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Autor
Askling, Johan 1 Balanescu, Andra 1 Burmester, Gerd R 1 Carmona, Loreto 1 Chatzidionysiou, Katerina 1 Dixon, William G 1 Dougados, Maxime 1 Finckh, Axel 1 Gossec, Laure 1 Haugeberg, Glenn 1 Hetland, Merete Lund 1 Hyrich, Kimme L 1 Nikiphorou, Elena 1 Oliver, Susan 1 Porter, Duncan 1 Radner, Helga 1 Raza, Karim 1 Ryan, Patrick 1 Santos, Maria Jose 1 Williamson, Paula R 1
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Pracoviště
Academic Rheumatology Department King... 1 Arthritis Research UK Centre for Epid... 1 Center for Rheumatology and Spine Dis... 1 Department of Biomedical Informatics ... 1 Department of Biostatistics MRC North... 1 Department of Internal Medicine 3 Div... 1 Department of Patient and Care Maastr... 1 Department of Rheumatology Bernhoven ... 1 Department of Rheumatology Hospital G... 1 Department of Rheumatology Karolinska... 1 Department of Rheumatology Leiden Uni... 1 Department of Rheumatology Martina Ha... 1 Department of Rheumatology North Devo... 1 Department of Rheumatology and Clinic... 1 Division of Rheumatology Department o... 1 Institute of Inflammation and Ageing ... 1 Institute of Rheumatology Institute o... 1 Instituto de Salud Musculoesquelética... 1 Medicine Faculty APHP Rheumatology B ... 1 NIHR Manchester Musculoskeletal Biome... 1
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Autor
Askling, Johan 1 Balanescu, Andra 1 Burmester, Gerd R 1 Carmona, Loreto 1 Chatzidionysiou, Katerina 1 Dixon, William G 1 Dougados, Maxime 1 Finckh, Axel 1 Gossec, Laure 1 Haugeberg, Glenn 1 Hetland, Merete Lund 1 Hyrich, Kimme L 1 Nikiphorou, Elena 1 Oliver, Susan 1 Porter, Duncan 1 Radner, Helga 1 Raza, Karim 1 Ryan, Patrick 1 Santos, Maria Jose 1 Williamson, Paula R 1
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Pracoviště
Academic Rheumatology Department King... 1 Arthritis Research UK Centre for Epid... 1 Center for Rheumatology and Spine Dis... 1 Department of Biomedical Informatics ... 1 Department of Biostatistics MRC North... 1 Department of Internal Medicine 3 Div... 1 Department of Patient and Care Maastr... 1 Department of Rheumatology Bernhoven ... 1 Department of Rheumatology Hospital G... 1 Department of Rheumatology Karolinska... 1 Department of Rheumatology Leiden Uni... 1 Department of Rheumatology Martina Ha... 1 Department of Rheumatology North Devo... 1 Department of Rheumatology and Clinic... 1 Division of Rheumatology Department o... 1 Institute of Inflammation and Ageing ... 1 Institute of Rheumatology Institute o... 1 Instituto de Salud Musculoesquelética... 1 Medicine Faculty APHP Rheumatology B ... 1 NIHR Manchester Musculoskeletal Biome... 1
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NLK
ProQuest Central
od 1939-01-01 do Před 6 měsíci
Health & Medicine (ProQuest)
od 1939-01-01 do Před 6 měsíci
Family Health Database (ProQuest)
od 1939-01-01 do Před 6 měsíci
PubMed
29301783
DOI
10.1136/annrheumdis-2017-212256
Knihovny.cz E-zdroje
Personalised medicine, new discoveries and studies on rare exposures or outcomes require large samples that are increasingly difficult for any single investigator to obtain. Collaborative work is limited by heterogeneities, both what is being collected and how it is defined. To develop a core set for data collection in rheumatoid arthritis (RA) research which (1) allows harmonisation of data collection in future observational studies, (2) acts as a common data model against which existing databases can be mapped and (3) serves as a template for standardised data collection in routine clinical practice to support generation of research-quality data. A multistep, international multistakeholder consensus process was carried out involving voting via online surveys and two face-to-face meetings. A core set of 21 items ('what to collect') and their instruments ('how to collect') was agreed: age, gender, disease duration, diagnosis of RA, body mass index, smoking, swollen/tender joints, patient/evaluator global, pain, quality of life, function, composite scores, acute phase reactants, serology, structural damage, treatment and comorbidities. The core set should facilitate collaborative research, allow for comparisons across studies and harmonise future data from clinical practice via electronic medical record systems.
- MeSH
- konsensus MeSH
- lidé MeSH
- pozorovací studie jako téma metody normy MeSH
- revmatoidní artritida * MeSH
- sběr dat metody normy MeSH
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- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- konsensus - konference MeSH
- práce podpořená grantem MeSH
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