Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma

. 2019 ; 9 () : 16. [epub] 20190311

Status PubMed-not-MEDLINE Jazyk angličtina Země Velká Británie, Anglie Médium electronic-ecollection

Typ dokumentu časopisecké články, přehledy

Perzistentní odkaz   https://www.medvik.cz/link/pmid30911372

AIMS: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. METHODS: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. STAKEHOLDERS: Include patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors. RESULTS: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU GRANTS 2018: MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). LESSONS LEARNT: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.

Academic Medical Center Univ of Amsterdam Amsterdam The Netherlands

Allergist La Rochelle France

Allergist Mexico City Mexico

Allergist Reims France

Allergy Center CUF Descobertas Hospital Lisbon Portugal

Allergy Department 2nd Pediatric Clinic Athens General Children's Hospital P and A Kyriakou University of Athens Athens Greece

Allergy Department Pasteur Institute Paris France

Allergy Section Department of Internal Medicine Hospital Vall 'dHebron and ARADyAL Research Network Barcelona Spain

Allergy Unit Department of Dermatology University Hospital of Zurich Zurich Switzerland

Association Asthme et Allergie Paris France

Association of Finnish Pharmacies Helsinki Finland

Asthma Reference Center Escola Superior de Ciencias da Santa Casa de Misericordia de Vitoria Vitória Esperito Santo Brazil

Asthma UK Centre for Applied Research The Usher Institute of Population Health Sciences and Informatics The University of Edinburgh Edinburgh UK

Asthma UK Mansell Street London UK

Berlin Institute of Health Comprehensive Allergy Centre Department of Dermatology and Allergy Member of GA2LEN Berlin Germany

Center for Research in Health Technology and Information Systems Faculdade de Medicina da Universidade do Porto Medida Lda Porto Portugal

Center for Rhinology and Allergology Wiesbaden Germany

Center of Excellence in Asthma and Allergy Médica Sur Clinical Foundation and Hospital Mexico City Mexico

Centre for Clinical Research Sörmland Uppsala University Eskilstuna Sweden

CHU de Grenoble Grenoble France

CHU Dijon Dijon France

CIBER Epidemiología y Salud Pública Barcelona Spain

CIRFF Federico 2 University Naples Italy

Clinic of Children's Diseases and Institute of Health Sciences Department of Public Health Vilnius University Institute of Clinical Medicine Vilnius Lithuania

Clinic of Children's Diseases Faculty of Medicine Vilnius University Vilnius Lithuania

Clinic of Infectious Chest Diseases Dermatology and Allergology Vilnius University Vilnius Lithuania

Clinical and Experimental Respiratory Immunoallergy IDIBAPS CIBERES University of Barcelona Barcelona Spain

Clinical Medecine Laval's University Quebec City Canada

Clinical Reserch Center for Allergy and Rheumatology Sagamihara National Hospital Sagamihara Japan

Conseil Général de l'Economie Ministère de l'Economie de l'Industrie et du Numérique Paris France

Consortium of Pharmacies and Services COSAFER Salerno Italy

Corporate Member of Freie Universität Berlin Humboldt Uniersität zu Berlin Charité Universitätsmedizin Berlin Berlin Germany

CRI Clinical Research International Ltd Hamburg Germany

Department of Allergy and Immunology Hospital Quirón Bizkaia Erandio Spain

Department of Allergy Immunology and Respiratory Medicine Alfred Hospital and Central Clinical School Monash University Melbourne VIC Australia

Department of Clinical Science and Education Södersjukhuset Karolinska Institutet Stockholm Sweden

Department of Dermatology and Allergy Centre Odense University Hospital Odense Research Center for Anaphylaxis Odense Denmark

Department of ENT Medical University of Graz Graz Austria

Department of Geriatrics Montpellier University Hospital Montpellier France

Department of Health Research Methods Evidence and Impact Division of Immunology and Allergy McMaster University Hamilton ON Canada

Department of Immunology Monash University Melbourne VIC Australia

Department of Internal Medicine and Allergic Clinic of Professor Polydoro Ernani de Sao Thiago University Hospital Federal University of Santa Catarina Florianópolis Brazil

Department of Internal Medicine Medical University of Graz Graz Austria

Department of Lung Diseases and Clinical Immunology Terveystalo Allergy Clinic University of Turku Turku Finland

Department of Medical Sciences Allergy and Clinical Immunology Unit University of Torino and Mauriziano Hospital Turin Italy

Department of Medicine Clinical Immunology and Allergy McMaster University Hamilton ON Canada

Department of Medicine Surgery and Dentistry Scuola Medica Salernitana University of Salerno Salerno Italy

Department of Otolaryngology Head and Neck Surgery University of Mainz Mainz Germany

Department of Otorhinolaryngology Amsterdam University Medical Centre Amsterdam The Netherlands

Department of Otorhinolaryngology Chiba University Hospital Chiba Japan

Department of Otorhinolaryngology Head and Neck Surgery Section of Rhinology and Allergy University Hospital Marburg Phillipps Universität Marburg Marburg Germany

Department of Otorhinolaryngology Univ Hospitals Leuven Louvain Belgium

Department of Otorhinolaryngology University of Crete School of Medicine Heraklion Greece

Department of Prevention of Envinronmental Hazards and Allergology Medical University of Warsaw Warsaw Poland

Department of Public Health and Primary Care Leiden University Medical Center Leiden The Netherlands

Department of Pulmonary Diseases Cerrahpasa Faculty of Medicine Istanbul University Cerrahpasa Istambul Turkey

Department of Pulmonary Diseases Faculty of Medicine Celal Bayar University Manisa Turkey

Department of Respiratory Medicine Ghent University Hospital Ghent Belgium

Department of Respiratory Medicine University Hospital Olomouc Olomouc Czech Republic

Director of Center of Allergy Immunology and Respiratory Diseases Santa Fe Argentina Center for Allergy and Immunology Santa Fe Argentina

Division for Health Innovation Campania Region and Federico 2 University Hospital Naples Naples Italy

Division of Allergy Immunology University of South Florida Tampa USA

Division of Infection Immunity and Respiratory Medicine Royal Manchester Children's Hospital University of Manchester Manchester UK

Division of Internal Medicine Asthma and Allergy Barlicki University Hospital Medical University of Lodz Lodz Poland

EA 2991 Euromov University Montpellier Montpellier France

EFA European Federation of Allergy and Airways Diseases Patients' Associations Brussels Belgium

Epidemiology of Allergic and Respiratory Diseases Department Institute Pierre Louis of Epidemiology and Public Health INSERM Sorbonne Université Medical School Saint Antoine Paris France

Euforea Brussels Belgium

European Academy of Paediatrics Brussels Belgium

Faculty of Health Sciences and CICS UBI Health Sciences Research Centre University of Beira Interior Covilhã Portugal

Faculty of Medicine Transylvania University Brasov Romania

Faculty of Medicine Vilnius University Vilnius Lithuania

FILHA Finnish Lung Association Helsinki Finland

Health Planning Unit Department of Social Medicine Faculty of Medicine University of Crete Crete Greece

Honorary Clinical Research Fellow Allergy and Respiratory Research Group Usher Institute of Population Health Sciences and Informatics Medical School University of Edinburgh Edinburgh UK

Honorary Research Fellow OPC Cambridge UK

Hospital General Regional 1 Dr Carlos Mc Gregor Sanchez Navarro IMSS Mexico City Mexico

Humboldt Universität zu Berlin Berlin Institute of Health Comprehensive Allergy Center Department of Dermatology and Allergy Charité Universitätsmedizin Berlin Berlin Germany

IMIM Barcelona Spain

Imunoalergologia Centro Hospitalar Universitário de Coimbra and Faculty of Medicine University of Coimbra Coimbra Portugal

INSERM U 1168 VIMA Ageing and Chronic Diseases Epidemiological and Public Health Approaches Villejuif Université Versailles St Quentin en Yvelines UMR S 1168 Montigny Le Bretonneux France

Inserm U1061 Montpellier France

Institute of Medical Statistics and Computational Biology Medical Faculty University of Cologne Cologne Germany

International Primary Care Respiratory Group IPCRG Aberdeen Scotland UK

iQ4U Consultants Ltd London UK

ISGlobAL Centre for Research in Environmental Epidemiology Barcelona Spain

Johns Hopkins School of Medicine Baltimore MD USA

KYomed INNOV Montpellier France

Laboratoire HP2 Grenoble INSERM U1042 Université Grenoble Alpes Grenoble France

MACVIA France Fondation Partenariale FMC VIA LR CHU Arnaud de Villeneuve 371 Avenue du Doyen Gaston Giraud 34295 Montpellier Cedex 5 France

Medecine Department Hôpital de la Malbaie Quebec Canada

Medical Communications Consultant MedScript Ltd Dundalk Ireland

Medical Consulting Czarlewski Levallois France

Nova Southeastern University Fort Lauderdale FL USA

Peercode BV Geldermalsen The Netherlands

Personalized Medicine Clinic Asthma and Allergy Humanitas Research Hospital Humanitas University Rozzano Milan Italy

Pneumologie et Soins Intensifs Respiratoires Hôpitaux Universitaires Paris Centre Hôpital Cochin Paris France

ProAR Nucleo de Excelencia em Asma Federal University of Bahia Vitória da Conquista Brazil

Quebec Heart and Lung Institute Laval University Québec City QC Canada

Rhinology Unit and Smell Clinic ENT Department Hospital Clínic University of Barcelona Barcelona Spain

Sachs' Children and Youth Hospital Södersjukhuset Stockholm and Institute of Environmental Medicine Karolinska Institutet Stockholm Sweden

Section of Allergy and Immunology Saint Louis University School of Medicine Saint Louis MO USA

Servicio de Alergia e Immunologia Clinica Santa Isabel Buenos Aires Argentina

Skin and Allergy Hospital Helsinki University Hospital University of Helsinki Helsinki Finland

Sleep Unit Department of Neurology Hôpital Gui de Chauliac Montpellier Montpellier France

SOS Allergology and Clinical Immunology USL Toscana Centro Prato Italy

The Usher Institute of Population Health Sciences and Informatics The University of Edinburgh Edinburgh UK

UCIBIO REQUINTE Faculty of Pharmacy and Competence Center on Active and Healthy Ageing University of Porto Porto Portugal

Unit of Geriatric Immunoallergology University of Bari Medical School Bari Italy

Universidad Católica de Córdoba Córdoba Argentina

Universitat Pompeu Fabra Barcelona Spain

University of Sydney and Woolcock Emphysema Centre and Local Health District Woolcock Institute of Medical Research Glebe NSW Australia

Upper Airways Research Laboratory ENT Dept Ghent University Hospital Ghent Belgium

UPRES EA220 Pôle des Maladies des Voies Respiratoires Hôpital Foch Université Paris Saclay Suresnes France

WHO GARD Planning Group Salvador Brazil

Erratum v

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