Place of death of people living with Parkinson's disease: a population-level study in 11 countries
Jazyk angličtina Země Anglie, Velká Británie Médium electronic
Typ dokumentu časopisecké články, práce podpořená grantem
PubMed
25990567
PubMed Central
PMC4446023
DOI
10.1186/s12904-015-0021-3
PII: 10.1186/s12904-015-0021-3
Knihovny.cz E-zdroje
- MeSH
- charakteristiky bydlení MeSH
- lidé středního věku MeSH
- lidé MeSH
- lůžková kapacita nemocnice MeSH
- nemocnice statistika a číselné údaje MeSH
- Parkinsonova nemoc mortalita MeSH
- péče o umírající statistika a číselné údaje MeSH
- pečovatelské domovy statistika a číselné údaje MeSH
- příčina smrti MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- sexuální faktory MeSH
- smrt * MeSH
- socioekonomické faktory MeSH
- srovnání kultur MeSH
- úmrtní listy MeSH
- věkové faktory MeSH
- Check Tag
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
BACKGROUND: Most people prefer to receive end-of-life care in familiar surroundings rather than in hospital. This study examines variation in place of death for people dying from Parkinson's disease (PD) across 11 European and non-European countries. METHODS: Using death certificate data of 2008 for Belgium, France, Italy, Hungary, Czech Republic, New Zealand, USA, Canada, Mexico, South Korea and Spain for all deaths with PD as an underlying cause (ICD-10 code: G20) cross-national differences in place of death were examined. Associations between place of death and patient socio-demographic and regional characteristics were evaluated using multivariable binary logistic regression analyses. RESULTS: The proportion of deaths in hospital ranged from 17% in the USA to 75% in South Korea. Hospital was the most prevalent place of death in France (40%), Hungary (60%) and South Korea; nursing home in New Zealand (71%), Belgium (52%), USA (50%), Canada (48%) and Czech Republic (44%); home in Mexico (73%), Italy (51%) and Spain (46%). The chances of dying in hospital were consistently higher for men (Belgium, France, Italy, USA, Canada), those younger than 80 years (Belgium, France, Italy, USA, Mexico), and those living in areas with a higher provision of hospital beds (Italy, USA). CONCLUSIONS: In several countries a substantial proportion of deaths from PD occurs in hospitals, although this may not be the most optimal place of terminal care and death. The wide variation between countries in the proportion of deaths from PD occurring in hospital indicates a potential for many countries to reduce these proportions.
Brown University Department of Community Health Rhode Island USA
Center for Palliative Care Prague Czech Republic
Dongduk Women's University Seoul Korea
French National Observatory on End of Life Care Paris France
Hospice Waikato Hamilton New Zealand
Italian National Institute of Statistics Rome Italy
The University of Texas MD Anderson Cancer Center Houston TX USA
University of Alberta Edmonton Alberta Canada
University of Pécs Medical School Pécs Hungary
Vrije Universiteit Brussel and Ghent University End of Life Care Research Group Brussels Belgium
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von Campenhausen S, Bornschein B, Wick R, Bötzel K, Sampaio C, Poewe W, et al. Prevalence and incidence of Parkinson's disease in Europe. Eur Neuropsychopharmacol. 2005;15:473–90. doi: 10.1016/j.euroneuro.2005.04.007. PubMed DOI
Anderson H, Ward C, Eardley A, Gomm S, Connolly M, Coppinger T, et al. The concerns of patients under palliative care and a heart failure clinic are not being met. Palliat Med. 2001;15:279–86. doi: 10.1191/026921601678320269. PubMed DOI
Gorell J, Johnson C, Rybicki B. Parkinson's disease and its comorbid disorders: An analysis of Michigian mortality data, 1970 to 1990. Neurology. 1994;44:1865–8. doi: 10.1212/WNL.44.10.1865. PubMed DOI
Lokk J, Delbari A. Clinical aspects of palliative care in advanced Parkinson's disease. BMC Palliative Care. 2012;11(20):1–8. PubMed PMC
Wilson D, Smith S, Aderson M, Northcott HC, Fainsinger R, Stingl M, et al. Twentieth-century social and health-care influences on location of death in Canada. Can J Nurs Res. 2002;34:141–61. PubMed
Beccaro M, Constantini M, Giorgi Rossi P, Miccinesi G, Grimaldi M, Bruzzi P, et al. Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC) J Epidemiol Community Health. 2006;60:412–6. doi: 10.1136/jech.2005.043646. PubMed DOI PMC
Gomes B, Calanzani N, Gysels M, Hall S, Higginson I. Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliative Care. 2013;12(7):1–13. PubMed PMC
Sachs G, Shega J, Cox-Hayley D. Barriers to excellent end-of-life care for patients with dementia. J Gen Intern Med. 2004;19:1057–63. doi: 10.1111/j.1525-1497.2004.30329.x. PubMed DOI PMC
Cohen J: IPoD - International Study of Place of Death (FWO). Available fromhttp://www.endoflifecare.be/ipod. Accessed 16-11-2012.
Gomes B, Higginson I. Factors influencing death at home in terminally ill patients with cancer: Systematic review. Br Med J. 2006;7540:515–8. doi: 10.1136/bmj.38740.614954.55. PubMed DOI PMC
World Health Organization: WHO International Classification of Diseases (ICD). Available from:http://www.who.int/classifications/icd/en/. Accessed 15-09-2013.
Cohen J, Bilsen J, Miccinesi G, Löfmark R, Addington-Hall J, Kaasa S, et al. Using death certificate data to study place of death in 9 European countries: opportunities and weaknesses. BMC Public Health. 2007;7(283):1–9. PubMed PMC
Phillips N, Reay J, Martyn C. Validity of mortality data for Parkinson’s disease. J Epidemiol Community Health. 1999;53(9):587–8. doi: 10.1136/jech.53.9.587. PubMed DOI PMC
Elman L, Houghton D, Wu G, Hurtig H, Markowitz C, McCluskey L. Palliative care in amyothrophic lateral sclerosis, Parkinson's disease, and multiple sclerosis. J Palliative Med. 2007;10(2):433–57. doi: 10.1089/jpm.2006.9978. PubMed DOI
Murtagh F, Bausewein C, Petkova H, Sleeman K, Dodd R, Gysels M, et al. Understanding place of death for patients with non malignant conditions: a systematic literature review. NIHR Service Delivery and Organisation Programme final report. 2011:299.
Kwon S. The introduction of long-term care insurance in South Korea. Eurohealth. 2009;15(1):28–9.
Joël M, Dufour-Kippelen S, Duchêne C, Marmier M: The long-term care system for the elderly in France. ENEPRI Research Report no. 77. ANCIEN project. 2010:32.
Houttekier D, Cohen J, Surkyn K, Deliens L. Study of recent and future trends in place of death in Belgium using death certificate data: a shift from hospitals to care homes. BMC Public Health. 2011;11(228):1–10. PubMed PMC
Teno J, Grunier A, Schwartz Z, Nanda A, Wetle T. Association between advance directives and quality of end-of-life care. J Am Geriatr Soc. 2007;55(2):189–94. doi: 10.1111/j.1532-5415.2007.01045.x. PubMed DOI
Vandervoort A, Van den Block L, van der Steen J, Vander Stichele R, Bilsen J, Deliens L. Advance directives and physicians’ orders in nursing home resident with dementia in Flanders, Belgium: prevalence and associated outcomes. Int Psychogeriatr. 2012;24(7):1133–43. doi: 10.1017/S1041610212000142. PubMed DOI
Cohen J, Houttekier D, Onwuteaka-Philipsen B, Miccinesi G, Addington-Hall J, Kaasa S, et al. Which patients with cancer die at home? A study of six European countries using death certificate data. J Clin Oncol. 2010;28(13):2267–73. doi: 10.1200/JCO.2009.23.2850. PubMed DOI
Perkins H, Cortez J, Hazuda H. Advance care planning: does patient gender make a difference? Am J Med Sci. 2004;327(1):25–32. doi: 10.1097/00000441-200401000-00006. PubMed DOI
Constantini M, Beccaro M, Merlo F. The last three months of life of Italian cancer patients: Methods, sample characteristics and response of the Italian Survey of the Dying of Cancer (ISDOCI) Palliat Med. 2005;19:628–38. doi: 10.1191/0269216305pm1086oa. PubMed DOI
Alonso-Babarro A, Bruera E, Varela-Cerdeira M, Boya-Cristia M, Madero R, Torres-Vigil I, et al. Can this patient be discharged home? Factors associated with at- home death among patients with cancer. J Clin Oncol. 2011;29(9):1159–67. doi: 10.1200/JCO.2010.31.6752. PubMed DOI PMC
Ruelas E. Health care quality improvement in Mexico: challenges, opportunities, and progress. BUMC Proceed. 2002;15:319–22. PubMed PMC
Csikos A, Mastrojohn J, Albanese T, Moeller J, Radwany S, Busa C. Physicians’ beliefs and attitudes about end-of-life care: a comparison of selected regions in Hungary and the United States. J Pain Symptom Manage. 2010;39(1):76–87. doi: 10.1016/j.jpainsymman.2009.05.019. PubMed DOI
Lynch T, Connor S, Clark D. Mapping levels of palliative care development: a global update. J Pain Symptom Manage. 2013;45(6):1094–106. doi: 10.1016/j.jpainsymman.2012.05.011. PubMed DOI
O’Leary N, Tierman E. Survey of specialist palliative care services for noncancer patients in Ireland and perceived barriers. Palliat Med. 2008;22(1):77–83. doi: 10.1177/0269216307084609. PubMed DOI