"I'm telling you my story, not publishing a blog": Considerations and suggestions on data sharing in qualitative health psychology research on sensitive topics
Jazyk angličtina Země Velká Británie, Anglie Médium print-electronic
Typ dokumentu časopisecké články
- Klíčová slova
- data sharing, ethics, informed consent, older adults, qualitative methods, sexuality,
- MeSH
- behaviorální lékařství MeSH
- informovaný souhlas pacienta MeSH
- kvalitativní výzkum * MeSH
- lidé středního věku MeSH
- lidé MeSH
- rozhovory jako téma MeSH
- senioři MeSH
- sexualita psychologie MeSH
- šíření informací * MeSH
- Check Tag
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
Qualitative research plays a pivotal role in health psychology, offering insights into the intricacies of health-related issues. However, the specificity of qualitative methodology presents challenges in adhering to standard open science principles, including data sharing. The guidelines to address these issues are limited. Drawing from the author's experience in conducting in-depth interviews with middle-aged and older adults regarding their sexuality, this article discusses various challenges in implementing data sharing requirements. It emphasizes factors like participants' reasonable reluctance to share in specific populations, the depth of personal information gleaned from comprehensive interviews, concerns surrounding potential data misuse both within and outside academic circles, and the complex issue of obtaining informed consent. A universal approach to data sharing in qualitative research proves impractical, emphasizing the necessity for adaptable, context-specific guidelines that acknowledge the methodology's nuances. Striking a balance between transparency and ethical responsibility requires tailored strategies and thoughtful consideration.
Institute of Psychology Faculty of Philosophy Jagiellonian University Kraków Poland
Psychology Research Institute Faculty of Social Studies Masaryk University Brno Czechia
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