Real-world operation of multiple sclerosis centres in Central-Eastern European countries covering 107 million inhabitants
Jazyk angličtina Země Nizozemsko Médium print-electronic
Typ dokumentu přehledy, časopisecké články
PubMed
36413917
DOI
10.1016/j.msard.2022.104406
PII: S2211-0348(22)00910-5
Knihovny.cz E-zdroje
- Klíčová slova
- Central-Eastern Europe, Disease modifying therapy, Epidemiology, Multiple sclerosis, Registry,
- MeSH
- lidé MeSH
- neurologie * MeSH
- průzkumy a dotazníky MeSH
- roztroušená skleróza * epidemiologie terapie MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- přehledy MeSH
- Geografické názvy
- Česká republika MeSH
- Evropa epidemiologie MeSH
BACKGROUND: In 2018 multiple sclerosis (MS) care unit (MSCU) recommendations were defined. Nevertheless, the information on MS care, and whether MS centres fulfil the international recommendation is limited. Thus our objectives were to assess whether centres meet the MSCU recommendations and gain a comprehensive overview of MS care in Central-Eastern European countries. METHODS: A self-report questionnaire assessing aspects of the MSCU recommendations, disease-modifying therapy (DMT) and registry use and the patient number was assembled and sent to nine Central-Eastern European countries. Furthermore, one Danish and one German centre were contacted as a reference. RESULTS: In 9/9 countries, MS care was pursued in centres by MS neurologists and MS nurses. In Austria and the Czech Republic, management of MS was conducted under strict regulations displaying a referral centre system, fundamentally similar to but independent of the MSCU criteria. Several centres fulfilled all aspects of the MSCU criteria, while others had similar insufficiencies consisting of a speech therapist, continence, pain and spasticity specialist, neuro-ophthalmologist, and oto-neurologist. In 9/9 countries, DMTs were reimbursed. However, some centres did not provide every available DMT. A national registry was available in 4/9 countries with mandatory registry use only in Austria and the Czech Republic. CONCLUSION: In countries where MSCU recommendations are not fulfilled, a strictly regulated centre system similar to the Austrian and Czech model with a registry-based quality control might ensure appropriate care for people with MS.
Clinic of Neurology University Clinical Centre of Serbia Belgrade Serbia
Danish Multiple Sclerosis Center Copenhagen University Hospital Rigshospitalet Copenhagen Denmark
Department of Neurology Medical University of Lublin Lublin Poland
Department of Neurology Medical University of Vienna Vienna Austria
Department of Neurology School of Medicine Technical University Munich Munich Germany
Department of Neurology University Clinical Centre Ljubljana Ljubljana Slovenia
Department of Neurology University Hospital Bucharest Bucharest Romania
Department of Neurology University Hospital Sestre Milosrdnice Zagreb Croatia
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