Aspects of Illness and Death among Roma-Have They Changed after More than Two Hundred Years?
Language English Country Switzerland Media electronic
Document type Journal Article, Research Support, Non-U.S. Gov't
PubMed
31795378
PubMed Central
PMC6926993
DOI
10.3390/ijerph16234796
PII: ijerph16234796
Knihovny.cz E-resources
- Keywords
- 1775, 2012, Roma, Slovakia, death, illnesses,
- MeSH
- Qualitative Research MeSH
- Humans MeSH
- Mortality * MeSH
- Disease etiology MeSH
- Roma MeSH
- Check Tag
- Humans MeSH
- Male MeSH
- Female MeSH
- Publication type
- Journal Article MeSH
- Research Support, Non-U.S. Gov't MeSH
- Geographicals
- Slovakia MeSH
Augustini studied Roma and published reports in 1775-1776 on their illnesses and death. Our intention was to compare the features of these two topics described by him in the late 18th century with those in the present time. We studied Augustini's work on illnesses and death in the past. The present qualitative study was conducted in 2012-2013 in the same geographical area in which Augustini lived and worked more than two hundred years ago, i.e., the Tatra Region in Slovakia; our findings were evaluated in 2017-2018. We carried out semi-structured interviews with more than 70 informants and organised two sessions of focus groups. Data were analysed using content analysis (Augustini) and an open coding process. Our findings suggest that illnesses in Roma are treated differently nowadays compared with 1775-1776. For example, the traditional forms of healing have completely disappeared in the area of investigation. We did not observe any differences in dying and death perceptions between the past and nowadays. Although data and knowledge on health disparities and related mechanisms exist, and much more about perceptions of Roma regarding illnesses is now known compared with 1775-1776, so far, this knowledge has not helped to design effective interventions to overcome them. Substandard living conditions in marginalised Roma communities have not significantly improved since 1775-1776, which may contribute to their higher morbidity and mortality also nowadays. Political and social consensus should lead to a comprehensive vision for enhancing the social situation and living conditions in segregated settlements, especially providing housing for the poorest classes and overcoming health disparities.
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Paralikas T., Kotrotsiou S., Kotrotsiou E., Gouva M., Hatzoglou C., Kavadias D. Gypsies’s beliefs about the evil eye in relation to mental illness. Eur. Psychiatry. 2017;41:S517. doi: 10.1016/j.eurpsy.2017.01.680. DOI
Garcia-Campayo J., Alda M. Illness behavior and cultural characteristics of the Gypsy population in Spain. Actas Esp. Psiquiatr. 2007;35:59–66. PubMed
Pavlic D.R., Zelko E., Kersnik J., Lolic J. Health beliefs and practices among Slovenian Roma and their response to febrile illnesses: A qualitative study. Zdr. Varst. 2011;50:169–174. doi: 10.2478/v10152-010-0041-6. DOI
Roma G., Gramma R., Enache A., Parvu A., Ioan B., Moisa S.M., Dumitras S., Chirita R. Dying and death in some Roma communities: Ethical challenges. J. Immigr. Minority Health. 2014;16:290–300. doi: 10.1007/s10903-012-9738-8. PubMed DOI
Anderson G., Tighe B. Gypsy Culture and Health Care. Am. J. Nurs. 1973;73:282–285. PubMed
Dion X. Gypsies and Travellers: Cultural influences on health. Community Pract. 2008;81:31. PubMed
Goward P., Repper J., Appleton L., Hagan T. Crossing boundaries. Identifying and meeting the mental health needs of Gypsies and Travellers. J. Ment. Health. 2006;15:315–327. doi: 10.1080/09638230600700888. DOI
Skaric-Juric T., Klaric I.M., Narancic N.S., Drmic S., Salihovic M.P., Lauc L.B., Milicic J., Barabalic M., Zajc M., Janicijevic B. Trapped between tradition and transition: An anthropological and epidemiological cross-sectional study of Bayash Roma in Croatia. Croat. Med. J. 2007;48:708–719. PubMed PMC
Belak A. Zdravie Očami Vylúčených: Medicínsko-Antropologická Štúdia Stredoslovenskej Rómskej Osady (Health through the Eyes of the Excluded: A Medical-Anthropological Study of a Segregated Roma Settlement in Central Slovakia) Charles University; Prague, Czechia: 2005.
Belak A. Segregovani Romovia a zdravotne politiky: Eticke a prakticke rozpory (Segregated Roma and health policies: Ethical and practical contradictions) In: Podolinska T., Hrustic T., editors. Cierno-Biele Svety Romovia v Majoritnej Spoločnosti na Slovensku. VEDA Ustav Etnologie Slovenskej Akademie vied; Bratislava, Slovakia: 2015.
Zadravec J. Health Culture of the Roma People in Prekmurje. Pomurska Založba; Murska Sobota, Slovenia: 1989.
Rotar Pavlič D., Zelko E., Kersnik J., Lolić V. Health beliefs and practices among Slovenian Roma and their response to febrile illnesses: A qualitative study. Slov. J. Public Health. 2011;50:169–174.
Zeman C.L., Depken D.E., Senchina D.S. Roma health issues: A review of the literature and discussion. Ethn. Health. 2003;8:223–250. doi: 10.1080/1355785032000136434. PubMed DOI
Van Cleemput P., Parry G., Thomas K., Peters J., Cooper C. Health-related beliefs and experiences of gypsies and travelers: A qualitative study. J. Epidemiol. Community Health. 2007;61:205–210. doi: 10.1136/jech.2006.046078. PubMed DOI PMC
Vivian C., Dundes L. The Crossroads of Culture and Health among the Roma (Gypsies) J. Nurs. Scholarsh. 2004;36:86–91. doi: 10.1111/j.1547-5069.2004.04018.x. PubMed DOI
Belak A., Madarasova Geckova A., Reijneveld S.A., van Dijk J.P. Why do segregated Roma not do more for their health? An explanatory framework from an ethnographic study in Slovakia. Int. J. Public Health. 2018;63:1123–1131. doi: 10.1007/s00038-018-1134-2. PubMed DOI PMC
Davidova E. Kvalita Zivota a Socialni Determinanty Zdravi u Romu v Ceske a Slovenske Republice. Triton; Prague, Czechia: 2010.
Traykova G., Tabanska-Petkova M., Tzacheva N. Management of the most common diseases among Roma population. Eur. J. Public Health. 2016;26(Suppl. S1) doi: 10.1093/eurpub/ckw175.066. DOI
Belak A., Veselska Z.D., Geckova A.M., van Dijk J.P., Reijneveld S.A. How well do health-mediation programs address the determinants of the poor health status of Roma? A longitudinal case study. Int. J. Environ. Res. Public Health. 2017;14:1569. doi: 10.3390/ijerph14121569. PubMed DOI PMC
Kolvek G., Rosicova K., Rosenberger J., Podracka L., Stewart R.E., Nagyova I., Reijneveld S.A., van Dijk J.P. End-stage renal disease among Roma and non-Roma: Roma are at risk. Int. J. Public Health. 2012;57:751–754. doi: 10.1007/s00038-012-0365-x. PubMed DOI
Kolvek G., Podracka L., Rosenberger J., Stewart R.E., van Dijk J.P., Reijneveld S.A. Kidney diseases in Roma and non-Roma children in eastern Slovakia: Are Roma children more at risk? Int. J. Public Health. 2014;59:1023–1026. doi: 10.1007/s00038-014-0609-z. PubMed DOI
Kolvek G., Straussova Z., Majernikova M., Rosenberger J., van Dijk J.P. Health Differences between Roma and Non-Roma in the Slovak Dialyzed Population. Int. J. Environ. Res. Public Health. 2018;15:360. doi: 10.3390/ijerph15020360. PubMed DOI PMC
Petrikova J., Janicko M., Fedacko J., Drazilova S., Geckova A.M., Marekova M., Pella D., Jarcuska P. Serum Uric Acid in Roma and Non-Roma—Its correlation with Metabolic Syndrome and other variables. Int. J. Environ. Res. Public Health. 2018;15:1412. doi: 10.3390/ijerph15071412. PubMed DOI PMC
Drazilova S., Janicko M., Kristian P., Schreter I., Halanova M., Urbancikova I., Geckova A.M., Marekova M., Pella D., Jarcuska P., et al. Prevalence and risk factors for Hepatitis B Virus infection in Roma and Non-Roma people in Slovakia. Int. J. Environ. Res. Public Health. 2018;15:1047. doi: 10.3390/ijerph15051047. PubMed DOI PMC
Halanova M., Veseliny E., Kalinova Z., Jarcuska P., Janicko M., Urbancikova I., Pella D., Drazilova S., Babinska I., Team H. Seroprevalence of Hepatitis E Virus in Roma settlements: A comparison with the general population in Slovakia. Int. J. Environ. Res. Public Health. 2018;15:904. doi: 10.3390/ijerph15050904. PubMed DOI PMC
Antolova D., Janicko M., Halanova M., Jarcuska P., Geckova A.M., Babinska I., Kalinova Z., Pella D., Marekova M., Veseliny E., et al. Exposure to Toxoplasma gondii in the Roma and Non-Roma inhabitants of Slovakia: A cross-sectional seroprevalence study. Int. J. Environ. Res. Public Health. 2018;15:408. doi: 10.3390/ijerph15030408. PubMed DOI PMC
Kozubik M., Van Dijk J.P., Odraskova B. Roma Housing and Eating in 1775 and 2013: A Comparison. Int. J. Environ. Res. Public Health. 2018;15:588. doi: 10.3390/ijerph15040588. PubMed DOI PMC
Lackova E. Slovenský Národopis. Volume 36. Slovak Academy of Science; Bratislava, Slovakia: 1988. Ľudové Liečenie Olašských Rómov Východného Slovenska v Minulosti. (Vlachiko Roma Folk Medicine in Eastern Slovakia in the Past) pp. 203–208.
Davidova E. Bez Kolíb a Šiatrov (Without Huts and Tents) Východoslovenské Vydavateľstvo (Slovak); Košice, Slovakia: 1965.
Mann A.B. Slovenský Národopis. Volume 36. Slovak Academy of Science; Bratislava, Slovakia: 1988. Obyčaje pri Úmrtí Cigánov-Rómov v Troch Spišských Obciach. (Customs related to Dying of Gypsy-Roma in three Spiš Villages) pp. 105–112.
Augustiniab Hortis S. Von dem Heutigen Zustände, Sonderbaren Sitten und Lebensart, Wie Auch von Denen Übrigen Eigenschaften und Umständen der Zigeuner in Ungarn. (Translation: Urbancová, V. 1994) Volume 1775. Kaiserliche Königliche Allergnädigste Privilegierte Anzeigen aus Sämstlichen Kaiserl. Königl. Erbländer; Wien, NY, USA: 1776. pp. 20–44. (On the Present Situation, Special Manners and Way of Life, as Well as Other Characteristics and Circumstances of the Gypsies in Hungary)
Urbancova V. Cigáni v Uhorsku. Zigeuner in Ungarn; (Gypsies in Hungary) Studio DD; Bratislava, Slovakia: 1994. (In Bilingual Slovak and German)
Soukup V. Přehled Antropologických Teorií Kultury (Survey of Anthropological Theories of Culture) Portál; Praha, Czechia: 2011.
Geertz C. The Interpretation of the Cultures. Basic Books; New York, NY, USA: 1973.
Geertz C. Work and Lives: The Anthropologist as an Author. Stanford University Press; Stanford, UK: 1988.
Rosinsky R. Amare Roma (Our Roma) Constantine the Philosopher University; Nitra, Slovakia: 2006.
Kozubik M. (Ne) Vinní a Dilino Gadžo ((Un) Guilty and Dumb White) Constantine the Philosopher University; Nitra, Slovakia: 2013.
Atlas Rómskych Komunít na Slovensku 2019 (Atlas of Roma Communities in Slovakia 2019) USVpRK; Bratislava, Slovakia: 2019. [(accessed on 2 October 2019)]. Available online: https://www.minv.sk/?atlas-romskych-komunit-2019.
Weber M. The Meaning of Ethnical Neutrality in Sociology and Economics. In: Shils E., Finch H., editors. Max Weber on the Methodology of Social Sciences. Free Press; New York, NY, USA: 1949.
Weber M. Die Protestantische Ethik und der Geist des Kapitalismus (The Protestant Ethic and the Spirit of Capitalism) Mohr; Tübingen, Germany: 1920.
Weber M. Zur Geschichte der Handelsgesellschaften im Mittelalter (History of Commercial Companies in the Middle Ages) Mohr; Stuttgart, Germany: 1889.
Major R.H. A History of Medicine. Springfield (Ill) Oxford; Toronto, ON, Canada: 1954.
Horvathova E. Cigáni na Slovensku (Gypsies in Slovakia) Slovak Academy of Science (Slovak); Bratislava, Slovakia: 1964.
Zdravé Komunity Healthy Communities. [(accessed on 26 August 2018)]; Available online: http://zdraveregiony.eu/poslanie-a-ciele/
Podolinska T., Hrustic T. Boh Medzi Bariérami. Sociálna Inklúzia Rómov Náboženskou Cestou (God between Barriers. Social Inclusion of Roma through Religion) Institute of Ethnology, Slovak Academy of Science; Bratislava, Slovakia: 2010. (In Slovak)
Molinuevo D., Koomen M., Fóti K. Living Conditions of the Roma: Substandard Housing and Health. European Foundation for the Improvement of Living and Working Conditions; Dublin, Ireland: 2012. [(accessed on 31 October 2018)]. Available online: https://www.eurofound.europa.eu/sites/default/files/ef_publication/field_ef_document/ef1202en.pdf.
Pappa E., Chatzikonstantinidou S., Chalkiopoulos G., Papadopoulos A., Niakas D. Health-Related Quality of Life of the Roma in Greece: The Role of Socio-Economic Characteristics and Housing Conditions. Int. J. Environ. Res. Public Health. 2015;12:6669–6681. doi: 10.3390/ijerph120606669. PubMed DOI PMC
Six J., Lorez M., Galli F., Arndt V. Age-dependent risk and lifetime risk of developing cancer in Switzerland. Schweiz. Krebsbulletin. 2017;3:284–291.
Vilinova K., Repaska G., Vojtek M., Dubcova A. Spatio-Temporal Differentiation of Cancer Incidence in Slovakia. Eur. Spat. Res. Policy. 2017;24:167–190. doi: 10.1515/esrp-2017-0015. DOI
Fundación Secretariado Gitano . Zdravotná Starostlivosť v Sociálne Vylúčených Rómskych Komunitách (Health Care in Socially Excluded Roma Communities) FSG; Madrid, Spain: 2007. [(accessed on 8 November 2017)]. Available online: http://ec.europa.eu/health/ph_projects/2004/action3/docs/2004_3_01_manuals_sk.pdf. (In Slovak)
Infostat . Prognóza Vývoja Obyvateľstva Podľa Okresov v SR Do Roku 2025. Infostat; Bratislava, Slovakia: 2008. [(accessed on 8 November 2017)]. (Prognosis of Population Development by Districts in the Slovak Republic till 2015) Available online: http://www.infostat.sk/vdc/pdf/publikaciaproj.pdf. (In Slovak)
Liegeois J.P. Roma, Gypsies, Travellers. Council of Europe; Strassbourg, France: 1994.
Rosinsky R. Etnické Postoje Učiteľov, Študentov a Žiakov I. Stupňa ZŠ (s Akcentom na Rómsku Etnickú Skupinu) (Ethnic Attitudes of Teachers, Students and Pupils in Stage I at Elementary Schools (with Focus on the Roma Ethnic Group) UKF; Nitra, Slovakia: 2009. (In Slovak)
Lamber S.C., Loiselle C.G. Combining Individual Interviews and Focus Groups to Enhance Data Richness. J. Adv. Nurs. 2008;62:228–237. doi: 10.1111/j.1365-2648.2007.04559.x. PubMed DOI
Molzahn A.E., Starzomski R., McDonald M., O’Loughlin C. Chinese Beliefs towards Organ Donation. Qual. Health Res. 2005;15:82–98. doi: 10.1177/1049732304270653. PubMed DOI
Strategy of Slovak Republic for Roma Integration till 2020. National Council of the Slovak Republic; Bratislava, Slovakia: 2012. (Stratégia Slovenskej Republiky pre Integráciu Rómov do Roku 2020)
Trofimova K. Transforming Islam among Roma communities in the Balkans: A case of popular religiosity. Natl. Pap. J. Natl. Ethn. 2017;45:598–612. doi: 10.1080/00905992.2017.1302925. DOI
Jakoubek M., Budilova L. Structural analysis of Roma religiosity based on the ritual practice of “Oath at the Cross”. Hist. Sociol. 2014;1:71–80.
International Federation of Social Workers (IFSW): Global Definition of Social Work. [(accessed on 25 September 2018)]; Available online: https://www.ifsw.org/what-is-social-work/global-definition-of-social-work/ (In English)
Roma Religion: 1775 and 2018 Compared over Time
Social Structure in a Roma Settlement: Comparison over Time