BACKGROUND: Due to the aging of the population, the promotion of healthy aging is an important part of public health. Healthy aging of the population can be influenced by the attitudes of the elderly themselves towards old age and aging. The aim of this cross-sectional study was to find out the attitudes of older people living in a community environment toward old age and the predictors that influence these attitudes. METHODS: The evaluation of attitudes towards old age using the WHO AAQ (Attitudes to Aging Questionnaire) questionnaire involved 1,174 elderly people living in the community. Age, sex, marital status, education, subjective health assessment, social support, depression (GDS-15), anxiety (GAI), sense of coherence (SOC-13) and self-esteem (RSES) were used to evaluate related factors. RESULTS: As part of the exploratory factor analysis, a three-factor model (Psychosocial Loss, Physical Change, and Psychological Growth) was confirmed. The Cronbach alpha was found to be acceptable (α = 0.835). The predictors of better AAQ in the Psychological Loss domain were: subjective health, age, quality of life, self-esteem, sense of coherence, life satisfaction, anxiety, and social support; in the Physical Change domain: subjective health, quality of life, self-esteem, life satisfaction, cohabitation, and depression; and in the Psychological Growth domain: age, self-esteem, sense of coherence, life satisfaction, and social support. CONCLUSION: Preventive and policy measures should aim to increase the satisfaction and self-assessment of the elderly, which can help them evaluate the period of old age more positively. It is also important to create a positive perspective of ageing and elderly in society.
- Klíčová slova
- Aging, Attitudes, Older people, Quality of life,
- MeSH
- kvalita života * psychologie MeSH
- lidé MeSH
- postoj MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- sebepojetí MeSH
- senioři MeSH
- stárnutí * psychologie MeSH
- Check Tag
- lidé MeSH
- senioři MeSH
- Publikační typ
- časopisecké články MeSH
OBJECTIVES: The aim of the research was to identify the most frequent symptoms of patients with progressive neurological disease (PND) in relation to their functional state. Another objective was to determine the effects of consultations with a multidisciplinary palliative team on mitigating the symptoms burden, subjective evaluation of health, disease progression and improvement of the functional state. METHODS: The interventional control study included 151 patients with PND (98 patients in the intervention group, 53 patients in the control group). The intervention group was provided with consultations of a multidisciplinary palliative team. The symptoms scale of the progressive neurological diseases quality of life was used to collect data. The patients completed the questionnaire before the provided intervention and 3 months after that. RESULTS: Pain and fatigue were identified as the symptoms that trouble the patients the most. After the intervention, there was a determined statistically significant improvement in the evaluation of 9 out of 11 symptoms (except excretion and urination) among the patients from the intervention group compared with the control group. When assessed again, the patients from the intervention group showed an improvement with respect to six symptoms (pain, fatigue, tremor, stiffness, cramps, excretion), while the patients from the control group had six symptoms that deteriorated (drowsiness, dyspnoea, stiffness, swallowing, salivation, excretion). There was not any confirmed positive impact of the intervention on the cognitive functions of the patients. CONCLUSION: The provision of consultations with the multidisciplinary palliative team to patients with PND in an advanced stage of disease resulted in decreasing their symptoms burden and improving their functional state.
- Klíčová slova
- end-of-life care, neurological conditions, symptoms and symptom management,
- MeSH
- bolest MeSH
- hospicová a paliativní ošetřovatelská péče * MeSH
- kvalita života psychologie MeSH
- lidé MeSH
- paliativní péče * metody MeSH
- únava MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
BACKGROUND: Evaluation of life satisfaction of older people using standardised tools can play a crucial role in evaluating the effectiveness of policy measures aimed at mitigating the effects of population aging. OBJECTIVES: The aim of the study was to verify the psychometric properties of the Czech version of a 12-item scale (the Life Satisfaction Index for the Third Age) for older people living in the community. METHODS: The research involved 1113 older people from the Moravian-Silesian Region over 60 years of age living in a home environment. For the newly created Czech version of LSITA-SF12, we tested validity (construct validity and convergent validity) and reliability (internal consistency). RESULTS: We confirmed a single-factor model for the LSITA-SF12 scale (χ2 = 71.33, p < .001, CFI = 0.995, TLI = 0.994, RMSEA = 0.065, SRMR = 0.056, GFI = 0.999) by confirmatory factor analysis and load factor analysis (values of explorations ≥0.45). The internal consistency of the scale was satisfactory (α = 0.878). Furthermore, there was a medium correlation rate (r = 0.592; p < .001) between the overall score of the LSITA-SF and quality-of-life score (OPQoL-Brief). CONCLUSIONS: We found the Czech version of the LSITA-SF12 questionnaire to have satisfactory psychometric properties. The questionnaire is suitable for use in research and clinical practice to evaluate the effectiveness of preventive measures. CLINICAL TRIAL REGISTRATION: ClinicalTrials.gov. PRS Protocol Registration and Results System; NCT05637177. IMPLICATION FOR PRACTICE: The LSITA_SF12 questionnaire can beadministered by a community gerontological nurse and can be used in clinicalpractice and research.
- Klíčová slova
- life satisfaction, older people, reliability, validity,
- MeSH
- kvalita života * MeSH
- lidé středního věku MeSH
- lidé MeSH
- osobní uspokojení * MeSH
- průzkumy a dotazníky MeSH
- psychometrie MeSH
- reprodukovatelnost výsledků MeSH
- senioři MeSH
- Check Tag
- lidé středního věku MeSH
- lidé MeSH
- senioři MeSH
- Publikační typ
- časopisecké články MeSH
- Geografické názvy
- Česká republika MeSH
Neurological diseases cause physical, psychosocial, and spiritual or existential suffering from the time of their diagnosis. Palliative care focuses on improving quality of life for people with serious illness and their families by addressing this multidimensional suffering. Evidence from clinical trials supports the ability of palliative care to improve patient and caregiver outcomes by the use of outpatient or home-based palliative care interventions for people with motor neuron disease, multiple sclerosis, or Parkinson's disease; inpatient palliative care consultations for people with advanced dementia; telephone-based case management for people with dementia in the community; and nurse-led discussions with decision aids for people with advanced dementia in long-term care. Unfortunately, most people with neurological diseases do not get the support that they need for their palliative care under current standards of healthcare. Improving this situation requires the deployment of routine screening to identify individual palliative care needs, the integration of palliative care approaches into routine neurological care, and collaboration between neurologists and palliative care specialists. Research, education, and advocacy are also needed to raise standards of care.
OBJECTIVES: The aim of this cross-sectional study was to determine the life satisfaction of older people living in a home environment and to find out what predictors influence it. METHODS: The research involved 1,121 older people 60 years and above from the Moravian-Silesian region who live in a home environment. The short form of the Life Satisfaction Index for the Thirds Age (LSITA-SF12) was used to assess life satisfaction. The Geriatric depression scale (GDS-15), the Geriatric Anxiety Inventory Scale (GAI), The Sense of Coherence Scale (SOC-13), and the Rosenberg Self-Esteem Scale (RSES) were used to evaluate related factors. In addition, age, gender, marital status, education, social support, and subjective health assessment were evaluated. RESULTS: The overall life satisfaction score was found to be 36.34 (s = 8.66). The satisfaction of older people was classified into four grades: high satisfaction (15.2%), moderate satisfaction (60.8%), moderate dissatisfaction (23.4%), and high dissatisfaction (0.6%). The predictors of the longevity of the lives of older people were confirmed, both health factors (subjective health assessment, anxiety, and depression [Model 1: R = 0.642; R2 = 0.412; p<0.000]) and psychosocial factors (quality of life, self-esteem, sense of coherence, age, and social support [Model 2: R = 0.716; R2 = 0.513; p<0.000]). CONCLUSION: In implementing policy measures, these areas should be emphasized. The availability of educational and psychosocial activities (e.g. reminiscence therapy, music therapy, group cognitive behavioural therapy, cognitive rehabilitation) within the community care of the older people and university of third age is appropriate to increase the life satisfaction of the older people. An initial depression screening is also required as part of preventive medical examinations to ensure early diagnosis and treatment of depression.
- MeSH
- deprese psychologie MeSH
- emoce * MeSH
- kvalita života * psychologie MeSH
- lidé MeSH
- osobní uspokojení MeSH
- průřezové studie MeSH
- senioři MeSH
- Check Tag
- lidé MeSH
- senioři MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- Geografické názvy
- Česká republika MeSH
BACKGROUND: To evaluate the established interventions used for older adults, it is appropriate to use validated questionnaires for quality-of-life assessment. For older people, it is suitable to use specific questionnaires designed for old age and aging, with a lower number of questions. The aim of this research was to verify the psychometric properties of the Czech version of the OPQoL-brief questionnaire for seniors living in home environment in a community so that it can be used within the Czech Republic. METHODS: A cross-sectional study was performed on older adults in the Moravian-Silesian Region living at home. The study included 954 senior citizens (≥ 65 years, cognitively intact) (without diagnosed dementia, able to sign an informed consent). To test the psychometric properties of the created questionnaire, we tested the validity (construct validity, discriminant validity, convergent validity) and reliability (internal consistency, test-retest reliability). RESULTS: The single-factor model of the OPQoL-brief scale (CFI = 0.971, TLI = 0.959, RMSEA = 0.061, SRMR = 0.034, GFI = 0.960) was confirmed, for which excellent reliability was found (α = 0.921, ICC = 0.904). An inter-item correlation exceeding 0.5 was found for all items. Furthermore, a significant correlation was found between the overall score of OPQoL-brief and the scales measuring depression (r = - 0.520; p < 0.001), anxiety (r = - 0.355; p < 0.001), sense of coherence (r = 0.427; p < 0.001), and self-esteem (r = 0.428; p < 0.001). CONCLUSION: The results of our research revealed that the shorter Czech version of the OPQoL-brief questionnaire has appropriate reliability and validity and can be recommended for both health and social services to assess the quality of life of senior citizens in a community.
- Klíčová slova
- Elderly, Quality of life, Reliability, Validity,
- MeSH
- kvalita života * MeSH
- lidé MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- psychometrie MeSH
- reprodukovatelnost výsledků MeSH
- senioři MeSH
- Check Tag
- lidé MeSH
- senioři MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
- Geografické názvy
- Česká republika epidemiologie MeSH
The objective was to identify the attitudes of progressive neurological disease (PND) patients and their family members regarding end-of-life care, and their worries about dying. The sample included 327 participants. The Attitudes of Patients with PND to End-of-Life Care questionnaire was used to collect the data. Statistically significant differences in the assessment of attitudes towards end-of-life care between patients and family members were identified (p < 0.001). Family members more frequently favored patients being kept alive at any cost; patients more commonly wished to have their end of life under control. Respondents most frequently deferred to doctors when it came to decisions on treatment to keep patients alive. However, both patients and family members wanted patients to be able to decide on their treatment by leaving a written record of their previously stated wishes. The demands of patients and their families regarding end-of-life care should be documented in individual care plans.
- Klíčová slova
- attitudes, end of life care, ethics, neurology, quality of life,
- MeSH
- lidé MeSH
- péče o umírající * MeSH
- postoj MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- rodina MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
BACKGROUND: Patients with MS should be provided palliative care, which could help them manage symptoms more efficiently and could solve some psychosocial problems. Evaluating the satisfaction with provided care may be one of the factors of the quality of care evaluation. AIM: The aim of this controlled intervention study was to determine the factors affecting one's satisfaction with care in patients in advanced stages of MS and their caregivers. Furthermore, the aim was to study the difference in the satisfaction of patients and family members with the provided specialized palliative care, as opposed to the standard care. METHODS: The sample consisted of 103 patients with MS who were randomized to either a palliative care intervention or the control group. Family members of each patient were invited in the study, and 97 caregivers agreed to participe. The patients in the intervention group were provided with neuropalliative care in the form of consultations with a multidisciplinary palliative team. A modified questionnaire, CANHELP Lite, was used to collect data. Patients and family members completed the questionnaire 3 months after the intervention. RESULTS: The patients and caregivers in the intervention group expressed significantly greater satisfaction in all analyzed areas (p = 0.000-0.002). The provided intervention predicted the satisfaction in the domains of a relationship with the doctor, disease management, and decision-making/communication. Another important predictor of the satisfaction in all domains was the functional state of the patient. CONCLUSION: Targeted consultations resulted in the greater satisfaction of patients with MS and their caregivers with the provided care.
- Klíčová slova
- family members, multidisciplinary team, multiple sclerosis, neuropalliative care, quality of life, satisfaction,
- MeSH
- lidé MeSH
- osobní uspokojení MeSH
- osoby pečující o pacienty MeSH
- paliativní péče * MeSH
- rodina MeSH
- roztroušená skleróza * terapie MeSH
- spokojenost pacientů MeSH
- Check Tag
- lidé MeSH
- Publikační typ
- časopisecké články MeSH
- randomizované kontrolované studie MeSH
BACKGROUND: It is recommended that patients with progressive neurological disease (PND) receive general and specialized palliative care. The purpose of this study was to determine the effect of neuropalliative care on quality of life (QoL) and satisfaction with provided care in both patients with PND in advanced stages of disease and their family caregivers. METHODS: The sample consisted of 151 patients with PND and 140 family caregivers. The PNDQoL questionnaire was used for data collection. Patients and family caregivers completed the questionnaires both before and 3 months after the intervention. RESULTS: Before intervention, there were no statistically significant differences in the individual domains of QoL in patients and family caregivers in either the intervention or the control group. After intervention, differences were identified in the sample of patients in the domains of symptoms burden (p < 0.001), emotional (p < 0 .001), social functioning (p = 0.046), spiritual area (nonreligious) (p = 0.050), and in QoL. In the sample of family caregivers, there were differences in the domains of symptoms burden (p < 0.001), emotional functioning (p = 0.016), spiritual area (nonreligious) (p = 0.042), and in the assessment of health (p = 0.002), and QoL (p = 0.002). Patients and family caregivers from the intervention group evaluated their satisfaction with the quality of care provided significantly more positively in all five analyzed domains. CONCLUSION: The provision of neuropalliative care to patients with advanced stages of PND helped to maintain and slightly improve their QoL, and symptoms burden, and resulted in a more positive assessment of satisfaction with the quality of care provided.
- Klíčová slova
- Palliative care, Quality of life, Subjective assessment, Symptoms burden,
- MeSH
- dospělí MeSH
- kvalita života psychologie MeSH
- lidé středního věku MeSH
- lidé MeSH
- nemoci nervového systému komplikace ošetřování MeSH
- neurologické ošetřovatelství normy statistika a číselné údaje MeSH
- osoby pečující o pacienty psychologie MeSH
- paliativní péče metody psychologie normy MeSH
- průzkumy a dotazníky MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- spokojenost pacientů * MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři nad 80 let MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
BACKGROUND: Only a few studies have been done focusing on the quality of life (QoL) of patients with multiple sclerosis (MS) as well as their family members. The aim of our research was to determine the factors that influence the QoL of MS patients in advanced stage of disease and their caregivers. METHODS: The sample of the cross-sectional study included 153 patients with MS and 74 caregivers. QoL was measured using the PNDQoL questionnaire (Progressive Neurological Diseases Quality of Life), and the severity of illness was assessed through the following scales: EDSS (Expanded Disability Status scale), PPS (Palliative Performance Scale), and ADL (Activity Daily Living). RESULTS: The following predictors of the global QoL of the MS patients were identified - age, EDSS, symptom burden, daily care, emotional functioning, and spiritual_nonreligion functioning (R2 = 0.569; F = 32.900; p < 0.001). The following predictors of the global QoL of caregivers were identified - age, emotional functioning, spiritual_nonreligion functioning, patient's QoL, and feeling of care (R2 = 0.431; F = 18.690; p < 0.001). CONCLUSION: Appropriate intervention should be directed particularly at older patients and caregivers who have faced the disease for longer time and at patients without any partner. Supporting the emotional and social well-being and mitigating the burden caused by symptoms of the patients as well as caregivers can improve the QoL of both groups.
- Klíčová slova
- Caregivers, Emotional, Multiple sclerosis, Predictors, Quality of life, Social,
- MeSH
- dospělí MeSH
- kvalita života psychologie MeSH
- lidé středního věku MeSH
- lidé MeSH
- osoby pečující o pacienty psychologie MeSH
- průřezové studie MeSH
- průzkumy a dotazníky MeSH
- rodina psychologie MeSH
- roztroušená skleróza psychologie MeSH
- senioři MeSH
- Check Tag
- dospělí MeSH
- lidé středního věku MeSH
- lidé MeSH
- mužské pohlaví MeSH
- senioři MeSH
- ženské pohlaví MeSH
- Publikační typ
- časopisecké články MeSH
- práce podpořená grantem MeSH
