA1c < 7.5% (58 mmol/mol), 7.5%-9% (58-75 mmol/mol) and >9% (75 mmol/mol), respectively. Although HbA1c has been stable over time [7.7%-7.8% (60.7-61.7 mmol/mol)], there remains wide variation between centers. Fourteen centers achieve a median HbA1c <7.5% (58 mmol/mol). CONCLUSIONS: Our vision is that the participation in SWEET is encouraging members to deliver increasingly accurate and complete data. Dissemination of results and prospective projects serve as further motivation to improve data reporting. Comparing processes and outcomes will help members identify weaknesses and introduce innovative solutions, resulting in improved and more uniform care for patients with diabetes.
650    _2
$a mladiství $7 D000293
650    12
$a benchmarking $7 D019985
650    _2
$a dítě $7 D002648
650    _2
$a diabetes mellitus $x epidemiologie $x terapie $7 D003920
650    _2
$a ženské pohlaví $7 D005260
650    _2
$a lidé $7 D006801
650    _2
$a mužské pohlaví $7 D008297
650    _2
$a pediatrie $x normy $7 D010372
655    _2
$a časopisecké články $7 D016428
655    _2
$a multicentrická studie $7 D016448
655    _2
$a přehledy $7 D016454
655    _2
$a práce podpořená grantem $7 D013485
700    1_
$a Kosteria, Ioanna $u Agia Sophia Children's Hospital, University of Athens Medical School, Athens, Greece.
700    1_
$a Kordonouri, Olga $u Diabetes Centre for Children and Adolescents, Kinderkrankenhaus Auf der Bult, Hannover, Germany.
700    1_
$a Alonso, Guy $u Barbara Davis Center for Childhood Diabetes, University of Colorado, Denver, USA.
700    1_
$a Archinkova, Margarita $u Clinic of Endocrinology, Diabetes and Genetics, University Pediatric Hospital, Medical University - Sofia, Bulgaria, Sofia, Bulgaria.
700    1_
$a Besancon, Stephane $u NGO, Santé Diabète Délégation Mali, Bamako, Mali.
700    1_
$a Birkebæk, Niels H $u Department of Paediatrics, Aarhus University Hospital, Skejby, Department of Pediatrics, Aarhus, Denmark.
700    1_
$a Bratina, Natasa $u Department of Pediatric Endocrinology, Diabetes and Metabolic Diseases, University Children's Hospital, Ljubljana, Slovenia.
700    1_
$a Cherubini, Valentino $u Department of Women's and Children's Health, G. Salesi Hospital, Ancona, Italy.
700    1_
$a Hanås, Ragnar, $u Department of Pediatrics, NU Hospital Group, Uddevalla, Sweden. $d 1951- $7 xx0263839
700    1_
$a Hasnani, Dhruvi $u Diacare-Diabetes Care & Hormone Clinic, Ahmedabad, India.
700    1_
$a Iotova, Violeta $u First Clinic of Pediatric Endocrinology, University Hospital 'Sv. Marina', Varna, Bulgaria.
700    1_
$a Raposo, João Filipe $u APDP - Portuguese Diabetes Association, Lisbon, Portugal.
700    1_
$a Schwandt, Anke $u Institute of Epidemiology and Medical Biometry, ZIBMT, University of Ulm, Ulm, Germany. German Center for Diabetes Research (DZD), Munich, Germany.
700    1_
$a Sumnik, Zdenek $u Department of Pediatrics, University Hospital Motol Prague, Prague, Czech Republic.
700    1_
$a Svensson, Jannet $u Pediatric Department, Herlev University Hospital, Copenhagen, Denmark.
700    1_
$a Veeze, Henk $u Centre for Pediatric and Young Adult Diabetes Care and Research, Rotterdam, The Netherlands.
700    1_
$a ,
773    0_
$w MED00181048 $t Pediatric diabetes $x 1399-5448 $g Roč. 17 Suppl 23, č. - (2016), s. 7-15
856    41
$u https://pubmed.ncbi.nlm.nih.gov/27982492 $y Pubmed
910    __
$a ABA008 $b sig $c sign $y a $z 0
990    __
$a 20180515 $b ABA008
991    __
$a 20210907092024 $b ABA008
999    __
$a ok $b bmc $g 1300483 $s 1013699
BAS    __
$a 3
BAS    __
$a PreBMC
BMC    __
$a 2016 $b 17 Suppl 23 $c - $d 7-15 $i 1399-5448 $m Pediatric diabetes $n Pediatr Diabetes $x MED00181048
LZP    __
$a Pubmed-20180515
Zpět

Najít záznam

Citační ukazatele

Možnosti archivace